- Buddy Walk 2023--Sunday, October 29th, 2023 Saluda Shoals Park Athletic Fields
- Hopes & Dreams 2024--Thursday, March 21, 2024 R2i2 Conference Center
Welcome to the Center for Disability Resources Library Blog! Here we will welcome your comments and suggestions about books and videos that you have borrowed, materials that you would like to see purchased, or anything involving the day-to-day operations of the library or even of disabilities in general. Visit the CDR Library's web site!
Wednesday, May 31, 2023
Updates from Family Connection!
Tuesday, May 30, 2023
Field Notes May 2023
An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Duke University and The Foundation for Angelman Syndrome Therapceutis describes a study exploring meaningful aspects of communication for individuals with AS. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)
An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Duke University and The Foundation for Angelman Syndrome Therapceutis explains the critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with AS. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)
An article published in the March 2023 Issue of the Journal of Policy and Practice in Intellectual Disabilities by authors affiliated with Georgia State University, Augusta University and the University of Pretoria examines how a web-based self-guided app functioned for caregivers and its secondary effects on their children. (Available free of cost)
Family Perspectives
An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Vanderbilt University describes the complexities and challenges of obtaining employment for family members with extensive support needs. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)
An article published in the March 2023 issue of Intellectual and Developmental Disabilities by authors affiliated with Vanderbilt University discusses parent perspectives on meaningful employment for their family members with IDD. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)
An article published in the March 2023 issue of the Journal of Policy and Practice in Intellectual Disabilities by authors affiliated with Deakin University, the University of New South Wales and Community Paediatrics explores stakeholder experiences of people with disability from Iraqi and Syrian refugee backgrounds who resettled in Australia, with a view to informing future services and supports. (Available free of cost)
Community
Transportation and Community Participation Among Autistic Adults
An article published in the March 2023 Issue of Inclusion by authors affiliated with Drexel University describes how the amount, breadth, and sufficiency of community participation differed in terms of transportation modes used by autistic adults. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)
An article published in the April 2023 Issue of the Disability and Health Journal by authors affiliated with The Council on Quality and Leadership examines if and how states provided community transition services in their HCBS waiver programs for people with IDD.(Available free of cost)
Providers
An article published in the May 2023 issue of the Journal of Intellectual Disability Research by authors affiliated with the University of Perugia and The Ohio State University describes a study that identifies the erroneous assumptions that were most prevalent in physicians and damaging for healthcare of adults with ID. (Available free of cost)
Explicit and Implicit: Ableism of Disability Professionals
An article published in the May 2023 Issue of the Disability and Health Journal by authors affiliated with The Council on Quality and Leadership examines the explicit and implicit disability attitudes of disability professionals. (Available free of cost)
Friday, May 26, 2023
Staying Safe Free Training!
Thursday, May 25, 2023
In-Person Professional & Community Training June 7th and 8th
Choosing a Video Magnifier for Individuals
with Low Vision
June 7th 1:00 p.m.-3:00 p.m.
Registration is required for the training session
(maximum seating is 25).
Target Audience: Professionals working with individuals who are living with low vision diagnoses, including age-related macular degeneration, Stargardt macular degeneration, diabetic retinopathy, retinitis pigmentosa, glaucoma, amblyopia, strabismus, cataracts, optic nerve disorders and any other low vision disorders.
Participants will learn to:
- Define one or more difficulties an individual is having when trying to accomplish certain tasks at school, work and/or home
- Compare several styles of assistive technology hardware options that may be suited to helping individuals accomplish tasks
- Identify top two best possible options for individuals depending on their needs
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Community Training: Best Practices
for Choosing a Video Magnifier
for Individuals with Low Vision
June 8th 12:30 p.m.-1:30 p.m.
Join us to compare several styles of low vision assistive technology to show practical issues to consider in choosing the best device for an individual.
30-minute individual appointments are available before and after the training session:
- 9:00 a.m. - 10:30 a.m.
- 2:00 p.m. - 3:30 p.m.
Registration is required for the training session
(maximum seating is 25) and individual appointments.
Target Audience: Individuals who are living with low vision diagnoses, including age-related macular degeneration, Stargardt macular degeneration, diabetic retinopathy, retinitis pigmentosa, glaucoma, amblyopia, strabismus, cataracts, optic nerve disorders and any other low vision disorders.
