The Spectrum of Developmental Disabilities XXXVI: Intellectual Disability: At the Precipice

The Spectrum of Developmental Disabilities XXXVI: Intellectual Disability: At the Precipice

Monday, March 17, 2014- Wednesday, March 19, 2014
Location: Johns Hopkins University, Baltimore, MD

  http://www.hopkinscme.edu/CourseDetail.aspx/80032518

Description

Intellectual disability is a chronic, life-long disorder that has major public health implications. Since the 1970s people with intellectual disability have entered the mainstream of society and served in community programs. Intellectual disability and developmental delay is the second most common reason for provision of special education services in the US. The breadth of the issues relating to intellectual disability are well suited for the interdisciplinary focus of the Spectrum of Developmental Disabilities and its targeted audience.

Objectives

After attending this activity, the participant will demonstrate the ability to:

• List three current challenges confronting people with intellectual disability.
• Choose appropriate genetic testing to evaluate the child who presents with intellectual disability.
• Discuss the rationale for targeted pharmacotherapy of intellectual disability.
• Define and discuss the need for adaptive behavior in the diagnosis of intellectual disability.
• Analyze the benefits and challenges associated with inclusive education for intellectual disability.
• Name three epileptic syndromes associated with intellectual disability and list their clinical features and identify the preferred agents for their treatment.
• Evaluate current intervention strategies in light of lessons learned from older people with intellectual disability.

Featured Speakers

Among the guest speakers for this interdisciplinary conference will be:

• Timothy Shriver, PhD
• Gloria Krahn, PhD, MPH
• Leonard Abbeduto, PhD
• Pasquale Accardo, MD
• Maureen Durkin, PhD, DrPh
• Stephen Greenspan, PhD
• Ruth Luckasson, JD
• Scott Myers, MD
• Daniel Reschly, PhD
• Brian Rogers, MD
• Nancy Roizen, MD
• Karrie Shogren, PhD
• Gary Siperstein, PhD
• Roger Stevenson, MD
• Michael Wehmeyer, PhD
• Karen Wills, PhD, LP, ABP

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Disability Policy Seminar Orientation For Students, Trainees, and Early Career Professionals

Disability Policy Seminar Orientation For Students, Trainees, and Early Career Professionals

Tuesday, March 11, 2014- Tuesday, March 11, 2014
3:00 PM EST - 4:00 PM EST

This webinar, presented by Kim Musheno, Director of Public Policy at AUCD, will offer students, trainees and early career professionals an orientation to the policy issues and current legislation one can expect to learn more about at the 2014 Disability Policy Seminar. In addition to this content, attendees will learn the basics of how to meet with Congressional representatives and deliver a unified message about federally funded programs that benefit people with disabilities.

At the 2014 Seminar, hundreds of disability advocates from around the country will gather to discuss a wide range of public policy issues affecting people with disabilities and their families. We expect the following public policy issues will take center stage: Federal Funding, Medicaid and Community Living, Health Care, Social Security, Employment and Education, Combating Autism Act, and Asset Development.

The intended webinar audience is students, trainees, and early career professionals. To learn more about the Disability Policy Seminar please visit: www.disabilitypolicyseminar.org.  

To learn more, please click on the above title.

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Autism Spectrum Disorder in Children Who Are Deaf or Hard of Hearing

Autism Spectrum Disorder in Children Who Are Deaf or Hard of Hearing

Wednesday, February 26, 2014
3:00pm ET - 4:00pm ET

Description:

Funded through the Maternal and Child Health Bureau (MCHB), the LEND Pediatric Audiology Training Program supports 10 LEND programs to increase the didactic content and clinical experience of trainees in pediatric audiology. This webinar will use a combination of information from the literature, retrospective chart review of children with a dual diagnosis and feedback from family and professional focus groups to assist the learner in understanding the unique needs of children who are deaf/hard of hearing(hoh) with an autism spectrum disorder.  Red Flags for atypical communication will be presented as well as information about the needs related to communication, functional skills, and integrated care models.

