Have You Registered Yet?
Advocacy Day for Access & Independence
May 8th, 2014 | 9:00AM-12:30PM | SC State House
Have you registered for Advocacy Day for Access & Independence?
If not, register today and receive a FREE Advocacy Day for Access & Independence t-shirt!
When: Thursday, May 8th, 2014 9:00AM – 12:30PM
Where: South Carolina State House
Who: People with disabilities and allies/advocates
What: Advocacy Day for Access and Independence is the first independence oriented advocacy day for people with disabilities in South Carolina.
It is a day to...
To show disability pride as we use our voices to unlock the barriers to independence.
To unite people with all types of disabilities and raise awareness of the barriers that are common in our State.
To promote disability rights.
How: Rally with great speakers from across the state, including Governor Nikki Haley and Columbia Mayor Steve Benjamin. Click here to view the full agenda and register.
This event was planned in collaboration with the following entities:
Able South Carolina
Association of Programs for Rural Independent Living
Brain Injury Association of South Carolina
Columbia Mayor’s Committee On Employment of People with Disabilities
disAbility Resource Center
Family Connection of SC
SC Interagency Office of Disability and Health
NAMI Mid-Carolina
National Federation of the Blind of SC
Palmetto Animal Assisted Life Services
Protection & Advocacy for People with Disabilities
SC Assistive Technology Program
SC Association of the Deaf
SC Commission for the Blind
SC Developmental Disabilities Council
SC Statewide Independent Living Council
SC Vocational Rehabilitation Department
The COMET
The SC Client Assistance Program
University of South Carolina School of Medicine
Walton Options for Independent Living
Copyright © 2014 Able South Carolina, All rights reserved.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this linkLabels: Able South Carolina, advocacy day for access and independence
Internet–Based Study for People
with Spinal Cord Injury
Who Use Intermittent Urinary Catheterization
Researchers at the University of Rochester School of Nursing are conducting a study looking at the feasibility of an Internet-based intervention to improve self-management and outcomes related to intermittent catheterization in people with spinal cord injury.
Participation in this research does not require travel as it is entirely Internet and telephone-based. The study involves three phone calls with a study nurse, two online surveys, and an online discussion forum.
Eligibility:
1. Adults age 18 and over
2. Spinal cord injury (any level)
3. Currently using an intermittent urinary catheter
4. Expect to use intermittent catheterization for at least 9 months
You also need phone and computer/Internet access during the three month study period. We will enroll 30 participants who will receive a total of $50 for study completion.
Please click on the link to go to the study website for more information about the study and how to contact the study manager: http://son.rochester.edu/InternetCICSelf-Management/index.html
Copyright © 2014, South Carolina Spinal Cord Injury Association All rights reserved.
Our mailing address is:
136 Stonemark Lane, Suite 100
Columbia, SC 29210
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: Research, Spinal Cord Injuries
Strides for Autism
We would like to invite you to join us at this exciting event as an Exhibitor in our Resource Fair. Rates are $100 per event for non-profits and government agencies, and $150 for businesses.
Exhibitors to date include:
Bright Start, Butterfly Effects, Camp Talk, Carolina Center for Counseling & Behavioral Interventions, Davis Orthodontics,
Early Autism Project, First Priority Medical Transport, Greenville Health System Autism Wonders Program, Key Changes Music Therapy,
Palmetto Autism Interventions, Pine Grove, Springbrook Behavioral Health System
We have two goals with our Strides events:
To raise the awareness of autism spectrum disorders. The better understanding our society has about autism, the better the quality of life for those on the spectrum will be.
To raise funds for the South Carolina Autism Society. This fundraiser is to help ensure SCAS can meet the needs of families through:
Service Coordination: Our Service Coordinators work to ensure that the individuals on their caseloads receive the best services to which they are entitled.
Parent School Partnership: Our Parent Mentors work to assist children with autism in reaching their maximum potential in the classroom through appropriate services and accommodations.
Information & Referral. We aim to help provide accurate and timely information to families and professionals about autism spectrum disorders and services available throughout the state.
Training. We work in partnership with the South Carolina Department of Education to provide training to families and professionals about various strategies and supports.
Advocacy. We work with policy makers throughout the state to help improve the services available to individuals with autism spectrum disorders.
Events. In addition to our Strides for Autism events, we regularly partner with other community organizations to provide respite and family activities statewide.