Participants will learn to:
- Define one or more difficulties an individual is having when trying to accomplish certain tasks at school, work and/or home
- Compare several styles of assistive technology hardware options that may be suited to helping individuals accomplish tasks
- Identify top two best possible options for individuals depending on their needs
About the Presenter:
Kimberly Cline has over 30 years of experience in the assistive technology industry. Over the years, she has contributed to the success of individuals who use assistive technology for their careers, education, and personal growth. Currently, Kimberly is the Director of Sales LVI America. She is very enthusiastic about making a difference in the lives of individuals by introducing them to the incredible low vison technology that LVI develops and manufactures. During her career, she owned and operated The Adaptive Advantage Point, where she collaborated with key clients such as the Bureau of Services to the Blind and Visually Impaired, vocational rehabilitation, and the Department of Veterans Affairs, state libraries, as well as school districts and universities. Kimberly resides in Las Vegas and has worked with hotels and other major employers in the Las Vegas area to provide jobsite assessments and recommendations to assist individuals who are visually impaired be successful in their jobs. She also implemented the accommodations and trained the clients at their workplace. Throughout her time in this industry, Kimberly has shared her expertise with a variety of audiences through speaking engagements and training sessions at national conferences such as CSUN, ATIA, National AER, ACB, NFB, and various AER Conferences and State Conferences.
Wednesday, May 24, 2023
Volunteer Drivers Needed!
Mobility & Transportation Programs
Able SC in partnership with The COMET offers a number of Mobility Programs! Keep reading for details on our programs.
Questions?
Call 803-779-121 or email
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V-Trip (Volunteer Transportation
Reimbursement Program):
Drivers Needed!
Did you know?
- The COMET, in partnership with Able SC, offers a Volunteer Driver Reimbursement Program (also known as V-Trip).
- This program is open to people with disabilities and people over 65 who live in: Chapin, Gadsden, Gaston, Irmo, the town of Lexington, Pine Ridge, South Congaree, Springdale, and Summit.
- Or parts of: Arcadia Lakes, Blythewood, Cayce, Eastover, Elgin, Gilbert, Hopkins, Pelion, Swansea, and West Columbia.
The V-TRIP program gives riders up to 150 miles a month, or $88 a month, to pay the friends, neighbors, or family living outside their household to drive them.
Are you interested in a unique way to give back to your community?
Volunteer Drivers are needed for this program!
If you would like to volunteer as a driver for V-Trip, please contact transportation@able-sc.org or call 803-779-5121
Tuesday, May 23, 2023
AAIDD Annual Meeting - Last Chance to Register Online!
Only two more days to register online for the Annual Conference!
Online registration closes Thursday, May 25th, 2023
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Lunch Meetings
Add a Lunch Ticket to Your Registration
Additional $25 Fee Per Ticket
Monday, June 5: Religion & Spirituality Interest Network Forum
Tuesday, June 6: Tuesday Buffet Lunch
Wednesday, June 7:
- Student and Early Career Professionals Interest Network (SECP) Lunch Meeting
- Psychology Interest Network Lunch Meeting
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Opportunities for Student & Early Career Professionals (SECP)
RSVP on Your Registration - No Additional Fee
Sunday, June 4
6:30 - 7:30 pm President’s ReceptionMonday, June 5
1:00 - 2:30 pm 2023 SECP Research ColloquiumTuesday, June 6
- 7:30 - 8:30 am SECP Meeting
- 5:00 - 6:30 pm Poster Reception
- 6:30 - 7:30 pm SECP Reception
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Can't Make It?
Cancellation/Refund Policy
Requests for cancellations must be submitted via email only, and a $50 processing fee will be charged for all cancellations. Refunds will be issued for cancellations requested on or before May 26, 2023.
Monday, May 22, 2023
SCATP Webinar June 6
Please Join us!
Fundamentals of
Adaptive Outdoor Recreation
Webinar: June 6th
Target Audience: Individuals, organizations, and all others who want to learn best practices to develop safe, fun, and effective adaptive outdoor recreation programs. Join us for a journey into the fast-changing world of adaptive sports and those who are transforming the ways that people with disabilities live, work and play. This session will explore fundamental principles of adaptive sport and outdoor recreation, including ADA compliance, adaptive outfitting concepts & risk management considerations.
Participants will learn to:
- Identify key safety & effectiveness issues for use of outdoor recreation assistive technologies.
- Identify how adaptive sports and outdoor recreation differ from Therapeutic Recreation.
- Identify Essential Eligibility Criteria (EEC), why they are needed, and how they are developed.