Objectives:

·         Describe aspects of atypical development in children with the dual diagnosis

·         Identify communication strategies which can help with children with a dual diagnosis

·         Gain an understanding of family perspectives regarding the dual diagnosis of hearing loss and autism spectrum disorders

Speakers

Susan Wiley, MD, Dr. Wiley is a LEND Core Faculty Member in Pediatrics and an Adjunct Associate Professor in both the  Division of Developmental & Behavioral Pediatrics and a secondary appointment in the Division of Otolaryngology.  She is also the Program Director for the Developmental and Behavioral  Pediatric Fellowship program at the Cincinnati Children's Hospital Medical Center. Her primary clinical and research interests are with children who are deaf/hoh with additional disabilities.  She collaborates with the Ear and Hearing Center, an interdisciplinary clinical model for children with newly identified hearing loss.  Her research has included topics such as cochlear implantation in children who are deaf/blind, the impact of language and cognition on functional outcomes of children who are deaf/hoh, and developmental screening in children who are deaf/hoh.

Michael Scott, Michael Scott is the Auditory Implant Program Coordinator at Cincinnati Children's Hospital.  He coordinates the multidisciplinary team including professionals from Speech Pathology, Developmental Pediatrics, Aural Rehabilitation, ENT, Social Work and Audiology.  Clinically, he works with children ages birth to 21 years of age providing diagnostic hearing evaluations; management of bone conduction implant systems; and cochlear implants.  Research interests include cochlear implants, auditory (re)habilitation, and electrophysiology.

The visual portion of the webinar will be conducted via GoToMeeting and the audio portion via telephone or VoIP (requires microphone and speakers).  After registration you will be given a unique web address for viewing the webinar and audio information. This webinar will be recorded and should be available within a week of broadcast.

If you would like closed captioning or need assistance with this webinar, please contact Meaghan at mmchugh@aucd.org at least 5 days before the event.

 To learn more, please click on the above title.

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Emerging Transformational Leadership Program

Emerging Transformational Leadership Program

Wednesday, February 19, 2014- Wednesday, February 19, 2014
2:00pm EST - 3:00pm EST

Webinar Objectives:

This webinar is one of a series of webinars developed by LEND and UCEDD programs within the Southeast Regional Consortium.  The objectives of this webinar are:

1.  Recognize the challenges of LEND programs that seek to have a direct impact on systems of care for people with intellectual/developmental disabilities 

2.  Describe at least one training program designed to address these challenges 

3.  Consider how the lessons learned from group-based intervention of post-service professionals may be applied to LEND training 

Webinar Description: 

Is it possible for a LEND program to have a direct impact on systems of care? For decades LEND programs have focused on training future leaders, with indirect and typically long-term impact on systems of care. In 2011 the Mailman Center for Child Development LEND hypothesized that providing systems-change training to a small group of established professionals could have a short-term, direct impact on local systems of care. 

The Emerging Transformational Leadership Program (ETLP) is designed as a supplement to our traditional LEND training. Each year we select a small group of early-to mid-career professionals, parents and self-advocates who have been identified as emerging leaders in the disability community. We provide a targeted leadership training curriculum focused on changing systems of care for people with developmental disabilities. Participants develop a group project, with measurable outcomes and a specific plan for implementation. An overview and lessons learned will be shared, along with preliminary results of the program.

Speakers:

Jeffrey P. Brosco MD PhD

Professor of Clinical Pediatrics, University of Miami Miller School of Medicine
Associate Director, Clinical Services, Mailman Center for Child Development

Dr. Brosco completed an M.D. and a Ph.D. in the history of medicine at the University of Pennsylvania.  He served as chief resident after training in pediatrics at the University of Miami/Jackson Memorial Hospital, and he is board-certified in Pediatrics and in Developmental-Behavioral Pediatrics.  He completed his tenure as a Robert Wood Johnson Generalist Faculty Scholar in 2003, and he continues to teach and practice both general pediatrics and developmental pediatrics.  Dr. Brosco's previous research includes an analysis of the history of health care for children, and his current project focuses on social history and public policy trends in health care for persons with developmental disabilities.  Dr. Brosco has a leadership role in a variety of local, state, and national health policy groups, including the Act Early State Workgroup (Florida/CDC, co-chair), Newborn Screening Translational Research Network (ACMG/NIH, co-chair of Ethics Legal Workgroup), and PKU Scientific Review Conference (NIH, co-chair of Long-term Outcomes and Management Across the Lifespan workgroup).

