Autism More Common Than Previously Thought: CDC Report Shows One in 54 Boys Identified

ScienceDaily (Mar. 29, 2012) — "The U.S. Centers for Disease Control and Prevention estimates that 1 in 88 children in the United States has been identified as having an autism spectrum disorder (ASD), according to a new study released March 29 that looked at data from 14 communities. Autism spectrum disorders are almost five times more common among boys than girls -- with 1 in 54 boys identified.
The number of children identified with ASDs ranged from 1 in 210 children in Alabama to 1 in 47 children in Utah. The largest increases were among Hispanic and black children.
The report, Prevalence of Autism Spectrum Disorders -- Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008, provides autism prevalence estimates from 14 areas. It was just published in the Morbidity and Mortality Weekly Report.
"This information paints a picture of the magnitude of the condition across our country and helps us understand how communities identify children with autism," said Health and Human Services (HHS) Secretary Kathleen Sebelius. "That is why HHS and our entire administration has been working hard to improve the lives of people living with autism spectrum disorders and their families by improving research, support, and services."
"One thing the data tells us with certainty -- there are more children and families that need help," said CDC Director Thomas Frieden, M.D., M.P.H. "We must continue to track autism spectrum disorders because this is the information communities need to guide improvements in services to help children."
Zachary Warren, Ph.D., director of the Vanderbilt Kennedy Center's Treatment and Research Institute for Autism Spectrum Disorders at Vanderbilt University, says effective early identification and treatment of autism is a public health emergency.
"The new CDC data is the best evidence we have to date that autism is a very common disorder. While recent estimates have varied, we have always known the individual, familial, educational and societal costs that go along with autism are tremendous," Warren said. "We are now seeing autism in more than 1 percent of the population, which highlights how challenging it will be for systems of care to meet service needs.""

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Study in Korea Puts Autism’s Prevalence at 2.6%, Surprising Experts

New York Times (May 9, 2011)- An ambitious six-year effort to gauge the rate of childhood autism in a middle-class South Korean city has yielded a figure that stunned experts and is likely to influence the way the disorder’s prevalence is measured around the world, scientists reported on Monday.

The figure, 2.6 percent of all children aged 7 to 12 in the Ilsan district of the city of Goyang, is more than twice the rate usually reported in the developed world. Even that rate, about 1 percent, has been climbing rapidly in recent years — from 0.6 percent in the United States in 2007, for example.

But experts said the findings did not mean that the actual numbers of children with autism were rising, simply that the study was more comprehensive than previous ones.

“This is a very impressive study,” said Lisa Croen, director of the autism research program at Kaiser-Permanente Northern California, who was not connected with the new report. “They did a careful job and in a part of the world where autism has not been well documented in the past.”

For the study, which is being published in The American Journal of Psychiatry, researchers from the Yale Child Study Center, George Washington University and other leading institutions sought to screen every child aged 7 to 12 in Ilsan, a community of 488,590, about the size of Staten Island.

By contrast, the Centers for Disease Control and Prevention in the United States and most other research groups measure autism prevalence by examining and verifying records of existing cases kept by health care and special education agencies. That approach may leave out many children whose parents and schools have never sought a diagnosis.

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CDC Forms Disability and Health Work Group

The Challenge (Summer 2010, Volume 3, Issue 6) "Largely due to the advocacy of the Disability and Rehabilitation Research Coalition (DRRC), a group of stakeholders with which BIAA is actively involved with, the Center for Disease Control and Prevention (CDC) has announced that it will form the first Disability and Health Work Group to advance the health of people with disabilities. With cross-agency representation, the work group will focus on incorporating disability status into CDC surveys, showcasing best practices, and ensuring relevant issues for people with disabilitiesare reflected in CDC programs and polices.

BIAA applauds the elevation of these issues within the CDC and plans to offer any assistance needed to further the group's work."