Friday, May 27, 2022

Autism Family Caregiving and Social Security Legislation

Autism Society Public Policy Newsletter Capitol Connection logo

In this issue of Capitol Connection, new legislation related to Autism caregiving and Social Security are discussed as well as links to a Social Security hearing. Also, find information on the new Department of Education summit and proposal to update civil rights protections and much more. Continue to use our newly updated action center to monitor key legislation and send letters to education legislators. 

Read More 

Visit Website



Thursday, May 26, 2022

7 Types of Rest You Need

ABLE SC 7 Types of Rest You Need May is Mental Health Month image

May is Mental Health Month! 

In honor of this awareness month, we’re going to explore 7 types of rest that everyone needs. That’s right! There’s more than just sleep as a type of rest. Let’s explore: 

Important Note: Sometimes we need more than rest. Talking about mental illness or negative mental health can be hard. But it’s important that you do! The National Institutes of Health says nearly 1 in 5 adults experience mental illness. This means mental illness and negative mental health are common problems. Don’t be afraid to reach out for help. Talk to your doctor. 

1. Physical Rest 

Physical rest is passive or active rest of the body. 

  • Passive physical rest activities are things like sleeping and napping 
  • Active physical rest activities are activities that can improve your health and well-being. Activities like: 
    • Yoga
    • Stretching 
    • Massage Therapy 

2. Mental Rest

Mental rest is rest that gives your mind a break from thoughts. People who don’t get enough mental rest can feel like they never get enough sleep! This is because your brain needs a break. 

  • Take short breaks during your day to slow down and take your mind off of your to-do list 
  • Instead of trying to remember, keep a notepad near you to write down important thoughts 

3. Sensory Rest 

Sensory rest is taking time away from bright lights, computer screens, background noise, or multiple conversations. Taking rest away from things that can cause our senses to feel overwhelmed is important! 

  • You can simply close your eyes and take a deep breath to experience sensory rest 
  • Remove overwhelming distractions 
  • Schedule time to “unplug.” This means putting down your phone or turning off your computer 

4. Creative Rest 

Creative rest is taking time away from problem-solving or coming up with new ideas. Creative rest can be very important for people who: 

  • Work in jobs that require them to be creative a lot 
  • Students who have to be creative for school projects 
  • Are having to come up with activities for their friend group 
  • Are having to plan and create meals for their family 

Creative rest allows us to be more creative! 

  • Spending time in beautiful places in nature is a way to have creative rest 
  • Spending time surrounded by art and music is a way to have creative rest 

5. Emotional Rest 

Emotional rest is making space to express your feelings. Emotional rest requires you to be real with others around you. This can look like: 

  • Saying no when someone asks you to do a favor you don’t want to do 
  • Telling people the truth when they ask you “how are you feeling,” even if you are feeling bad 
  • Allowing yourself to feel your feelings 

6. Social Rest 

Social rest is when we take breaks from people who make us tired. This does not always mean taking time away from all people. You can experience social rest by being around people that make you feel good. Social rest can look like: 

  • Taking time away from others to do something just for yourself 
  • Spending time with the people you enjoy most 
  • Turning your camera off during virtual meetings 

7. Spiritual Rest 

Spiritual rest is finding places where you feel like you belong. This can be faith-based or not, or both! Feeling accepted by others and feeling love are important! You can have spiritual rest by: 

  • Finding a community you want to be involved in, and joining 

We need more than sleep to rest! We hope these 7 types of rest can help you feel calmer, happier, and more like yourself. It is important to take care of yourself and get all the kinds of rest you need. 

References: 

  • National Institutes of Health Mental Health Statistics 
  • Ted Ideas: 7 Types of Rest 


Wednesday, May 25, 2022

Register for the Trauma Informed Suicide Prevention Training Today!


SC Communities of Care Trauma Informed Suicide Prevention promo photo

Join us for a FREE & virtual training 
on Trauma Informed Suicide Prevention 
for Adults

SC Communities of Care is a program through SC Department of Mental Health and the Education Development Center that provides trauma informed suicide prevention training for community members who are the initial point of contact when an adult, friend, family member, etc. in their community is experiencing a mental health crisis.