Shelly Baer, LCSW

Associate Director, Training, LEND, Coordinator: Emerging Transformational Leadership Program (ETLP), Coordinator: Self-Advocate Leadership Training (SALT), Clinical Social Worker

Shelly Baer, LCSW received her bachelor's in psychology/special education at University of Miami and her master's in social work at Yeshiva University. She has worked as a clinical social worker for 20 years in the Miami community focusing on under-served populations. Her current position at the University of Miami Miller School of Medicine is at the Mailman Center for Child Development as Associate Director, Training, LEND, Coordinator of the Emerging Transformational Leadership Program and Coordinator of Self-Advocate Leadership Training (SALT). As clinical social work supervisor, she supervises LEND social work interns. Ms. Baer is an individual with a disability growing up with Juvenile Rheumatoid Arthritis and it has never slowed her down. Ms. Baer created a resource guide called ACCESS Miami providing social service and accessibility resources for people with disabilities; the guide is now part of Mailman's website. Ms. Baer provides public speaking to college classes and health care professionals on sexuality, dating and disability. As a springboard for discussion, she utilizes the photography exhibit she co-created, Uncensored Life: Raw Beauty which showcased women with disabilities beauty and sensuality.

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EIEC Webinar: The Power of Parenting for Young Children with Disabilities: A Parent-Child Interaction Measurement Tool, Research Findings and Suggestions for Use

EIEC Webinar: The Power of Parenting for Young Children with Disabilities: A Parent-Child 

Interaction Measurement Tool, Research Findings and Suggestions for Use

Tuesday, January 28, 2014

4:00 pm - 5:00 pm ET

This webinar will present psychometric and administration information on the PICCOLO and its use as an assessment tool. The results of research using the PICCOLO with parents and children where the child has an identified disability will be presented. Information on how the PICCOLO can be incorporated into early intervention efforts will be discussed. Strategies for using the PICCOLO in practice will be described. This information will be useful to anyone interested in early intervention with families who have a child with a disability and families where the parent may have a disability. The message for the field is that common parenting behaviors, in which parents typically engage, are important predictors of later outcomes for children with identified disabilities, and these parenting behaviors need to play a more salient role in Part C services.

To learn more, please click on the above title.

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13th Annual Autism Conference: Autism - Advances in Research and Services Network Event

13th Annual Autism Conference: Autism - Advances in Research and Services

Thursday, October 24, 2013- Friday, October 25, 2013
Location: Timonium, MD 

  http://www.cvent.com/events/13th-annual-autism-conference/event-summary-9f563f4617824ce9ba2c3161f0b338db.aspx

Hosted by the Center for Autism and Related Disorders (CARD) at Kennedy Krieger Institute, this yearly event is the premier educational autism event in the area for educators, clinicians, families, researchers and healthcare professionals. The sessions & workshops feature high-caliber speakers and presentations by visionaries in the field.This year, the focus will be on advances made in research and services for autism spectrum disorders.

To learn more, please click on the above title.

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AUCD 2013: Promoting Inclusion in an Increasingly Diverse World

AUCD2013: PROMOTING INCLUSION IN AN 

INCREASINGLY DIVERSE WORLD

Register Today!

Early Bird: by Oct 18;  

     Final Deadline: Nov 1

Reserve your space today for the highly anticipated AUCD Conference. This year's AUCD Conference theme promotes our network values of inclusion of all persons with developmental and other disabilities in community life and engages the network in conversation and practices to ensure our work reflects the changing cultural and linguistic landscape in our Centers and States. Sessions, posters, workshops, symposia, and plenaries will focus on promoting inclusion and increasing diversity. We hope to see you and your colleagues in November

To learn more, please click on the above title.