SCAS is the only statewide agency advocating for children and adults with autism spectrum disorders and their families, while also providing assistance and resources. SCAS promotes, educates and raises awareness that one in every 88 births in the U.S. is a child with autism, and provides support for South Carolina-based research and development. Most importantly, SCAS works to ensure that the almost 54,000 individuals with an autism spectrum disorder (ASD) living in South Carolina have opportunities to achieve a quality of life comparable to their peers.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Using Tablets to Help Kids With Autism
(CNN) -- Two 5-year-old boys, one with autism, were having some friendly playtime when they had a communication breakdown. One boy didn't respond to the other and walked away. The ignored kid got frustrated and pushed over a small staircase, causing the first boy to fall.
Their speech therapist, Jordan Sadler, decided to address the issue by recreating it in an iPad app called Puppet Pals. She restaged the scenario as a movie, even taking photos of the room for the background and of the kids for the characters. Using the app to show an instant replay of the scuffle, Sadler and the kids identified what went wrong and then recreated the scene, this time making better decisions.
Creating custom stories to help kids learn communication skills or understand complex situations is just one of the ways parents, therapists and educators have taken advantage of tablets to work with kids with autism.
Tablets as tools, not miracles
When the iPad made its debut in 2010, it was hailed as something of a miracle device and there was a rush among parents of kids with autism to get the $499 gadget.
Four years later, tablets still play a big role in the autism community. But the expectations for the technology have come down to earth a bit. Now app creators, autism educators and parents are exploring new ways of using tablets and apps to work with the 1 in 68 kids in the U.S. with autism.
Sadler gives iPad workshops all over the country, teaching people about the most effective ways to use the device. She tries to move parents away from using mobile devices as a reward, letting children just play games or watch YouTube videos. She encourages parents to seek out dynamic apps that can help with the core challenges of autism while also being fun.
"It's really important to learn and improve social communication skills," said Sadler. "But it has to be something that grabs them."
Mixing laughter and lessons
Flummox and Friends is a hybrid of an app and a TV show for kids on the autism spectrum that seeks to be more than just educational or just entertaining. Released on the iPad in April, it's a live-action comedy show that aims to educate children by being entertaining, not condescending.
The main characters are inventors and their friends, and they're written so children with autism can relate to them. They find themselves in tricky situations that they need to invent their way out of. The idea is to teach social and emotional skills through funny plots.
Using pop-up prompts, the app sets up situations that kids with autism may have trouble with, such as anticipating someone else's perspective, managing someone else's emotions, and being flexible instead of being rigid. A scene might show some of the ways communications can break down, then walk the viewer through ways to fix the problem.
"Typically, how this stuff has been taught is giving kids scripts saying, 'Say this when you meet someone,'" said the show's creator, Christa Dahlstrom. "It's kind of suggesting (they) aren't doing this right and need to be normal."
Flummox and Friends is geared more toward acceptance, and Dahlstrom is interested in working with the kids whose minds are wired differently, not correcting them. The app reflects a larger shift in the community away from "fixing" autism to accepting and embracing it.
"(Technology) can make a profound difference to the kids with autism, but it's not like it's a cure for it," Dahlstrom said. "You've got to stop thinking of this as a parental problem."
Dahlstrom, who has worked in learning design her whole career, has observed firsthand how her own 10-year-old son with autism learns and what he struggles with. She noticed that he tends to open up when people are laughing, having fun and quoting TV shows. After realizing comedy could be a great tool for reaching children with autism, she started a Kickstarter campaign to raise money for the first Flummox and Friends episode.
The show is meant to appeal to 6- to 12-year-olds, which is a slightly older audience than most autism apps.
"In terms of apps for kids with autism and special needs, there's a lot of stuff for preschoolers. There's not as much when you start going up to an older audience, especially when it comes to social skills," she said.
The multi-purpose rectangle
Tablets have replaced a number of other tools for parents and educators, including handmade visual aids, expensive communication devices and, increasingly, TVs.
The gadgets are a more affordable alternative to the dedicated augmented-communication devices some nonverbal kids use to communicate. Those can cost between $6,000 and $8,000, but with a tablet, kids who aren't speaking can use voice-output apps instead.
Teachers and therapists no longer have to slog through the mundane task of making visual tools. Making cue cards is a common technique when working with nonverbal children, but it requires taking photos, uploading them to computers, printing them out, laminating them, adding some velcro and sticking them on boards. The addition of a camera in the second version made the process even easier.
"It really sort of took us out of the dark ages in terms of how quickly we could make visual supports for the kids and how quickly kids could access what they wanted," said Sadler.
One thing that makes Flummox and Friends unusual is that it is a fully scripted TV show delivered as an app.
Tablets give kids much more control than they have with a TV. They can hold a tablet in their hands and have a more intimate experience with a story or game. Watching clips and shows repeatedly is common among children with autism, and with tablets they can rewatch favorite segments over and over.
"We've really started to see children's media migrate from the TV screen to the iPad," said Dahlstrom.
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