Speaker Name: Joe Moore
Speaker Biography: Ten years after becoming an amputee, Joe Moore left his career in law to share his love of an active outdoor recreation lifestyle with others. In 2011, Joe began a journey of training, education and exploration to become an adaptive sports and recreation industry leader.
Friday, May 19, 2023
A More Maneuverable Standing Power Wheelchair
LEGACY
Judy Heumann: Honoring the 'Mother of the Disability Rights Movement'
Following the March 4 death of disability rights pioneer Judy Heumann, we curated a series of pieces to illustrate the overwhelming breadth of her legacy fighting for our community.
We begin with an excerpt from her memoir that drops us into the most famous event of her career: the Section 504 sit-in in 1977. Fast forward to a 1986 interview with New Mobility founder Sam Maddox in which Heumann speaks about the importance of connecting with other disabled people. And for a post-ADA perspective, Emily Ladau shows Heumann cementing her legacy by actively mentoring the next generation of disability leaders. She changed the world — and made sure the rest of us will keep at it too.
PRODUCTS
Permobil Releases Mid-Wheel-Drive Standing Power Wheelchair
The newest power wheelchair from Permobil combines standing functionality with the maneuverability of a mid-wheel-drive base. The M Corpus VS features Permobil’s latest suspension system, new knee supports designed for easier use by those with limited hand function, and compatibility with a wide variety of seating options.
CAPTION CONTEST WINNER
We published this Mat Barton comic in our last newsletter and on Instagram, asking for your best satirical captions, and got over 100 responses. Here is our favorite:
Stephanie Wood, Harleysville, PA.
Click here to read more of this issue!
Thursday, May 18, 2023
May Advocacy: Water Safety Month & Advocacy Resources
This May, the Autism Society highlights Water Safety Month. Our water and wandering initiative focuses on proactive programming, prevention, and improved responses to wandering incidents. This initiative is a national effort to increase water safety education and training across the Autism community in order to decrease the tragic loss of life caused by water and wandering-related accidents. This program works to increase water safety skills among Autistic children, teens, adults, and those who support them.
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HollyRod Event
The Autism Society of America and the HollyRod Foundation team up to read Holly Robinson Peete’s new children’s book Charlie Makes A Splash, in our upcoming Facebook video on Monday, May 22nd at 2:00 pm EST. This book highlights the benefits of water along with the undeniable need for services and education in the area of water safety, swimming, and wandering within the Autism community. Christopher Banks, President and CEO of the Autism Society of America, joins in this discussion and shares how our water safety resources can be accessed.
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Making Informed Decisions: ABA Resource
The Autism Society of America has released an Applied Behavioral Analysis (ABA) resource. This resource provides neutral, unbiased information that families and caregivers can use to better understand their options when making decisions about whether ABA is right for them. To develop this resource, the Autism Society spent over 18 months working with a diverse group of Autistic individuals, family members and caregivers, and professionals with direct experience with ABA. Learn more about our ABA Commission, the development process, goals, and resources here.
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Advocacy Guide for Debt Ceiling
The Autism Society of America along with the Association of University Centers on Disabilities created an advocacy toolkit for debt ceiling negotiations and Medicaid to prevent budget cuts. This resource provides actionable steps to take using our Action Center, scripts to reference when contacting Congress, and information on setting up district office meetings.
This week's issue of Capitol Connection discusses the debt ceiling guide, administrative updates, and news on an advocacy win in South Carolina. Read more here.
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Contact Line 1 (800) 328-8476
Wednesday, May 17, 2023
Why Peer Mentoring?
What is peer mentoring?
- Peer mentoring can help youth with disabilities feel more empowered and included in society (National Mentoring Resource Center, 2018)
- Peer mentoring provides 3 great benefits: the feeling of hope from positive disability disclosure from a peer mentor, being a role model and using self-care, and building trust and acceptance with a peer mentee (World Psychiatry, 2012)
- “Peer support offers a level of acceptance, understanding, and validation not found in many other professional relationships” (Mead & McNeil, 2006)
Benefits for peer mentee:
- Peer mentoring helps people with disabilities create successful career and educational plans (National Mentoring Resource Center, 2018)
- Peer mentoring allows people with disabilities to improve their social skills, self-advocacy skills, and self-determination (National Mentoring Resource Center, 2018).
- Youth with disabilities who receive peer support improve their problem-solving skills and independent living skills (National Mentoring Resources Center, 2018)
Benefits for peer mentor:
- “Talking to my peers empowered me and provided me with an extra source of motivation to keep working hard and striving towards my goals (Christopher Reeve Foundation, 2021).”
