Wednesday, February 19, 2025

AUCD Weekly Newsletter

 

AUCD Weekly - Updates every Wednesday for the AUCD Network.

February 19, 2025



 Announcements


AMCHP 2025 Annual Conference

March 15-18, 2025, Washington, D.C.
The AMCHP Annual Conference is one of the largest gatherings of maternal and child health (MCH) professionals in the United States. Every year, the AMCHP Conference aims to highlight MCH programs’ impact at all levels on women, children, and families and to provide participants with tools and resources to develop, enhance, and sustain vital MCH programs and services.

2025 Annual Disability Statistics Conference

Wednesday March 19, 2025, Online and In-person
The 2025 Annual Disability Statistics Conference, hosted by the Center for Research on Disability, will take place on Wednesday, March 19, 2025, providing a platform to present and discuss the latest data on disability demographics, with a focus on making disability statistics easily accessible for individuals working on disability-related legislation and initiatives. Attendees can participate in-person or virtually, with live captioning and ASL interpretation available.

Expanding the Public Health Workforce: Understanding Health Disparities of Oregonians with IDD using Medicaid Claims Data Webinar

Tuesday, March 25, 2025, 4:00 - 5:00 PM ET
Join the Oregon Health & Science University UCEDD for a webinar focused on state-level Medicaid data related to health disparities impacting the intellectual and developmental disability (IDD) community. The UCEDD will provide an overview of their research, highlighting key findings and actionable recommendations. They will also present their comprehensive report, including an accessible language version, and demonstrate an interactive data dashboard for exploring the findings and trends. 

Disability Policy Seminar

April 7-10, 2025, Washington, D.C.
The Disability Policy Seminar is the premier opportunity to cultivate support on Capitol Hill and amplify the concerns of people with intellectual and developmental disabilities (IDD) before Congress. DPS brings together passionate advocates, including people with disabilities, experts, and professionals in the field, to learn about key issues and advance the grassroots movement for people with IDD.

The Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities

April 7-10, 2025, San Diego, CA
The Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities is one of the premier conferences for behavioral scientists conducting research on intellectual and developmental disabilities. It has a rich history that started in Gatlinburg, Tennessee in 1967, and the name of its original location remained. Each year, Gatlinburg Conference brings together scientists from around the world to gather to discuss research and collaborations in the field. The Gatlinburg Conference is hosted by University of Kansas Life Span Institute and AUCD.

Employment Opportunities Across the Network

The AUCD Employment page focuses on job and fellowship opportunities at AUCD, within our Network, and at organizations affiliated with our Network. The UC Davis MIND Institute, and the School of Medicine is searching for an Associate/Full Professor in Sacramento, CA. Please complete this form if you would like your job posted. Positions will remain on the website for 90 days.


 Funding


Register for an Applicant Town Hall to Explore Funding Opportunities

PCORI is hosting several virtual applicant town halls in April for prospective applicants to learn more about the Research PCORI Funding Announcements (PFAs) under Cycle 2 2025, which will open April 1. Attendees will hear from PCORI staff about the PFAs and gain insights on submitting responsive Letters of Intent and applications for high-quality patient-centered comparative clinical effectiveness research and related projects. These research funding opportunities will open April 1 and Letters of Intent will be due May 13, 2025, by 5 PM ET.

Organization for Autism Research (OAR), Applied Research Competition

Application Deadline: March 17, 2025 (Letters of Intent)

Award Ceiling: $50,000

The Organization for Autism Research (OAR) is led by parents and grandparents of autistic children and adults and aims to use science to address the social, educational, and treatment concerns of autistic people, parents, autism professionals, and caregivers. OAR invites applications for its annual Applied Research Competition, through which the organization aims to promote evidence-based practices based on research in the following areas: the analysis, evaluation, or comparison of current models of assessment, intervention, or systems of service delivery, including policy analysis; applied aspects of educational, behavioral, or social/communicative intervention; effective intervention across the lifespan for individuals considered severely affected by ASD; issues affecting adults with autism such as continuing education, employment, residential supports, sexuality instruction, quality-of-life determinants, and services and supports for older autistic individuals; and issues related to family support, social and community integration, assessment and intervention with challenging behavior, and the use of technology in support of learners with ASD.