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2013 Disability Policy Seminar

TAKE YOUR MESSAGE TO CAPITOL HILL

Does what happens in Washington, D.C. really matter? You bet! Every day millions of Americans with intellectual and developmental disabilities are impacted by the public policy decisions – big and small -- made by their representatives in Congress.

And each year, hundreds of advocates attend the Disability Policy Seminar in Washington, D.C. to learn more about and discuss the hottest topics in disability public policy. We invite you to join us for an opportunity to advance the grassroots movement for people with I/DD and make sure your elected officials know what’s important to you. Two days of informative in-depth sessions from disability policy experts and opportunities to network with others from your state will culminate in a third day starting off with breakfast on Capitol Hill before you personally meet with your elected representatives and their staffs.

About the Seminar

During full day sessions April 15-16, you will have the opportunity to hear from leading public policy experts, disability advocates and Congressional staff discussing current key policies important to the disability community.

But on Wednesday, April 17, the real work is done when you will meet your Congressional delegation and deliver a unified message, in person with 500+ other advocates, that persons with disabilities must have equal opportunity to participate in our economy and society, and receive the necessary services and supports.

Who Should Attend?

• Self-advocates;
• Parents and family member of an individuals with disabilities;
• Board members, staff, trainees, and volunteers for disability organizations;
• State and local public policy committee members;
• Public policy staff; or
• Constituents

During this crucial election season, we need YOU in Washington, D.C. to help us build bipartisan support on Capitol Hill for high-priority disability issues. When you attend the Disability Policy Seminar, we’ll arm you with all of the information you need to help educate our Members of Congress and their staff on the priorities of the I/DD community. Then, you can return to your hometowns with the ability to spread the word, educate new advocates and reach out to the candidates to help put the needs of people with I/DD front and center on the campaign trail this year.

Priority Topics

Topics to be discussed include: Medicaid and Community Living, Federal Funding, Social Security, Employment and Education, Health Care, and Asset Development. Check our program schedule for a list of informative sessions about the issues important to you.

Disability Policy Seminar
April 14-17, 2013
Grand Hyatt Washington
Washington, DC

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The Southeast Regional Consortium and AUCD Presents: Bullying and Ostracism in Children and Youth with Special Health Care Needs

The Southeast Regional Consortium and AUCD Presents: Bullying and Ostracism in Children and Youth with Special Health Care Needs (CYSHCN)

Wednesday, February 20, 2013- Wednesday, February 20, 2013
2:00pm EST - 3:00pm EST
Location: webinar

Webinar Objectives

1. Define and distinguish four types of bullying
2. Understand the impact of bullying and ostracism on both the target and the perpetrator
3. Identify groups which are at higher risk for bullying and ostracism, including CYSHCN
4. Understand the role of pediatric health care professionals in detecting and intervening with bullying and ostracism

Webinar Description

This webinar is designed to update health care professionals in the latest definitions of bullying and ostracism and recent empirical findings about their impact. The primary focus is on the disproportionate rates of bullying and ostracism reported by CYSHCN. Tools for screening in pediatric specialty care or primary care clinics will be introduced along with suggestions for prevention and intervention efforts that may be within the capacity of busy health care professionals.

Speaker

After receiving her BA in Psychology from Colorado College in 1977, Dr. Conway Saylor completed her doctorate in Clinical Psychology at Virginia Tech and her internship in Clinical Child/Pediatric Psychology at Chicago's Children's Memorial Hospital in 1982. After a decade of producing three children, diverse clinical programs, and pediatric research at Medical University of South Carolina, she moved to The Citadel where she has been a Professor of Psychology and now is Director of Service Learning. She has published more than 70 articles and book chapters in clinical child/pediatric areas and has been the recipient of numerous awards including The Distinguished Service Award from the Society of Pediatric Psychology and the 2012 Professor of the Year award from the state of South Carolina. Dr. Saylor, in collaboration with colleagues in schools and MUSC's Pediatric Department, has been engaged in a seven year program of research about bullying and ostracism in youth with special needs which will inform the webinar.