Save the Date:
Friday, June 10 from 8:30 am - 4 pm EST 
via Zoom 

In this training you will receive information on what it means to be trauma informed, identify the difference between suicidal ideation, suicide plan, and feeling suicidal, and how to ensure you are taking care of yourself as a trusted adult in your community!

We will also talk about the prevalence of suicide among individuals with brain injuries.

This training is for caregivers and professionals who work with brain injury survivors. This is an opportunity to gain more knowledge and confidence in identifying some early warning signs of suicide and feel more equipped to be a part of someone’s support system.

If you have any questions or accommodation requests, please contact Rachel Kaplan at safetynetcoordinator@biaofsc.com.

Important Note: this training comes with free participant materials, which take time to ship and provide. For this reason, registration will close Friday, May 27, 2022.



Tuesday, May 24, 2022

Help Make Tech More Accessible

Woman's image on a laptop screen photo

The teams at Meta (formerly Facebook) behind the Quest VR headset, Portal and other Augmented and Virtual Reality technology are welcoming new members to their Accessibility Research Panel. It’s an opportunity to help make AR/VR more inclusive by participating in user research activities. You'll receive compensation for your time as well as insight into new products and features. 

SIGN UP HERE 

Meta values the chance to learn from you how to improve our products and experiences. If you have any questions about joining the Reality Labs Accessibility Research Panel, please reach out to support@frlresearchinsights.com or click here for more information.



Monday, May 23, 2022

More FREE tests available!

ABLE SC More Available Free COVID 19 At Home Rapid Test Kits COVIDtests.gov

Great news! 

Now every household in the United States can order 4 more free COVID-19 rapid tests! 


Why order COVID-19 testing kits so you can test at home? 

Able SC's very own Jerri Davison shared her story, "When my daughter got sick, having a home test ready and available allowed my family to contain COVID from spreading in our home. I'm at higher risk of getting very sick because of my depression, and my mom, an older adult, also lives with us." 

Even if you haven't ordered test kits before, you should take advantage of this program today. Share this news with your family and neighbors! 

We know the federal administration's rollout plan is imperfect. But it is a chance to get more tests to more people, including our disability community that experiences barriers to access. If you are needing help accessing these free tests, please contact us! 

When preparing to order: 

  • The information needed for the order is first name, last name, and household address 
  • When you order, you will be signed up to get one package of four COVID-19 rapid tests for your household 
  • Your order cannot use a place of business address 
  • To track your package, include your email address when prompted on the form. The same email address can be used to track multiple orders 
  • Your package will take 7 to 12 days to ship 
  • Order your test kit today, before you need it! 

Protect yourself further with vaccination

Call the South Carolina Vaccine Access Hotline

Still have questions?

Contact the Disability Vaccine Access Hotline at (800) 787-6046  

South Carolina Disability Vaccine Access Hotline:  A hotline staffed by Able South Carolina and Disability Rights South Carolina designed to provide people with disabilities information about many different aspects of the COVID-19 vaccine.  These resources include but are not limited to: 

  • Address any concerns you may have about getting the vaccine       
  • Find a trusted medical provider  
  • Assist with vaccine appointment scheduling 
  • Navigate transportation to get your vaccine  
  • Offer resources and guidance on transportation to and from vaccine  
  • Answer some of the most common disability related questions related to the COVID-19 vaccine  
  • Provide information about accessible vaccine sites based on crowd sourced data  
  • Address other disability-related barriers about the vaccine you may be experiencing      

Disclaimer:  The staff of the Disability Vaccine Access Hotline are not licensed medical providers.  They are unable to offer medical advice about the best vaccine for you or predict how the vaccine may affect you or your family 


Thursday, May 19, 2022

Ribbon Cutting Event for the LOOK! 2021 Encore Exhibit

Family Connection of South Carolina logo

RESCHEDULED: LOOK! 2021 Encore Collection presented at Columbiana Centre! 