Robert Wood Johnson Foundation, Local Data for Equitable Communities

Application Deadline: March 18, 2025

Award Ceiling: $50,000

The Robert Wood Johnson Foundation has issued a Local Data for Equitable Communities call for proposals. This call for proposals invites nonprofit organizations in the United States to apply for a grant to collect, analyze, and use data to address inequities in the physical, economic, and social conditions of a place. Improving these conditions is key to achieving health equity where health is no longer a privilege, but a right. Structural racism is one of the leading barriers that result in inequities in conditions within and across communities. The Urban Institute, as the national coordinating center for this program, is collaborating with RWJF on program design, grantee support, and communications.

Robert Wood Johnson Foundation, Exploring Equitable Futures

Application Deadline: October 15, 2025

Award Ceiling: TBD

The Robert Wood Johnson Foundation has issued an Exploring Equitable Futures call for proposals (COP). The purpose of this COP is to support projects that seed new and unconventional ideas that could radically advance health equity for generations to come. We aim to fund projects that: Explore the future by researching and experimenting with ideas that are ahead of the curve or at the edge of our collective imagination; Shine a light on the emerging trends and forces that are shaping our future for better or worse—and suggest ways to navigate them to mitigate harm and advance health equity; Dream big and challenge conventional wisdom to surface possibilities and uncover new paths to dismantle structural racism and build a more equitable future.


 Resources


Rates of ADHD Remain High into Adulthood Among Patients with Autism

In a large study of more than 3.5 million adults, IDDRC Network researchers from Children’s Hospital of Philadelphia (CHOP), Drexel University, and George Washington University (GWU) found that attention deficit hyperactivity disorder (ADHD) was highly elevated among adults diagnosed with autism spectrum disorder. Additionally, co-occurring ADHD was associated with worse health outcomes, though patients who received medications for ADHD had better outcomes. The findings were published by the journal "JAMA Network Open."

Wayne State’s Michigan Developmental Disabilities Institute (MI-DDI) Featured on "Equal Dose" Podcast Presented by WebsEdge/Medicine

The "Equal Dose" podcast, by WebsEdge/Medicine, recently featured Michigan Development Disabilities Institute (MI-DDI) Director Dr. Sharon Milberger and Disability Advocate and frequent MI-DDI collaborator Jaime Junior in an episode discussing the relationship between disability, health equity, and systemic ableism.

Demonstrating Progress and Potential: Lessons Learned from Federally Funded Inclusive Postsecondary Education in the United States

This article in the "British Journal of Learning Disabilities" presents findings from 13 years of data on postsecondary education programs for students with intellectual disabilities in the U.S. Since 2010, the number of such students in higher education has grown significantly, thanks to federal legislation and funding. Over 340 institutions now offer programs for these students, with 134 receiving federal funding through the TPSID model demonstration program. The Think College NCC has collected data on nearly 5000 students, identifying trends in characteristics, university access, employment, and outcomes. The study shows growth in inclusive course access, employment, credential attainment, and financial aid use, highlighting the impact of TPSID on program development and quality. The findings have implications for practice, research, and policy both in the U.S. and globally.

Partnering for Research at Your Center for Independent Living: Tips from Your PEERS

RTC: Rural researchers present advice on collaborative and participatory research projects with Centers for Independent Living (CILs) based on work with CIL partners. The guide includes feedback and priorities from CIL staff on the most effective conditions to address when entering into a research partnership.


Past Issues

Weekly news items may be submitted for consideration via the AUCD Promotion Request Form.
Submissions are due on Monday each week.


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This weekly newsletter is in part supported by the Administration for Community Living (ACL) through a technical assistance contract for the URC and the Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.

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