Wednesday, June 26, 2019

Free pediatric items!

SC Assistive Technology Program logo

Check out some of the
pediatric equipment available!

All items are free through the SC Assistive Technology Program Reuse service!
Click links for more information about items (if available).

If you are interested in any of these items,
please contact Alli Upchurch at (803) 935-5273




EasyStand Zing Size 1
Fits individuals up to 44 inches
and up to 70 pounds
Easy Stand Zing Siz 1 picture


Stander size 1
Fits individuals 29 to 37 inches tall
and 77 pounds
Stander size 1 picture


 Easystand Youth
User height 28 to 40 inches
and up to 45 pounds
Easy Stand Youth picture


Crocodile gait trainer
Size small
Maximum weight 66 pounds,
maximum height 44 inches
Crocodile Gait Trainer picture


Tilt-in-space chair
Seat width 10 inches
Seat depth 14 inches
Tilt-in Space Chair picture


Corner chair
User height up to 58 inches
Weight capacity 65 pounds 
Corner Chair picture



Tuesday, June 25, 2019

Daily POEM: Once again, autism not linked to MMR vaccine

Essential Evidence Plus logo


POEMs Research Summaries
Your Daily Update for the Latest Patient Oriented Evidence that Matters

Once again, autism not linked to MMR vaccine


Clinical Question
What is the risk of autism following measles, mumps, and rubella vaccination?



Bottom Line
This is the third—and largest—study conducted after the publication of a now-retracted case study of 12 children that led to the current conspiracy-laden pushback against the measles, mumps, and rubella (MMR) vaccine. This study, as did the other 2 studies, found no increased development of autism, even in children with risk factors or with a sibling with autism. As in most human endeavors, facts generally do not carry the day when it comes to changing opinion, but here's more evidence to use when parents are interested. (LOE = 2b)



Reference
Hviid A, Hansen JV, Frisch M, Melbye M. Measles, mumps, rubella vaccination and autism. A nationwide cohort study. Ann Intern Med 2019;170(8):513-520.



Study Design: Cohort (prospective)
Funding: Industry + govt
Setting: Population-based
Allocation: Unknown



Synopsis
The Danish patient registry allows for tracking of all people who remain in the country. These investigators enrolled all children (N = 657,461), at one year of age, born between the years 1999 and 2010 to Danish-born mothers. The children received the usual childhood vaccinations, including thimerosol-free MMR at 15 months (95.2% of children) and again at 12 years of age. (Note: In 2008, they changed the timing of the second vaccine to 4 years of age.) Over the course of the study, 6517 children were given a diagnosis of autism via comprehensive diagnostic evaluation—not by screening—by age 7 (incidence rate 129.7 per 100 000 person-years). At any time during the follow-up (from age 7 to age 14 years), there was no difference in the incidence of autism between vaccinated and unvaccinated children. Similarly, there was no increase in the likelihood of autism in children with a sibling with autism or in children with risk factors for developing autism.



Allen F. Shaughnessy, PharmD, MMedEd
Professor of Family Medicine
Tufts University







Friday, June 21, 2019

FREE Training: Learn How to Reach Your Goals!

Go for the Goal banner ad from ABLE SC


Join us for a FREE training online or in-person to learn more about:

• Long and short-term goals
• SMART goals
• Possible obstacles to goals

 


Monday, June 24
1:00-2:00 PM
Online

Tuesday, June 25
2-3:30 PM
Able SC Columbia

For more information,
please call 800-681-6805/TTY: 803-779-0949
or email dtempio@able-sc.org


ABLE SC logo


Thursday, June 20, 2019

FREE Disability Benefits Workshop in Florence!

Hire Me SC Florence logo
  • Are you interested in going to work or increasing your earnings?
  • Do you need information on how working will affect your disability benefits? (SSI and SSDI)?
  • Do you want to connect with local agencies that can assist with finding a job and providing supports?
Then this is the workshop for you!
 
4 picture collage of Hire Me Classes Florence SC

Join us for this FREE event!

Wednesday, July 17, 2019
1:30-3:30 PM

Poynor Adult and Community Education Center
301 South Dargan Street, Room 301
Florence, SC 29506


ALL attendees must register to ensure we have enough materials for everyone.

For more information, e-mail hiremesc@able-sc.org or call 1.800.681.7715/TTY 864.235.8798.

Accommodation requests must be made by July 10, 2019.

