The Spectrum of Developmental Disabilities XXXVI: Intellectual Disability: At the Precipice
Monday, March 17, 2014- Wednesday, March 19, 2014Location: Johns Hopkins University, Baltimore, MD
http://www.hopkinscme.edu/CourseDetail.aspx/80032518
Description
Intellectual disability is a chronic, life-long disorder that has major public health implications. Since the 1970s people with intellectual disability have entered the mainstream of society and served in community programs. Intellectual disability and developmental delay is the second most common reason for provision of special education services in the US. The breadth of the issues relating to intellectual disability are well suited for the interdisciplinary focus of the Spectrum of Developmental Disabilities and its targeted audience.
Objectives
After attending this activity, the participant will demonstrate the ability to:
- List three current challenges confronting people with intellectual disability.
- Choose appropriate genetic testing to evaluate the child who presents with intellectual disability.
- Discuss the rationale for targeted pharmacotherapy of intellectual disability.
- Define and discuss the need for adaptive behavior in the diagnosis of intellectual disability.
- Analyze the benefits and challenges associated with inclusive education for intellectual disability.
- Name three epileptic syndromes associated with intellectual disability and list their clinical features and identify the preferred agents for their treatment.
- Evaluate current intervention strategies in light of lessons learned from older people with intellectual disability.
Featured Speakers
Among the guest speakers for this interdisciplinary conference will be:
- Timothy Shriver, PhD
- Gloria Krahn, PhD, MPH
- Leonard Abbeduto, PhD
- Pasquale Accardo, MD
- Maureen Durkin, PhD, DrPh
- Stephen Greenspan, PhD
- Ruth Luckasson, JD
- Scott Myers, MD
- Daniel Reschly, PhD
- Brian Rogers, MD
- Nancy Roizen, MD
- Karrie Shogren, PhD
- Gary Siperstein, PhD
- Roger Stevenson, MD
- Michael Wehmeyer, PhD
- Karen Wills, PhD, LP, ABP
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: AUCD, aucd conference
March 13, 2014 2:00pm CST - 60 minutes
Title: AAC in the Classroom for Students with Significant Disabilities: Implementation and Data Collection on Low Tech AAC and Apps
Description: During the second session in this AAC implementation series, Kelly will teach two processes of data collection to go along with the types of classroom based communication activities that are often chosen for students with significant disabilities, especially those that were introduced during the first session. If you were not able to join us live for Session 1, you are encouraged to go back to AbleNet University and preview the first session prior to this session. Simple charting is critical if data is to be collected live during a busy activity. Video is often used to catch subtlety of movement, eye gaze and other non-traditional communication attempts for more complex charting. Data collection techniques will look at measurement of student progress as well as staff implementation of strategies. Participants will be encouraged to start collecting data on an activity so that Session 3 analysis techniques will be immediately applicable.
Category: Assistive Technology
Presenter: Kelly Fonner
Cost: FREE
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: ablenet, Webinar
Don't miss this Expo session!
Apps and Tools for People with Memory Challenges
There are a number of apps on the market that target memory management. The task of selecting just the right app can seem quite overwhelming. This presentation will help you navigate the app maze, identifying the right memory app for your clients, and use effective learning strategies to teach your clients how to integrate apps into their daily routines. Focus on people with brain injury, stroke, older adults and people with dementia.Presented by LeAnne Alewine, Roger C. Peace CenterLeAnne Alewine, pictured to the left, is a Level III speech-language pathologist in the Outpatient Brain Injury and Young Stroke Program at Roger C. Peace Rehabilitation Center-Downtown. She has 14 years of clinical experience in the areas of pediatric and adult outpatient rehabilitation. She holds a Certificate of Clinical Competence (CCC) from the American Speech Language Hearing Association (ASHA) and is trained as a Certified Brain Injury Specialist (CBIS). She obtained her B.A. in English from Furman University and her M.A. in Communication Disorders from the University of Tennessee. Her current duties include assessment and treatment of patients with brain injury, program development, and team training.Help spread the word by viewing this email in your browser, copying and pasting the actual url for this newsletter in your organization's or personal Facebook status.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: sc assistive technology expo
The SC Disability Voting Coalition is hosting a trial of a new Election Systems & Software Voting Machine!