To learn more, please click on the above title.

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Identifying Young Children with Disabilities Webinar

Be Early/Act Early: Your Role in Identifying Young Children with Disabilities including Autism Webinar

Friday, December 14, 2012
11:30 am ET - 1:00 pm ET
Location: online

Webinar Description
This webinar is a collaborative effort between AUCD and the North Carolina Autism Alliance. It is targeted to statewide Local Interagency Council (LICC) members and others involved with services to young children and their families. The presenters will provide information on the importance of child find and early identification of at-risk children birth to five; behaviors that place a child at-risk for developmental delays/disorders; early warning signs of autism spectrum disorders (ASD); resources that can be helpful in early identification of young at-risk children; and participants' role in early identification, including how to refer to the appropriate services.

Speakers: 
Rebecca E. Pretzel, PhD, Associate Professor and Director of Services, Carolina Institute for Developmental Disabilities, UNC-CH 
Rebecca Edmondson Pretzel, PhD, is a licensed psychologist and Associate Professor in the Dept. of Psychiatry at UNC-Chapel Hill. Becky is the Director of Services at the Carolina Institute for Developmental Disabilities and also serves as the N.C. Act Early Ambassador in collaboration with the CDC's Act Early Initiative. Her areas of interest include early identification and assessment of young children who have or are at risk of having developmental delay/disability; specific expertise is in diagnostic and treatment planning for children with significant and complex disabilities.

Elizabeth Crais, PhD, Professor, Speech and Hearing Sciences
Elizabeth Crais, PhD, is a Professor in the Division of Speech and Hearing Sciences at the University of North Carolina at Chapel Hill School of Medicine. Betsy has been active within early intervention for over 35 years, first as a practicing speech-language pathologist and then as a university professor, clinical supervisor, and researcher. She is the Co-Principal Investigator of a project focused on home-based intervention and an Investigator on a preschool project for children with or at-risk for autism. Her research focuses on the early identification of and intervention with infants, toddlers, and preschoolers with or at-risk for ASD, as well as the implementation of family-centered assessment practices.

Lauren Turner Brown, PhD, Research Assistant Professor, Carolina Institute for Developmental Disabilities, UNC-CH 
Lauren Turner-Brown, PhD, is an Assistant Professor of Psychiatry and licensed psychologist from the Carolina Institute for Developmental Disabilities at the University of North Carolina. Through ongoing research projects, training of students and professionals, and an active preschool diagnostic clinic, Lauren has expertise in the early identification of children with autism spectrum disorders, with a particular interest in early screening and intervention.

Laura Curtis, MEd, Coordinator, N.C. Early Intervention Branch
Laura Curtis, MAT, MEd, is the Coordinator of the NC Interagency Coordinating Council (ICC) at the Early Intervention Branch, Women's & Children's Health Section, Division of Public Health, NC Department of Health & Human Services. The ICC ensures the development and implementation of a coordinated interagency service system for infants, toddlers, and preschoolers with disabilities or developmental delays and their families and serves as the state level advisory board for early intervention services. Laura has been involved with early intervention for over 13 years. Her areas of interest include family support, coordinating programs across diverse organizations, and creating collaborative environments.

AUCD Webinar

Western Adventures in Audiology: LEND Pediatric Audiology Training Program Webinar Series #2

Thursday, December 13, 2012
12:00 EST - 1:30 pm EST

About the Webinar Series

Funded through the Maternal and Child Health Bureau (MCHB), the MCHB/AUCD LEND Pediatric Audiology Training Program supports 10 LEND programs to increase the didactic content and clinical experience of trainees in pediatric audiology. This webinar series has been organized to enable LEND trainees to present their perspective on pediatric audiology and the interdisciplinary LEND experience.

Program Description:

This webinar will include feature presentations from trainees within two LEND pediatric audiology programs: URLEND (Utah Regional LEND) Infant Pediatric Audiology Program at the University of Utah, Salt Lake City and the LEND Program at JFK Partners at the University of Colorado, Denver.

