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East Carolina University Study for Care Partners of Adults with Parkinson’s Disease
“My Care To Take Care”
The
Columbia Parkinson’s Support Group recently received a request to send
out information about care partners joining an impactful study. Please
see the flyer below to join the study. This is an email we received from
the professor who is leading this study:
My name is Bhibha Das and I am a faculty member at East Carolina University.
Our
research team received a Community Grant from the Parkinson’s
Foundation to improve the well-being of caregivers of adults with
Parkinson’s Disease who live in either North Carolina or South Carolina
through a program integrating through Music Therapy & Mindful
Movement. I was hoping you’d be able to spread the word through your
connections and your community about this amazing program (flyer
attached). We will start our round on August 4th (7 pm EST) and all
activities are done remotely to help account for the unique demands and
challenges of caregiving! Care partners who successfully complete the
program will receive participant gifts.
I’ve also attached some press about our study:
https://news.ecu.edu/2025/04/11/interdisciplinary-caregiver-research/
https://www.reflector.com/news/local/ecu-notes-new-funding-goal-to-empower-parkinson-s-caregivers/article_b7930111-b66d-470b-bcb8-155b48c66918.html
https://www.witn.com/2026/02/20/ecu-research-study-helps-caregivers-people-with-parkinsons-disease/
Interested folks can either email me (dasb@ecu.edu) or mycaretotakecare@gmail.com
for more information. I am also happy to speak with you or interested
individuals in person, via phone (252.328.0009), or email to answer any
questions.
I
wanted to share with you some participant quotes and reflections about
the My Care to Take Care integrated music therapy and gentle movement
program.
1) I start my day with music and relaxing. I now look forward to another day, instead of dreading it.
2) Instead of feeling guilty for going for a walk, I transformed my attitude that if I didn't walk, I should feel guilty!
3)
As result of discussion during a session I was able to contact one of
the other participants and gain valuable information about a procedure
that her care recipient went through and that my care recipient is
considering.
4)
From my Parkinson's Support Group, there is at least one other person
who is going to participate in your program. We are always discussing
ways to "fill our cups" and tools and techniques for mindful
meditation. Ways in which we can help ourselves and become better care
partners. Gentle movement and breathing exercises always come up.
5) I felt so peaceful, despite the stress of my own sudden illness. I would not have done that before this program.
6)
The entire program is calm and peaceful. Very relaxing, no stress
involved. And the leaders were so supportive and understanding, bringing
both laughter and concern into the group. When I totally forgot one of
the meetings, there was no judgment , just caring and concern and
understanding.
7)
Being a caregiver is hard—24/7 responsibility and as I am finding out,
an enormous physical and emotional stress on my body and mind. Now I
have ways to alleviate some of that stress.
Thank you so much for your help & support.
Sincerely,
Bhibha
Bhibha M. Das, PhD, MPH, FACSM
Professor, Kinesiology
173 Minges Coliseum
Greenville, NC 27858
(252) 328-0009
dasb@ecu.edu
Activity Promotion Lab
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