When: Monday, March 10th
Who: People with a variety of disabilities
Time: 11am-2pm
People will be given appointments at 15 intervals and open slots are still available.
Where: Protection & Advocacy for People with Disabilities, Inc., 3710 Landmark Drive, Suite 208, Columbia, SC, 29204
Afterwards participants will be asked to give feedback on the accessibility of the voting machine to Dr. Juan Gilbert and his team from Clemson.
If you have questions, contact:
Maggie Knowles
PAVA & Development Coordinator
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: Protection and advocacy for people with disabilities, sc disability voting coalition, voting rights
New Name, New Leadership, (Re)Newed Focus! Council on Technology and Innovation in Interdisciplinary Services (CTIIS)
February 11, 2014
ctiis__jody_cr_web200w.jpg "Jody Pirtle, CTIIS Chair, at the 2013 CTIIS meeting.") |
| Jody Pirtle, CTIIS Chair, at the 2013 CTIIS meeting. |
|
Greetings and Happy New Year! The Council on Interdisciplinary Services (CIS) has recently changed its name to the Council on Technology and Innovation in Interdisciplinary Services (CTIIS). What is exciting about the name change is a more targeted emphasis ontechnology and innovation in interdisciplinary services. We hope that this new emphasis will re-energize this group, get better involvement from the network programs, and help to further spread information and promising practices throughout the AUCD network about the use of technology and other innovative solutions in the service and support of people with IDD and their families.
Please join the
CTIIS listserve to stay informed about the
CTIIS blog and as well as upcoming webinars.
Along with the name change the CTIIS also had a leadership change. The new CTIISLeadership is comprised of:
We invite you to browse the Council webpage
here.
About the CTIIS
The mission of the CTIIS is to identify the mutual needs and issues of UCEDDs, LENDs and IDDRCs providing services and promote collaborative actions across the network in order to improve the quality and effectiveness of service delivery. Services may include a variety of direct services, supports, and assistance for individuals with disabilities and/or other related disorders or special health care needs and their families. Services may be provided by professionals, paraprofessionals, direct care workers, students, or other personnel. Included in the category of services are both direct clinical services and community-based client consults/contacts.
Meetings
The full CTIIS Council meets once a year in conjunction with the AUCD meeting. The CTIIS Leadership Committee and the Council's other working Committees also meet in person once a year and at least three additional times during the year via conference calls and/or tele-conference.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
March 11, 2014 11:00am CST - 60 minutes
Title: 7 Steps for Structuring Customized Interventions for Children with Autism
Description: Both Educators and families will find this session beneficial!
In this session, you will gain skills in implementing a “Seven Support Steps” framework based on research-based interventions for responding to the complex and diverse needs of children with Autism Spectrum Disorders.
Participants will:
• Gain skills in minimizing the impact of the disability illustrated with student vignettes.
• Learn how to implement the 'Seven Support Steps' framework
1) Understanding Characteristics,
2) Structural Support,
3) Visual Support,
4) Academic Support,
5) Social Support,
6) Self-regulation Support and
7) Crisis Support to advance academic, behavioral and social outcomes for children with ASD.
Category: Assistive Technology
Presenter: Padmaja Sarathy MA, Author and Educational Consultant
Cost: FREE
Learn More or Register Now
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: ablenet, Autism, Webinar
Disability Policy Seminar Orientation For Students, Trainees, and Early Career Professionals
Tuesday, March 11, 2014- Tuesday, March 11, 20143:00 PM EST - 4:00 PM EST
This webinar, presented by Kim Musheno, Director of Public Policy at AUCD, will offer students, trainees and early career professionals an orientation to the policy issues and current legislation one can expect to learn more about at the 2014 Disability Policy Seminar. In addition to this content, attendees will learn the basics of how to meet with Congressional representatives and deliver a unified message about federally funded programs that benefit people with disabilities.
At the 2014 Seminar, hundreds of disability advocates from around the country will gather to discuss a wide range of public policy issues affecting people with disabilities and their families. We expect the following public policy issues will take center stage: Federal Funding, Medicaid and Community Living, Health Care, Social Security, Employment and Education, Combating Autism Act, and Asset Development.