- Peer mentors who work with peers with psychiatric disabilities can become certified and get paid through the state Medicaid plans (SC Share, 2019).
Tuesday, May 16, 2023
Mental Health Awareness Month & Water Safety Month
This May our focus is on Mental Health Awareness Month, suicide prevention, Water Safety Month, and resources for summer planning. Our public policy resources provide guidance for the end of the Public Health Emergency ending on May 11th. We also encourage you to continue using our Action Center to support disability policy.
Did you know: Approximately 70 percent of those with Autism have at least one or more co-occurring mental health conditions. Because of the prevalence, collaboration among the Autism community, health advocates, organizations, and policymakers is crucial for providing equitable mental health support.
Affiliate Highlights
- Autism Society Oregon will host their Women and Non-Binary Friendship Group for Those on the Autism Spectrum. This online meeting will take place on Sunday, May 21st.
- Autism Society Southwest New Jersey will host their night out with the Philadelphia Phillies on Saturday, May 20th.
Contact Line 1 (800) 328-8476
Monday, May 15, 2023
May Disability Benefits and Employment Workshop
- Are you interested in going to work or increasing your earnings?
- Have you been told that doing so would cause you to automatically lose your cash benefits?
- If so, register for a free workshop to let us dispel some of the myths about working while receiving SSI/SSDI and connect you with local organizations that can help you with your job search!
Join us on Tuesday, May 23
from 2 PM - 4 PM through Zoom!
*This workshop will be most beneficial to people who already receive SSI/SSDI or have some basic knowledge of it.*
Registering ensures you get the link and all the materials needed.
Registration closes on Monday, May 22.
Please email us at hiremesc@able-sc.org to register.
If you need accommodations or more information,
please email hiremesc@able-sc.org
or call 1-800-681-7715/TTY: 864-235-8798
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Thank you to Disability Rights South Carolina
for funding this program.
Friday, May 12, 2023
Changing the Culture
In May of 2022, South Carolina passed the Employment First Initiative Act and the bill to end subminimum wage practices by August of 2024. Eliminating subminimum wage is possible! In this video, we hear from Laurens County Disability and Special Needs Board. They share their experience and thoughts on successfully ending sheltered workshops and implementing Employment First. They have changed their culture, and so can you! DSN providers have less than two years to end their subminimum wage contracts.
To help with your transition, we wanted to share with you DSN providers who are eliminating their subminimum wage work and prompting Employment First in the community. These providers are available to provide technical assistance and resources as you help to transition individuals out of subminimum wage. Contact Hire Me SC at hiremesc@able-sc.org for more information and to get connected.
Thank you to the South Carolina Developmental
Disabilities Council for funding this project.
803.779.5121 | hiremesc@able-sc.org
Thursday, May 11, 2023
FDA Authorizes Changes that Simplify Use of Bivalent MRNA COVID-19 Vaccines
On April 18, 2023, the Food and Drug Administration (FDA) changed the Emergency Use Authorizations (EUAs) for the Pfizer and Moderna bivalent MRNA COVID-19 vaccines. The changes will simplify vaccination for most people.
The biggest change is that the bivalent Moderna and Pfizer COVID-19 vaccines will be used for all doses when someone gets the MRNA type vaccine. The Pfizer monovalent and Moderna monovalent COVID-19 vaccines (also known as the original vaccines released in 2021) are no longer available. The bivalent vaccines are available to all people ages six months and older.
Key Changes:
- Most people who have gotten a monovalent MRNA vaccine but not a bivalent booster, are eligible for a bivalent booster dose. Age restrictions do apply; keep reading for more information.
- People who are 65 or older and have gotten one dose of the bivalent COVID-19 vaccine booster may now get another dose if it has been at least 4 months since their last dose.
- People who are immune compromised and have already gotten a bivalent COVID-19 vaccine booster may now get another dose. Please speak with your healthcare provider about when you should get this dose.
- For immune compromised children between the ages of 6 months-4 years, their eligibility for additional doses will depend on which vaccine they have already gotten. Talk to their doctor about the best options for your child.
- If you are not a part of any of these groups of people butt have received a bivalent booster dose, you are still not eligible for another dose. The FDA will meet soon to offer more guidance.
- If you are still unvaccinated against COVID-19, you may now get a single dose of a bivalent MRNA vaccine. Check with your healthcare provider to make your appointment and vaccine plan.
Unvaccinated children may now get:
- A two dose Moderna bivalent vaccine series. Children who qualify for this must be 6 months-5 years old.