Look! 2021 Collage of photos image

Ribbon Cutting Event for the LOOK! 2021 Encore Exhibit 

Join us on Saturday, May 21st at 11:00 a.m.  
Columbiana Centre 
100 Columbiana Circle, Columbia, SC
  
We are bringing a limited collection of our LOOK! 2021 photos
 to be on display through October.
 
Exhibit will be inside the mall at the Belk Court
 
11:00 a.m.  Ribbon Cutting
11:15 a.m. - 12:30 p.m. Exhibit Opens
 
Craft activities for kids ♦ Light refreshments 

RSVP

Wednesday, May 18, 2022

Persons with Disabilities Right to Parent Act

 
Persons with Disabilities Right to Parent Act 5th Anniversary ABLE SC image

Today we remember an important anniversary for the rights of people with disabilities! 5 years ago Governor Henry McMaster signed the “Persons with Disabilities Right to Parent Act” into law! Able SC worked with partners to draft a bill that ensures the protection of the rights of individuals with disabilities. Before this law, parents with disabilities did not have the same protections as parents without disabilities. Parents with disabilities would have their children taken away, only because they had a disability. 

In addition to celebrating this law, we are celebrating the story of Angaliece: a mom who almost had her baby taken away, only because she had a disability. Angaliece, or “Angel” as she’s called by family and friends, is a mom with Down Syndrome and a rape survivor. After her child was born — who also had Down Syndrome — a private action was filed to remove her baby from her custody even though she had supports in place and wanted to parent and care for her child, Imani. Able SC advocated for Angaliece using the SC Persons with Disabilities Right to Parent Act. After working closely with the Department of Social Services and a Guardian Ad Litem within the court system, a settlement was reached. Angaliece and Imani were reunited. Recently Angalice celebrated Imani’s 5th birthday as a family, whole. 

People with disabilities are parents. We love our children. We deserve the right to be with them 

If you are a parent with a disability or thinking about becoming a parent, be sure to know your rights! 

Know Your Rights!


Tuesday, May 17, 2022

The autistic vet who proved her doubters wrong

BBC News logo

Dr Kiah Hann with small dog in her lap photo

By Kevin Shoesmith 

Ever since she was a child, Dr Kiah Hann had wanted to become a vet but was told her various health conditions would prevent her from realising her goal. Now six years into the job, she explains how she proved the doubters wrong, and why her autism has proven to be a strength in her dream line of work.

"Sometimes owners are a little surprised to see a vet in a wheelchair," says Dr Kiah Hann.

"Usually they'll say something like: 'Good for you!'"

The 29-year-old is a hit with animals and owners alike at Swanbridge Veterinary Hospital in North Ferriby, East Yorkshire. Using her brightly decorated wheelchair, she is supported by an assistant who occasionally helps her to handle the more lively patients.

Click here to read more! 


Check Out Dan Habib's New Film For Free: "My Disability Roadmap"


 

 @mydisabilityroadmap is OUT NOW in @nytimes, no subscription needed to watch!
Captions and audio description available. This new film by Dan Habib and
Samuel Habib follows Samuel, a young man with complex disabilities, as he navigates
the path to work, college, and relationships while seeking out wisdom from disability
activists across the country. 

We are proud supporters of this film - please watch and share! nyti.ms/3wlvVBx

Monday, May 16, 2022

BrainStorm Meets THIS WEDNESDAY 5/18/2022

BrainStorm logo
A support and advocacy group for young adults 
who have been impacted by brain injury

Join us this Wednesday

May 18th!

6:30 - 8:00 pm. 

WHO: Survivors, family, friends, and advocates of brain injury ages 15-29 years of age

NEXT MEETING: May 18, 2022 from 6:30 - 8 pm EST

HOW TO GET MORE INFORMATION: 

  • Contact Brain Injury Safety Net Coordinator, Rachel Kaplan by clicking here.
  • Join our Facebook Group by clicking here. As a reminder, this group will only accept youth ages 15-29 years of age to create a safe and inviting peer support space.
  • Download the informational PDF and share with anyone that may be interested by clicking here.