Wednesday, June 19, 2019

2019 Life with Brain Injury Conference -- OPEN!

Brain Injury Association of SC logo

2019 Life with Brain Injury Conference
 is OPEN!!!!

Make sure you sign up today at:

BIASC Conference 2019 logo collage: What do you brain to the table?

PLEASE VIEW THE BROCHURE ON THE WEBSITE PRIOR TO REGISTRATION!!

Early Bird pricing ends on Friday, June 28, 2019

Scholarship and Youth Track Registration must call the office
to complete your registration!

803-731-9823

Tuesday, June 18, 2019

Check Out Our New Title!

Community Living & Participation for People with Intellectual & Developmental Disabilities book cover
Community Living and Participation
for People with
Intellectual and Developmental Disabilities

editors:
Amy S. Hewitt and Kelly M. Ney-Lengerman
2019


Community Living and Participation for People With Intellectual and Developmental Disabilities is an exploration of how to create the ideal conditions to facilitate community living and participation for people with IDD. The book addresses the complex and ever-evolving dimensions related to both the place of community and the feeling of community, including living arrangements, work, other daytime activities, financial resources, relationships, personal interests, health and well-being, faith, opportunities for learning and personal growth, self-determination and informed decision making, and rights and responsibilities as a citizen. The following topics are addressed specifically: using person-centered and positive support practices, housing, employment, social inclusion and relationships, self-determination and self-advocacy, supported decision making, health and wellness, planning for healthy and engaged aging, practices that promote quality outcomes, and the direct support workforce.




Friday, June 14, 2019

Hurricane Season

SC Assistive Technology Program logo

It’s hurricane season!
Are you prepared?

SCATP is here when you need durable medical equipment and assistive technology after a disaster. We also want to help you be prepared for a disaster before it happens.

Here are some quick tips to prepare for an emergency:
  • Make sure all assistive technology, including cell phones, communication devices, and wheelchairs, are fully charged. Have extra batteries ready.
  • Identify accessible transportation in the event of an evacuation.
  • Create an emergency kit that includes assistive technology devices or medical equipment that you may need.
  • For a complete guide on how to prepare for an emergency, visit: https://www.ready.gov/individuals-access-functional-needs
  • Download the SC Emergency Manager, the official app of South Carolina Emergency Management Division, to help prepare for emergencies:



If you need durable medical equipment, please contact Alli Upchurch at SCATP at 803-935-5273 or alli.upchurch@uscmed.sc.edu.

Thursday, June 13, 2019

Check Out Our New Title!

A Systematic Approach to Personal Support Plans book cover

A Systematic Approach
to Personal Support Plans
by
Robert L. Schalock, James R. Thompson,
and Marc J. Tasse
2018


This book is a concise practical guide for programs involved in developing, implementing, and evaluating personal support plans. The emphasis is on basing the development of these plans on good information. The results of assessments using the SIS--A™ and the SIS--C™ can be used to develop personal support plans with this approach.

The steps involved in developing personal support plans using the systematic approach are described in detail, including each of the components and implementation steps. These involve:  understanding the person; understanding the person’s support needs; developing, implementing, and reviewing the plan; and evaluating the outcomes. The last section of the book presents four exhibits provided by organizations that have incorporated one or more of the components and implementation steps in their programs.




Wednesday, June 12, 2019

Register for the AAIDD 2019 Conference!

AAIDD 2019 Conference logo

Knowledge Translation:
Power Through Research,
Policy, and Practice

Registration Closes Tomorrow!
 

Need to register at a later date?
Registration will also be available onsite.


AAIDD's 143rd Annual Meeting, Knowledge Translation: Power Through Research, Policy, and Practice, June 24-27 in The Twin Cities, Minnesota is really the "must attend" meeting of the year!


Join us for informative and inspiring plenary sessions, cutting edge concurrent sessions, posters addressing emerging issues, and in-depth pre- and post-conference meetings on a number of important topics.


Meet us in The Twin Cities!


See the full schedule of events,
find hotel information, and register by clicking here.  
  

American Association on Intellectual
and Developmental Disabilities (AAIDD)
8403 Colesville Road, Suite 900
Silver Spring, MD 20910
Telephone: 202-387-1968
Fax: 202-387-2193


Tuesday, June 11, 2019

Don't Miss Out on Summer Series!

Equip Summer Series 2019 logo

Don't Miss Out!

Have any plans for the week of June 17? If not, join us for the 2019 EQUIP Summer Series! It's a great opportunity for youth ages 13-28 to learn more about setting goals, self-advocacy, and independent living. Summer Series is from 10:00 AM - 4:00 PM daily at the Able South Carolina Upstate and Midlands offices. Join us June 17 - 21 for a week of all-inclusive activities, FREE lunch, and much more! To register, click the link below or visit
www.able-sc.org.