The intended webinar audience is students, trainees, and early career professionals. To learn more about the Disability Policy Seminar please visit:
www.disabilitypolicyseminar.org.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: AUCD, disability policy seminar
Creating Digital Books
March 4, 2014 - 1:00-3:00 p.m.
This workshop is designed to explore various resources used to create digital books. We will focus on keeping it simple so that the audience can leave with a solid understanding of how to utilize photos, audio, and text to create a digital book. There are lots of options for the creation of digital books. In this workshop, we will look at utilizing two of the following three resources in order to create a digital book for a student:
TarHeel Reader, CAST Book Builder, and Power Point Books.
Location:
Lancaster Adult Education Center
610 East Meeting Street
Lancaster, SC 29720
843-661-1815
(The training room will be determined according to dates of training)
To register for a workshop: Contact Valeska Gioia at vgioia@ed.sc.gov
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: accessibility trainings
Upcoming PRO-Parents Workshops
Transitioning Out of Special Education
When: 03/18/2014, 6:00 - 7:00 pm
Where: Family Connection SC, 2712 Middleburg Drive, Columbia SC 29204
Attention Deficit Disorder (ADD&ADHD) Workshop
When: 03/20/2014, 6:00 - 8:00 pm
Where: Beaufort County School Parent/Community reach Centre, Robert Smalls Middle School, 43 W.K alston Road, Room J-1, Beaufort, SC
Transitioning Out of Special Education Workshop
When: 04/10/2014, 6:00 - 8:00 pm
Where: Beaufort County School Parent/Community reach Centre, Robert Smalls Middle School, 43 W.K alston Road, Room J-1, Beaufort, SC
Individualized Education Program (IEP) Workshop
When: 04/16/2014, 11:00 am - 4:00 pm
Where: Lancaster DDSN, 1126 Campcreek Road, Lancaster, SC 29020
To register for any of these workshops please call
1-800-759-4776 or
803-772-5688.
To access the CDR Library catalog, please click on this link
Labels: proparents, Workshops
SC Assitive Technology Expo 2014
Free and open to the public! No preregistration required!
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Executive Order Increases Federal Contractor Minimum Wage, Includes People with Disabilities
February 12, 2014
Andrew J. Imparato, JDExecutive Directoraimparato@aucd.orgKim E. MushenoDirector of Legislative Affairs301-588-8252kmusheno@aucd.org
The White House announced that President Barack Obama will sign an Executive Order raising the minimum wage to $10.10 for all future federal contract workers, including workers with disabilities. Under the current law, workers with disabilities may be paid significantly less than the wage paid to workers without disabilities doing the same job. This Executive Order, which covers all new federal contracts, will end that practice among contractors beginning in 2015.
AUCD applauds the President for increasing wages for hardworking Americans, and especially for including people with disabilities in his Executive Order. "By ensuring that people with disabilities receive equal pay for equal work, the President is allowing individuals to secure competitive, integrated employment," said Andy Imparato, Executive Director of the Association of University Centers on Disabilities (AUCD). "AUCD believes that this new law will assure equality and opportunity for all and eliminate any policies of discrimination on the basis of disability. We continue to urge Congress to take further action and increase employment opportunities for all by passing the Senate bill to reauthorize the Workforce Investment Act."
Learn more information about the Executive Order on AUCD's website
here or on the White House page
here.
About AUCD
The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Through its members, AUCD is a resource for local, state, national, and international agencies, organizations, and policy makers concerned about people living with developmental and other disabilities and their families. AUCD Network members consist of 67 University Centers for Excellence in Developmental Disabilities (UCEDD), 43 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs, and 15 Intellectual and Developmental Disability Research Centers (IDDRC). For more information and directory of University Centers, see
www.aucd.org.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Major Step Forward in Improving Safety of Children in Schools with Legislation to Restrict the Use of Restraints and Seclusion
Andrew J. Imparato, JDExecutive Directoraimparato@aucd.orgKim E. MushenoDirector of Legislative Affairs301-588-8252kmusheno@aucd.org
AUCD applauds Senator Tom Harkin who announced that he will introduce legislation today to reduce the use of restraints and seclusion in schools. Representative George Miller (D-CA) introduced a similar bill by the same name last July.