Check Out Our Website!

Friday, May 13, 2022

Save the Date: Life with Brain Injury Conference 2022

Brain Injury Association of SC logo

Save the Date:

2022 Life with Brain Injury 

“Virtual” Conference

Thursday, July 28 & Friday, July 29, 2022

Join Brain Injury Association of SC and SC Brain Injury Leadership Council for the 2022 Life with Brain Injury Conference. This conference will be held virtually July 28-29, 2022. Save the date and check out a list of conference sessions as well as a brief introduction to our keynote speakers, Christabelle Braden, MA and Caroline Sheppard, MSW.

Christabelle Braden, MA, and Caroline Sheppard, MSW, keynote speakers at 2022 Brain Injury Conference photos

Sessions:

  • Brain Injury 101 (can be viewed prior to the conference via biaofsc.com)
  • What Gadgets Can Help Me?
  • Returning to School, Learning, Work and Life after Brain Injury
  • Caring for the Care-Partner
  • Brain Injury Recovery: The Intersection Between Brain Injury & Mental/Behavioral Health
  • “de-LIBERATE-ly ME”
  • Inclusive Strategies for Working with Individuals with Disabilities who are Survivors of Interpersonal Violence, Human Trafficking, and Abuse

For more information, contact BIASC office 

at 803.731.9823 or director@biaofsc.com

Check Out Our Website 

Brain Injury Association of SC and SC Brain Injury Leadership Council logos in one image


Thursday, May 12, 2022

May is Mental Health Awareness Month!

Autism Society logo

Woman and child in meditation pose photo Autism Society

May is Mental Health Awareness Month

This May, our focus is on Mental Health Awareness Month where we'll share resources on suicide prevention, statistics, and facts about the intersectionalities of Autism and mental health. Because the intersectionalities between Autism and co-occurring mental health conditions are so prevalent, it is imperative that the Autism community collaborates with health advocates, organizations, and policymakers to offer more equitable mental health supports.

Did you know: People with Autism are three times as likely to have suicidal thoughts, behaviors, and deaths by suicide than neurotypical individuals.

Access Mental Health Resources

***** 

Children outside playing at summer camp Autism Society photo

Summer Camps and Activities

While the free-flowing days of summer can be relaxing for some children with Autism, the break from school routines may be stressful for others, who often thrive in structured and predictable settings. Check out our Summer camp and activity resources for ideas to keep children active, engaged, and in a routine.

Access Summer Camp and Activity Resources

*****

Please join us for our Community Connections: Vaccine Education Initiative webinar on Friday, May 20th at 11:00 am EST with Dr. Peter Hotez, a vaccine scientist and Autism parent, and Dr. Emily Hotez, Developmental Researcher and Assistant Professor of Medicine at UCLA and sibling to an Autistic sister. Together they will discuss mental health challenges, long Covid, and vaccine hesitancy during Covid-19.

Event Details

***** 

Affiliate Highlights

Visit Our Website

Contact Line 1 (800) 328-8476


Wednesday, May 11, 2022

Join Us For A Candid Conversation About Mental Health

United Spinal Association logo

 Free Webinar on Mental Health: A Candid Conversation From Both Sides of the Chair

wheelchair bound man rolling down sidewalk with back to camera photo

United Spinal Association is hosting a free 
and informative webinar: 
Mental Health: A Candid Conversation 
From Both Sides of the Chair

Thursday, May 12th at 3pm EDT.

Come join us for an hour presentation, where we’ll hear from a group of mental health professionals with mobility disabilities that have also chosen to pursue a career within the mental health profession. We’ll hear how mental health impacted them both personally and professionally. 


Presenters: 
  • Stephanie Birmingham, MA, LPC-IT is a mental health therapist and owns her own practice. She recently left six years working at Independent Living Center where she was Advocacy Coordinator and focused on the topics of mental health, peer support, health equity, voting rights, housing and homelessness. 
  • Michaela Devins is a mental health counselor who has been a C4-C5 quadriplegic for eleven years; She attended graduate school at the University of Pennsylvania in Philadelphia and completed her Masters there in professional mental health counseling in 2019. 