OR
- A 3 dose Pfizer bivalent vaccine series. Children who qualify for this must be between the ages of 6 months-4 years.
OR
- Children who are five years old may receive either two doses of the Moderna bivalent series, or a single dose of the Pfizer bivalent series.
Children ages 6 months through five years old who have previously gotten 1, 2, or 3 doses of a monovalent MRNA vaccine should get a dose of a bivalent MRNA vaccine. The number of bivalent doses children can get is determined by the brand of vaccine and your child’s vaccination history.
For many people, COVID-19 infection continues to be a very real risk. You are still at great risk of getting very sick, getting long COVID, or dying from COVID-19 if:
- You are unvaccinated
- You are a child who is unvaccinated
- You have a disability or health condition
- You are pregnant (your risk is event greater if you are pregnant and unvaccinated)
- You live with or work in close proximity to people who are unvaccinated
Staying up to date with your COVID-19 vaccinations is the best way to reduce the risks of COVID-19. The COVID-19 vaccine reduces the chances of becoming very sick, being hospitalized, or dying from COVID-19.
Contact our Vaccine Access Helpline at 1-800-787-6046.
References:
Food and Drug Administration (2023, April 18). “Coronavirus (COVID-19) Update: FDA Authorizes Changes to Simplify Use of Bivalent MRNA COVID-19Vaccines.”: https://www.fda.gov/news-events/press-announcements/coronavirus-covid-19-update-fda-authorizes-changes-simplify-use-bivalent-mrna-covid-19-vaccines
Wednesday, May 10, 2023
DDSN Listening Sessions
- People currently receiving DDSN supports, and their families
- People waiting to receive DDSN supports, and their families
- What does a “good life” look like to you?
- What do you need to live the “good life” you want to live?
- What are your thoughts on what works really well about the services you receive?
- What doesn’t work so well?
Tuesday, May 09, 2023
Addressing Violence Against People with Disabilities
If someone is hurting you and you need help finding resources and support, call our office at 803-779-5121 between 9am - 5pm Monday-Friday to make an appointment to talk to us. You can also email Dori Tempio at dtempio@able-sc.org.
IMPORTANT: Please know that we don’t provide direct crisis services. This means that we do not have a shelter (a place for people to stay for a short time while escaping an abusive situation). We also do not have lawyers, police, therapists, or medical workers on staff. If you are in immediate danger, please call 911.
Able SC has programs and services that address violence against South Carolinians with disabilities in three main ways.
- We help people with disabilities who have been hurt or abused to find resources, understand their legal rights, and get the support they need to heal. Able SC staff are not mandated reporters. This means that if you tell us someone is hurting you, we will never call the police or file an Adult Protective Services (APS) report unless you ask us to. Our staff offers one-on-one support that is led by the choices, goals, and needs of each individual.
- We create easy-to-understand educational resources about relationship safety for everyone! Our customized webinars, classes, and written materials are designed to be easy for people with all kinds of disabilities to access and understand. We teach about healthy relationships, how to notice signs of abuse, and how to get help if abuse happens to you.
- We provide training and education for professionals who serve survivors with disabilities.
1 in 3 South Carolinians has a disability– in other words, we are everywhere! Able SC can help you or your organization gain the knowledge, practical skills, and confidence you need to make your services accessible, welcoming, and affirming for people with disabilities.
Not sure if you or a loved one is being abused? Check out these helpful guides for people with disabilities.
- Self-Advocacy and Understanding Your Rights
- How to Get Help When You are Being Hurt: A Guide for Victims of Abuse and Assault with Disabilities
- Advocacy with Law Enforcement and Victim Service Providers
- End Abuse of People with Disabilities: booklet about abuse and violence. Offers tips for what you can do if you are being abused.
- See Something, Do Something: Prevent Sexual Assault and Domestic Violence: Guide on how to help if you see someone being hurt or abused.
Check out our brochures for professionals with tips and resources on accessibility:
- Connect to Safety: Ending Violence and Abuse for People with Disabilities
- Preventing Violence Against People with Disabilities through Education and Empowerment
Able South Carolina
803.779.5121 | advocacy@able-sc.org
Monday, May 08, 2023
Survey: Advocacy Day
Thank you for joining us!
If you missed out on Advocacy Day, don't worry!
The live video will remain online on our YouTube Channel.
Watch Livestream: YouTube Channel Link
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If you were able to join us online or in person,
please complete our survey about the event!