There is an urgent need for Federal protection, an allocation of resources and assistance to States to develop plans to reduce the use of these dangerous techniques. Currently, no federal guidelines exist regarding the use of restraints and seclusion. Risk of injury and harm is significantly increased when seclusion and restraints are implemented by staff who are not sufficiently trained.
"School personnel need training in the use of evidence-based techniques in crisis reduction and de-escalation and the use of Positive Behavioral Intervention and Supports," stated Dan Crimmins, PhD, Director of the Center for Leadership in Disability at Georgia State University (a Georgia UCEDD), who
testified at a Senate hearing on the issue in 2012. "Research by many of our University Centers has shown Positive Behavioral Supports as an effective intervention for children with disruptive or challenging behaviors across a broad age range and spectrum of behaviors."
Evidence shows a disproportionate use of these techniques on students with disabilities, violating their right to nondiscrimination in accessing education. A majority of problem behaviors that are used to justify seclusion and restraint could be prevented with early identification and intensive early intervention. The need for seclusion and restraint procedures is, in part, a result of insufficient investment in prevention efforts.
Robert Bacon, MA, Director of the Iowa University Center for Excellence in Developmental Disabilities, stated, "The disability community in Iowa, as well as nationwide, is grateful for Senator Harkin's continuing leadership on issues critical to the wellbeing of children in our schools, especially those children receiving special education. He truly recognizes the importance of evidence-based practices in schools for children with disabilities."
AUCD looks forward to reviewing the bill and working with the House and Senate to do whatever it takes to move this long-overdue legislation quickly through Congress.
About AUCD
The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Through its members, AUCD is a resource for local, state, national, and international agencies, organizations, and policy makers concerned about people living with developmental and other disabilities and their families. AUCD Network members consist of 67 University Centers for Excellence in Developmental Disabilities (UCEDD), 43 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs, and 15 Intellectual and Developmental Disability Research Centers (IDDRC). For more information and directory of University Centers, see
www.aucd.org.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
TICKETS NOW AVAILABLE FOR PURCHASE!
March 22, 2014. South Carolina State Museum. 7PM.
The theme has been set! The space reserved! The entertainment planned!
Don’t miss Columbia’s party of the year: Party with PAALS – UN-Gala 2014: DOG-ARITAVILLE
The 2014 UN-Gala will be at the same location as last year: The South Carolina State Museum. (Yes, we were surprised they wanted us to come back too!) The event will start at 7PM, so don’t be late!
As usual there will be plenty of food, music, fun & games, silent and live auctions and — of course — an open bar with adult beverages.
We have made some major changes this year for event check-in and for auction purchase check-out. We think you will be pleased how much more quickly and smoothly both of these processes will move in 2014.
So start planning your costume now. The possibilities are endless. Just look deep into your closet for your best (i.e. most outlandish beach/Caribbean wear) and put
together your outfit. Or just come as you are. We won’t care. And you’ll have fun no matter how you are dressed!
Music for Dog-aritaville will be provided by Tsunami Wave Riders.
Tickets are $60 per person. However, advance purchase tickets are available through March 8th are only $40 per person.
Special pricing is available for PAALS volunteers. If you are a volunteer and haven’t received your special invitation, let us know and we’ll get you the information.
If you have a regular (not emailed) ticket, you can pre-register for the event HERE. By pre-registering your ticket number, you can avoid the line at event check-in.
Purchase UN-Gala Advance Tickets Using Your Credit Card
To purchase UN-Gala Advance tickets using your credit card, please click
HERE.
(Volunteers should have received a link to a special website for credit card purchases.)
Purchase UN-Gala Advance Tickets Using PayPal
To purchase UN-Gala Tickets using your PayPal account, please click
HERE.
(Volunteers should have received a PayPal discount code in a special email.)
Purchase UN-Gala Advance Tickets by Personal Check
Please mail your check (no cash please) to PAALS, PO Box 25679, Columbia, SC 29224. Write “UN-Gala Tickets” on the memo line of the check. If you are purchasing tickets for persons in addition to yourself, please also include a list of the guest names and email or phone #.