Tuesday, May 10, 2022

Free 4 All event this Friday!

SC Assistive Technology Program logo

The South Carolina Assistive Technology Program Reuse Service will host the Free 4 ALL Event on Friday, May 13,  9:00 am-1:00 pm at the South Carolina Assistive Technology Program building at Midlands Center, 8301 Farrow Road, Columbia, SC 29203.   This event gives durable medical equipment to those who need it ALL for FREE! 

ALL available durable medical equipment will be on display! If you or someone you know needs durable medical equipment you can come browse the available equipment and take what you need. ALL for FREE!  

This event is open to everyone! Individuals with disabilities, family members, therapists, caregivers, educators, veterans, case workers, etc.

ALL available durable medical equipment has been cleaned, sanitized, and is FREE!

For more information contact Alli Upchurch at 803-935-5273 or alli.upchurch@uscmed.sc.edu.

The SC Assistive Technology Program is a federally funded program that helps people with disabilities identify assistive technology that will improve their daily living, their ability to work and learn and be a more independent part of the community. We provide device loans and demonstrations, an on-line equipment exchange, AT reuse, training and technical assistance.  We link people with technology and work with consumers, service providers, state agencies and policy makers. Learn more at http://sc.edu/medicine/scatp.


Monday, May 09, 2022

Free Webinar on CapTel Captioned Phone

SC Assistive Technology Program logo

What is a captioned telephone 
and how can I get one at no cost?

May 12, 2022  |  10 - 11 AM ET

REGISTER HERE!

Questions? Contact Leah Cuthbertson 

at lcutherbertson@ors.sc.gov or call 803-737-3755

In this FREE webinar, learn about CapTel captioned phones and how this equipment can meet the needs of those with a hearing challenge. Outreach Education and Installation (OEI) will discuss the different uses and features of the phone. SCEDP will walk attendees through its application process. This phone is available through SCEDP at no cost to those with a hearing challenge. Attendees will have the opportunity to ask questions and interact with presenters. Accommodations will be made available for this presentation to be accessible to all.

This is a webinar from the SC Equipment Distribution Program (SCEDP).

Friday, May 06, 2022

The Power Assist Controller That's Also a Fitness Tracker

New Mobility newsletter logo

May 3, 2022

NEW ISSUE

A Spirit Runs Through Us All

Spiritual connection can be found anywhere, whether in a church, synagogue, at the top of a ravine or in a Facebook post. Josie Byzek talks with four wheelchair users of different faiths about how spirituality helps them find connection and perspective, and strengthens their resilience through all that life throws at them.

PRODUCTS

The New SmartDrive Controller Is Also a Fitness Tracker

Permobil and wearable company Mobvoi have partnered to release the SmartDrive Push Tracker E3, a power assist device controller and fitness tracker in one. The watch allows you to control speed and monitor battery life on your SmartDrive while it also tracks everything from your total pushes in a day to time spent coasting to sleep habits and more.

PRO TIPS

Accessible Cooking From Scratch

It doesn’t matter if you operate a spatula with your mouth or work with a caregiver to get your stir-fried veggies to that perfect level of crunch, cooking can be accessible, regardless of your level of function. We peek inside the kitchens of three quadriplegic cooks to find out their tips and tricks for making delicious food at home. 

Click here to read more of this edition. 


Thursday, May 05, 2022

Ride Across America for SCI/D Awareness

United Spinal Association logo combined with Strong Wheeled Together logo

United Spinal Newsletter | April 2022 

Adam Lane Handcycles Across America to Support People with SCI/D

Adam Lane, a member of the Oklahoma chapter of United Spinal Association began a 90-day cross-country handcycling trek from San Diego, California to New York City to raise funds to support the organization’s #StrongWheeled Together campaign and show how exercise and fitness can have a positive impact on the rehabilitation of individuals living with SCI/D. Learn more about Adam’s incredible journey, where to follow Adam on social media, and how to give here. 