Objectives:

Describe challenging pediatric audiology case studies in view of cultural differences

Explain the diagnostic process for arriving at a hearing loss diagnosis

Describe the audiological management provided to children with hearing loss in light of other medical or social challenges

Describe rural outreach and teleaudiology experiences and the multidisciplinary team clinic and audiology grand rounds experiences for long-term audiology trainees

Describe challenges for teenagers with hearing loss as they transition from high school to college. These needs include self-advocacy, technology options and legal rights

Discuss challenges, use, and objectives of FM systems for deaf and hard of hearing preschool children during a summer program

Speakers  

This webinar will include presentations from trainees within two LEND pediatric audiology programs: the URLEND (Utah Regional LEND) Infant Pediatric Audiology Program at the University of Utah, Salt Lake City and the LEND Program at JFK Partners at the University of Colorado, Denver. The following faculty and trainees will be featured in this webinar:

URLEND Infant Pediatric Audiology Program at the University of Utah, Salt Lake City (The URLEND, is a LEND that covers five states: Utah, Idaho, Montana, Wyoming and North Dakota)

Daniel Roberts: Daniel Roberts is a third year audiology doctoral student in the department of Communicative Disorders and Deaf Education at Utah State University. Daniel has a strong passion for working with people with disabilities and children with special healthcare needs. He hopes to build upon that passion and increase his knowledge and advocacy through the UR-LEND program.

 Quin Card: Quin Card is a 2nd year audiology doctoral student. He is currently researching word recognition testing practices in private practice audiology clinics.

 Monica Westin: Monica Weston, M.S. CCC-SLP is a licensed Speech Language Pathologist and received her master's degree from the University of Utah. She is currently pursuing a Doctorate of Audiology at Utah State University. Her future career goals include working in pediatric audiology involving work in cochlear implants and aural rehabilitation.

JFK Partners at the University of Colorado, Denver

Sandra Abbott Gabbard, PhD:  Dr. Gabbard is the Co-Director of the Marion Downs Hearing Center and the Director of Audiology at the University of Colorado Hospital.  She is also an Associate Professor in the Department of Otolaryngology at the University of Colorado School of Medicine and adjunct faculty in the Speech, Language and Hearing Sciences Department at the University of Colorado in Boulder.  She has been providing a wide range of clinical audiological services at The University of Colorado Hospital for over 25 years.

Zachary S. La Fratta: Zac La Fratta is a fourth-year extern at the Audiology Clinic at University Colorado Hospital.  He is completing his clinical doctorate studies at Gallaudet University's audiology program under the Pediatric Audiology Education and Dissemination of Services (PAEDS) Grant for the U.S. Office of Special Education.  He has completed clinical audiology rotations in the Washington, D.C. metropolitan area at an ENT private practice, Children's National Medical Center, and The River School.  Zac currently serves as an Audiology LEND Fellow with the JFK Partners program here in Colorado to continue his training with pediatric audiology through various interdisciplinary models.  He is also proud to work with several programs at the Marion Downs Hearing Center, including Campus Connections, Newborn Hearing Screenings, and Teen Day.

Nicole Cyr: Nicole Cyr attended the University of Maine at Orono for a Bachelor of Arts Degree in Communication Sciences and Disorders. Graduate School at the University of Colorado brought Nicole to Colorado, and eventually to the Marion Downs Hearing Center. In her fourth year externship, Nicole is currently working on her Clinical Doctorate degree in Audiology from the University of Colorado Boulder. Working at the University of Colorado Hospital. Nicole has discovered her fascination with cochlear implants, and her particular desire to work in pediatrics.

A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

Evidence-based Policies that Promote Employment for People with Intellectual and Developmental Disabilities Webinar

Wednesday, December 12, 2012
2:30pm EST - 4:00pm EST
Location: Webinar

Webinar Description: 
This webinar is a collaborative effort between AUCD's Council on Research and Evaluation (CORE) and the National Association of State Directors of Developmental Disabilities Services (NASDDDS). Our speakers will discuss evidence based policies to encourage employment for individuals with intellectual and developmental disabilities.