Please Support our UN-Gala Sponsors
If you are interested in being a sponsor of Party with PAALS: An Un-Gala 2014 – DOG-ARITAVILLE, please email Sandra Gaines at
sgaines@paals.org.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: dog-aritaville, fundraiser, PAALS
Get Excited! The Columbia, SC NEDA Walk
The Columbia, SC NEDA Walk is this Saturday, March 1st at 1PM! Take part in NEDAwareness Week and form a community of those supporting friends and family in the fight against eating disorders!
There is still plenty of time to fundraise! If you haven't already you can register online and help NEDA spread the news- send out those last minute fundraising emails and utilize your social media network to help us set a great precedent for next year! Pre-registration closes at 5pm EST on Friday so be sure to register online right away! Unable to attend the walk? You can still make a donation!
Be sure to take a look at our NEDA Walk Participant Packet! It has plenty of useful information about the day of the walk. The packet also has fundraising tips to help you make sure NEDA reaches its goal!
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: NEDA Week
South Carolina Assistive Technology Expo 2014
Free and open to the public! No preregistration required!
Make sure you don't miss 'Apps
offered by Web Browsers such as Chrome, Firefox and Internet Explorer.'
There will be an explanation of the difference between a browser app,
add-on, extension, and plug in. Overview of browser extensions that can enhance
online reading and learning. Overview of extensions for text-to-speech,
speech-to-text, highlighting, saving notes, typing papers, looking up word
definitions, spelling help, screen reading, magnification and more.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: Assistive Technology, Assistive Technology Expo
Autism Spectrum Disorder in Children Who Are Deaf or Hard of Hearing
Wednesday, February 26, 20143:00pm ET - 4:00pm ET
Description:
Funded through the Maternal and Child Health Bureau (MCHB), the LEND Pediatric Audiology Training Program supports 10 LEND programs to increase the didactic content and clinical experience of trainees in pediatric audiology. This webinar will use a combination of information from the literature, retrospective chart review of children with a dual diagnosis and feedback from family and professional focus groups to assist the learner in understanding the unique needs of children who are deaf/hard of hearing(hoh) with an autism spectrum disorder. Red Flags for atypical communication will be presented as well as information about the needs related to communication, functional skills, and integrated care models.
Objectives:
· Describe aspects of atypical development in children with the dual diagnosis
· Identify communication strategies which can help with children with a dual diagnosis
· Gain an understanding of family perspectives regarding the dual diagnosis of hearing loss and autism spectrum disorders
Speakers
Susan Wiley, MD, Dr. Wiley is a LEND Core Faculty Member in Pediatrics and an Adjunct Associate Professor in both the Division of Developmental & Behavioral Pediatrics and a secondary appointment in the Division of Otolaryngology. She is also the Program Director for the Developmental and Behavioral Pediatric Fellowship program at the
Cincinnati Children's Hospital Medical Center. Her primary clinical and research interests are with children who are deaf/hoh with additional disabilities. She collaborates with the Ear and Hearing Center, an interdisciplinary clinical model for children with newly identified hearing loss. Her research has included topics such as cochlear implantation in children who are deaf/blind, the impact of language and cognition on functional outcomes of children who are deaf/hoh, and developmental screening in children who are deaf/hoh.
Michael Scott, Michael Scott is the Auditory Implant Program Coordinator at Cincinnati Children's Hospital. He coordinates the multidisciplinary team including professionals from Speech Pathology, Developmental Pediatrics, Aural Rehabilitation, ENT, Social Work and Audiology. Clinically, he works with children ages birth to 21 years of age providing diagnostic hearing evaluations; management of bone conduction implant systems; and cochlear implants. Research interests include cochlear implants, auditory (re)habilitation, and electrophysiology.
The visual portion of the webinar will be conducted via GoToMeeting and the audio portion via telephone or VoIP (requires microphone and speakers). After registration you will be given a unique web address for viewing the webinar and audio information. This webinar will be recorded and should be available within a week of broadcast.
If you would like closed captioning or need assistance with this webinar, please contact Meaghan at
mmchugh@aucd.org at least 5 days before the event.
To learn more, please click on the above title.
To access the CDR Library catalog, please click on this link
Labels: AUCD, Webinar