Roll on Capitol Hill 2022

Roll on Capitol Hill (ROCH) is United Spinal Association’s premier annual event, sending advocates from the SCI/D community from all over the nation to Washington, DC to make their voices heard on the key issues affecting our community. This June, following a virtual event in 2021, United Spinal returns in-person to the Hill for the tenth ROCH, and we couldn’t be more excited. Check out this preview of this year’s ROCH, including biographies of this year’s awardees and an overview of what policy priorities are at stake this year.

Don’t Be Ashamed to Ask for Help with Anxiety, You’re Not Alone

Michaela Devins’ latest installment on mental health focuses on anxiety. Find out about the impact anxiety had on her life, and how therapy became “a space to speak my fears out loud and face them, to build skills for identifying negative thoughts cycles and patterns, to learn how to cope with the physiological responses tied to anxiety,” in this poignant reflection on coexisting with anxiety. Read more.

Wednesday, May 04, 2022

Registration Extended!

Don't forget to register for the Independence:
My Choices, My Life Conference!
  
Registration has been extended to May 6th.

Impact SC poster advertisement for Independence My Choices My Life Conference on May 26 2022 with keynote speaker James Cox

 May 26, 2022
Registration: 9am-10am
Sessions: 10am-3pm


Breakout Sessions:
Assistive Technology 
Relationships
Employment 
Rights

Tuesday, May 03, 2022

Free Webinar on a Reimagined LMS

SC Assistive Technology Program logo

The Student Experience Reimagined in the LMS - Socialized, Engaged, Data-driven

Target Audience: K-20 Teachers, Faculty, Instructional Designers, Administrators

Date: Thursday, May 5, 2022

Time: 10:00-11:00 a.m., ET

Speakers: Douglas Grooms, Regional Director of Southeast & Jace Gilbert, Principal Solutions Engineer.

REGISTER FOR THE WEBINAR

This webinar will unpack and rethink the roles, functions, and user experiences of an open, extensible learning management system (LMS). This session will critically examine how to amplify the voices of all students and empower faculty, instructional designers, and staff to stay ahead of the ever-changing landscape of pedagogy. This session will cover: assessment, selective release, analytics, e-portfolios, SpeedGrader, and the Canvas API with tools like Google Classroom, Microsoft Teams, and Zoom. On top of all this, we will illustrate our top-rated mobile apps for both teachers and students that give everyone access to just what they need on the go.

Participants will learn:

  • Leveraging synchronous and video asynchronous content in the classroom for engagement and assessment
  • Mobile first design & features for students who utilize smartphones, tablets, and iPads as primary devices
  • Using actionable data to improve student success and outcomes

Monday, May 02, 2022

USC alumna becomes leading advocate for families affected by autism

University of South Carolina logo

Lorri Unumb photo

Lorri Unumb channels personal journey into focus and direction as a catalyst for change

Posted on: April 25, 2022; Updated on: April 25, 2022

By Carol J.G. Ward ward8@mailbox.sc.edu

When Lorri and Dan Unumb’s son Ryan was almost 2 years old, they noticed he wasn’t behaving and developing like other children. The couple was living in Washington, D.C., where they both were employed as lawyers with the U.S. Department of Justice. After appointments with several specialists, Ryan was diagnosed with autism shortly before his second birthday.

“They all said the same thing: For a child with this degree of autism, you need to get him into a very intensive program right away,” Lorri Unumb says. “I didn't even know what autism was. Because 20 years ago, it just wasn't the household word it is now. I didn't even know what they were telling us to do. But we were going to do it. Whatever it was they were recommending, we were going to do it.”

Two decades later, Unumb, a University of South Carolina alumna (’90 journalism and political science, ’93 law), is an internationally known autism advocate who has written ground-breaking autism insurance legislation and co-founded, with her husband, a nonprofit center for families affected by autism in South Carolina. In 2019, she became CEO of the Council of Autism Service Providers, an association of organizations serving people with autism.

Click here to read more!