Moderator:

Derek Nord, Ph.D., Research Associate at the Research and Training Center on Community Living (RTC), University of Minnesota's Institute on Community Integration

At the RTC, Dr. Nord conducts a number of studies and evaluations to improve employment services and outcomes for people with Intellectual and Developmental Disabilities (IDD).  Derek is a national and international presenter on employment and IDD and has authored and co-authfored numerous articles, technical briefs, and training curricula on the topic.  He serves on a number of state and national groups to advance access employment for everyone, including the Minnesota Employment First Coalition. Derek is also a board member of the Association for People Supporting Employment First (APSE).

Speakers

John Butterworth, Ph.D., Director for Employment Systems Change and Evaluation at the Institute for Community Inclusion

Dr. Butterworth has over 30 years of experience as a researcher, consultant, trainer, and manager of community-based day and employment services. He manages projects on employment support, transition, organizational change, state systems change, and employment policy. John has published in the areas of organizational change, employment outcomes, employment policy, training technology in community settings, natural supports, person-centered planning, and program management.

Linda Rolfe, Director of the Division of Developmental Disabilities in Washington State

Linda Rolfe has worked in the field of developmental disabilities for over 40 years.  Linda presided over the development of guidelines for Washington State service providers that establishes six (6) benefits expected from the delivery of services including Health and Safety, Power and Choice, Status and Respect, Relationships, Integration and Competence.  She coordinated the development and implementation of the Working Age Adult Policy in Washington that establishes the expectation that all people with disabilities can be employed and have the right and responsibility to be employed.  Linda has consulted with several states on employment issues for people with disabilities.  She is the author of an article, "Employment in Washington State," published by the Alliance for Full Participation and in the Community Services Reporter, Volume 17, Number 4 published by the National Association of State Directors of Developmental Disabilities.  She has authored articles on the importance of employment for Australia and New Zealand.  She received the Ben Censoni Award from the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the 2011 Torch Award from APSE, the national organization for Advancing Employment for Connecting People.

 Charles R. Moseley, Ed.D., Associate Executive Director, NASDDDS

Charles Moseley has worked in the developmental disabilities field for more than 38 years. As Associate Executive Director, he manages national projects and research, performs state and federal policy analysis, and provides technical assistance to states on Medicaid, self-determination, systems change, individual budgeting, and other areas. Dr. Moseley was the Co-Director of the National Program Office on Self-Determination, a Robert Wood Johnson Foundation project at the University of New Hampshire Institute on Disability. Prior to that, he was the Director of Vermont's Division of Developmental Services for 11 years. He led the initiative to close the state's institution, transition all services to community-based alternatives, and restructure service delivery to incorporate self-directed services. He holds a doctorate in intellectual disabilities policy from Syracuse University.

  Register for the Webinar   

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Association of University Centers on Disabilities

Resources, October 2011:

Early Childhood
1. Professional Training Resource Library
http://depts.washington.edu/isei/ptrl/ptrloverview.php
The Professional Training Resource Library (PTRL) is a searchable, web-based library with a wide range of free materials to support professional training in the field of early intervention. The PTRL is hosted by the International Society on Early Intervention (ISEI) in partnership with the Association of University Centers on Disabilities (AUCD).

2. Understanding New Part C Regulations: Side-by-Side Comparison
http://www.cec.sped.org/Content/NavigationMenu/PolicyAdvocacy/IDEAResources/Celebrating_25_Years_of_Early_Childhood_Programs/PartCRegsSideBySideFULL.pdf
To help special educators and early interventionists in their monumental task of implementing the updated regulations, the Council for Exceptional Children (CEC), its Division for Early Childhood (DEC) and the IDEA Infant Toddler Coordinators Association (ITCA) have released a side-by-side comparison of the 2011 final Part C regulations, published on Sept. 28, to Part C regulations from 1999.

