March 12, 2025
| | | | Announcements | | Sandy Root-Elledge, the Interim Executive Director of the Association of University Centers on Disabilities, announced this week that Lillie Heigl, Esq., MPA, has been hired as AUCD's Senior Policy Advisor. Lillie will serve in this key leadership role to coordinate and conduct activities that educate the AUCD Network and our diverse stakeholders on our work, mission, and key priorities. She will also provide analysis of the impact of federal and state legislation and regulatory changes for our members as well as persons with disabilities and their families. | In this year’s Annual Report, we share stories of the AUCD Network and showcase the impact of their work across the U.S. and its territories.
2024 emphasized the strength of the AUCD Network when working together to advance research, training, education, and service for and with people with disabilities. By focusing on the core of what makes the AUCD Network succeed, we celebrate the unity that drives the advancements of every researcher, practitioner, teacher, student, community advocate, and supporter. | Thursday, March 20, 2025, 12:00 PM - 1:00 PM ET
AUCD’s Community Education and Dissemination Council (CEDC) invites you to a monthly Coffee Chat, held on the third Thursday of each month, offering an open and informal setting for all—no membership required. This is a wonderful opportunity to connect, share ideas, and learn from one another. Join us for an engaging conversation about how organizations and professionals can effectively use social media to strengthen their digital presence. | The AUCD Leadership Academy is a one-year program designed for current and emerging leaders from the disability community. The goal is to develop and improve leadership skills and teach people how to improve systems of support and services. The AUCD Leadership Academy will be in Atlanta, GA from Sunday, June 1 to Friday, June 6. The application deadline has been extended to 5 PM ET on Tuesday, April 1. Apply today! | Columbia University is inviting adults with disabilities (deaf, hard of hearing, blind or low vision, or with mobility disabilities) to participate in an online survey about their views on Precision Medicine Research, which examines genetics, environment, and lifestyle to improve health outcomes. The study, funded by NIH, takes up to 45 minutes to complete and can be done on a tablet, computer, or smartphone. Accommodations are available, and the survey will soon be offered in Spanish and ASL. Participants will receive a $30 gift card. Click here to participate in the study. For more information or questions, contact Dr. Maya Sabatello at trust-study@cumc.columbia.edu.
| The AUCD Employment page focuses on job and fellowship opportunities at AUCD, within our Network, and at organizations affiliated with our Network. The Human Development Institute (HDI) seeks an Executive Director in Lexington, KY. Please complete this form if you would like your job posted. Positions will remain on the website for 90 days.
| | Funding | | Application Deadline: April 1, 2025 Award Ceiling: $50,000 The Brady Education Foundation seeks to improve educational outcomes for children, including those living in low-income communities, and pursues its mission by promoting collaboration among researchers, educators, and other stakeholders. The foundation invites applications for research project (RP) proposals and existing program evaluation (EPE) proposals. The primary aim of EPE proposals must concern what works: evaluating the effectiveness of programs designed to promote positive cognitive and/or achievement outcomes for children (birth through 18 years). | Letters of Intent Deadline: April 1, 2025 Award Ceiling: $75,000 The FamilieSCN2A Foundation is dedicated to finding effective treatments and ultimately a cure for SCN2A-related epilepsy and autism disorders. The foundation invites applications for its Accelerator Program, which is designed to address commercial funding gaps by de-risking therapeutic development for SCN2A-related disorders. The investment program invests funding in for-profit companies on a competitive basis for drug development projects that show promise for subsequent commercial development. Grants will be awarded in support of innovative projects that will advance development of therapeutic treatments for SCN2A-related disorders (SRDs). The most promising projects for subsequent commercial development will be prioritized for funding. | Letters of Intent Deadline: April 1, 2025 Award Ceiling: $75,000 The FamilieSCN2A Foundation hopes to accelerate the development of therapeutic treatments and disease-modifying advancements for those living with changes in the SCN2A gene. This grant program is designed to facilitate preliminary investigations that will potentially lay the groundwork for subsequent grants from the government, industry, or other funding sources, including the FamilieSCN2A Foundation. The FamilieSCN2A Foundation is interested in supporting research that advances understanding of the cellular, molecular, genetic, and systems-level mechanisms of SCN2A-related disorders. However, priority will be given to innovative projects which could potentially lead to therapeutic treatments or a cure for those with SCN2A-related disorders. | Application Deadline: April 3, 2025
Award Ceiling: $20,000 The American Psychological Foundation (APA) invites applications for its Visionary Grants program. The program aims to seed innovation in the field through supporting research, education, and intervention projects and programs that use psychology to solve social problems in the following priority areas: applying psychology to vulnerable, at-risk populations (e.g., serious mental illness, returning military, those who are incarcerated or economically disadvantaged); preventing violence; understanding the connection between behavior and health (e.g., wellness, diabetes, obesity); and understanding and eliminating stigma and prejudice (e.g., race, gender, sexual orientation, religion, age, disability, and socioeconomic status). Additionally, APA has requested funds from their fund at the Tides Foundation to support a 2025 Visionary Grant that is focused on furthering racial equity.
| Application Deadline: September 3, 2025 Award Ceiling: TBD The Patient-Centered Outcomes Research Institute (PCORI) intends to issue a Topical PCORI Funding Announcement (PFA) on April 1, 2025, seeking to fund high-quality, patient-centered comparative clinical effectiveness research (CER) projects that focus on people with intellectual and developmental disabilities (IDDs). This preannouncement provides potential applicants additional time to identify collaborators; obtain patient and stakeholder input on potential studies; and develop responsive, high-quality proposals. | | Resources | | The employment rate for people with disabilities saw a slight dip in February but continued to fluctuate around a steady plateau of approximately 37.5%. While these dips can trigger speculation about broader policy implications, nTIDE experts cautioned that it is premature to attribute changes to recent shifts in federal employment policies. The employment-to-population ratio for people with disabilities remained stable. nTIDE is issued by Kessler Foundation and the University of New Hampshire’s Institute on Disability. | How does a person’s disability severity affect their risk of intimate partner violence (IPV)? This study in the Disability & Health Journal looks at the risk of IPV among mothers. It focuses on rural Pakistan as a case study. This plain language summary is part of a new series from AAHD sharing highlights from the Disability and Health Journal. | The Center for Democracy & Technology (CDT) and the American Association of People with Disabilities (AAPD) have expanded their partnership to raise awareness and develop policy solutions that benefit people with disabilities in their interactions with technology, particularly AI and algorithmic systems. This report, released alongside a shorter brief, furthers this critical work by offering specific recommendations for disabled individuals, disability rights and justice advocates, government agencies, and private-sector AI practitioners. These recommendations aim to ensure that people with disabilities can fully enjoy the benefits of AI and algorithmic technologies while being protected from potential risks. | | Weekly news items may be submitted for consideration via the AUCD Promotion Request Form.
Submissions are due on Monday each week. |
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This weekly newsletter is in part supported by the Administration for Community Living (ACL) through a technical assistance contract for the URC and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred. |
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