Education
3. Characteristics of States’ Alternate Assessments Based on Modified Academic Achievement Standards in 2010-2011
http://www.cehd.umn.edu/NCEO/OnlinePubs/Synthesis85/default.htm
In 2007, federal regulations introduced another assessment option for students with disabilities—the alternate assessment based on modified academic achievement standards (AA-MAS). The Institute on Community Integration's National Center on Educational Outcomes (NCEO) has been tracking the characteristics of states' AA-MAS since 2007 and reports their findings here.

4. 2009 State Policies on Assessment Participation and Accommodations for Students with Disabilities
http://www.cehd.umn.edu/NCEO/OnlinePubs/Synthesis83/default.htm
The National Center on Educational Outcomes (NCEO) has been tracking and analyzing state policies on assessment participation and accommodations since 1992. The purpose of the analysis reported in this publication is to update information on these policies that was last reported by NCEO in 2008 (based on 2007 data). Policies from all 50 states and the District of Columbia are included in the report. In addition, current state accommodations policies were analyzed by grade and content area.

Fundraising
5. Million Dollar List
http://www.milliondollarlist.org/
Compiled by the Center on Philanthropy at Indiana University, this list includes data on more than 60,000 gifts of $1 million and up since 2000 from individuals, foundations, and corporations. Gift information can be searched based on geography, dollar amount, type of charity, individual donor, organization name or other customizable criteria. Searches can also reveal trends and look for potential collaborations that help leverage giving for the greatest impact.

Health
6. Achieving Health Weight by Reducing Obesity and Improving Well-being for People with Disabilities Across the Life Course
http://www.cdc.gov/ncbddd/disabilityandhealth/disabilityandobesity.html
This report, from the CDC’s Division of Human Development and Disability, examines a number of challenges and barriers to weight management specific to people with disabilities, and explores opportunities to enhance research, programs, education, and tools. Specifically, the report recognizes the need for publicly funded programs to include people with disabilities in mainstream, and sometimes targeted, health programs and health services that help reduce obesity.

Medicaid and Medicare
7. Rebalancing Long-Term Services and Supports: Progress to Date and a Research Agenda for the Future
http://www.hilltopinstitute.org/publications/RebalancingLTSS-ProgressToDateAndResearchAgendaForFuture-June2011.pdf
This report, from the Hilltop Institute at the University of Maryland Baltimore County (UMBC), discusses progress in rebalancing Medicaid LTSS spending, how the Affordable Care Act (ACA) can support states’ continued efforts to rebalance LTSS, and opportunities for future research to support continued system transformation.

8. Examining Medicaid Managed Long-Term Service and Support Programs: Key Issues to Consider
http://www.kff.org/medicaid/upload/8243.pdf
There is increased interest among states in operating Medicaid managed long-term services and support (MLTSS) programs rather than paying for long-term services and supports (LTSS) on a fee-for-service basis, as has been the general practice. This Kaiser Family Foundation issue brief examines key issues for states to consider if they are contemplating a shift to covering new populations and LTSS benefits through capitated payments to traditional risk-based managed care organizations (MCOs). It draws on current literature as well as discussions conducted during the spring and summer of 2011 with a variety of respondents – federal and state officials, researchers, representatives from managed care organizations, service providers, and consumer advocates.

9. Medicaid and the Budget Control Act: What Options Will Be Considered?
http://www.kff.org/medicaid/upload/8238.pdf
This Issue Brief, from the Kaiser Family Foundation, examines the potential Medicaid changes as a result of recent budget negotiations. It will examine the options available to Joint Select Committee, also known as the “Super Committee”, created by the 2011 Budget Control Act, as well as the Obama Administration’s Plan for Economic Growth and Deficit Reduction, which was released in September.

AUCDigest submissions

The May issue of the AUCDigest will be developed in the upcoming week. I invite your Center/Program to submit any newsworthy items to be included in this issue. Please share any regional or national events, that your Center/Program is sponsoring or co-sponsoring with the Network. In addition, available positions, new research developments and faculty/staff awards are also welcomed.The deadline for submissions is Wednesday, May 13. If you have any questions, please do not hesitate to contact me.

View the April issue of the AUCDigest

Submit articles to the AUCDigest here

The AUCDigest archive page may be viewed by clicking the link in this post's title.