Have questions?

Reach out to the EQUIP team
at 800.681.6805/TTY:803.779.0949


Calling All Youth Equip Summer Series ad

Monday, June 10, 2019

Check Out Our New Title!

Supported Decision-Making book cover picture
Supported Decision-Making:
Theory, Research, and Practice
to Enhance Self-Determination and
Quality of Life

by
Karrie A. Shogren, Michael L. Wehmeyer,
Jonathan Martinis, and Peter Blanck
2019


The United Nations Convention on the Rights of Persons with Disabilities (CRPD) recognized that people with disabilities should have the right to exercise their legal capacity and identified 'supported decision-making' as a means by which people with disabilities can be directly involved in decisions that impact their lives. Offering an overview of its emergence in the disability field and highlighting emerging research, theory, and practice from legal, psychology, education, and health fields, this volume provides a much-needed theoretical and evidence base for supported decision-making. Evidence and strengths-based frameworks for understanding disability, supports, and their roles in promoting supported decision-making are synthesized. The authors describe the application of a social-ecological approach to supported decision-making, and focus on implications for building systems of supports based on current environmental demands. This volume introduces and explains empirical research on critical elements of supported decision-making and the applications of supported decision-making that enhance outcomes, including self-determination and quality of life.



Friday, June 07, 2019

News and Tips from Family Connection

Roadmap Family Connection logo



Look! 2019 logo

LOOK! 2019 Exhibit


Family Connection of South Carolina would like to thank everyone who helped make the opening night of LOOK! 2019 a huge success! Thank you to everyone who was able to attend and support the exhibit and the amazing children featured this year.


Each year during the opening night of the LOOK! event, members of our community who have contributed to the lives of children in South Carolina and the LOOK! event are recognized with an award. This year, three awards were presented.


Groucho’s Deli was awarded the Life Changer Award for their contribution of $5,000 or more to Family Connection in a single year. Their company and its owners have a long history of giving back to their community with a heart for giving to programs that help create a more hopeful world for children.


LaKeisha Stevens was awarded the Support Parent of the Year award, in recognition of her involvement in the The Support Parent Program. Ms. Stevens has guided countless through difficult processes and provides families a shoulder to lean on and encouragement in difficult times.


Amanda Hess was recognized with the third award for the night, the Pat Head Advocate of the Year Award. Ms. Hess was recognized for her work as an attorney at Protection and Advocacy for People with Disabilities, protecting the rights of our children and as a “responsive resource” for education staff at Family Connection.


If you were unable to attend opening night, the photography exhibit is currently displayed at EdVenture Children's Museum in Columbia and will remain open throughout the summer. LOOK! books from this year's exhibit, featuring the participant's photograph and their story, are available for purchase. For more information on this, please contact Jazmyn Corley.


For more information on the exhibit, click here.


Partners in Policymaking


Applications are now open for Class 22 for Partners in Policymaking!
 
Partners in Policymaking®, a program of the South Carolina Development Disabilities Council, is an innovative leadership program created specifically to teach people with disabilities and the parents of young children with disabilities to:


• Become agents of long-term change;
• Be active partners with the policymakers whose decisions will shape their future; and
• Dream about a future with possibilities.



Applications will close on July 31, 2019. For more information and to apply, click here.


Exceptional SC Scholarship Deadline


Exceptional South Carolina (SC) has closed the first round of applications for their scholarships, however, the application portal re-opened for the second round of applications June 1, 2019.


The eligibility requirements for the application have now been changed as well! Parents now only need to submit one of the two forms – the Medical Professional Form and the Educator Eligibility form – for their application.


Parents will be notified on their child's award amounts before the start of the school year.


Please note that attention deficit disorder (ADD) and attention deficit/hyperactivity disorder (ADHD) as stand-alone diagnoses do not qualify. Please visit their website and read this article for more information.


For more information on the scholarships, please click here.


Participants Needed for Research Study

Hearing Loss Study info ad

The University of South Carolina - School of Medicine is currently conducting a study for parents or caregivers of children, aged 0-21, diagnosed with hearing loss in South Carolina.
 
This study is to asses the needs and supports of parents and caregivers of children diagnosed with hearing loss. Participants will be asked to complete a demographic form and two surveys. The two surveys can be taken either online or through the phone and should take approximately 15 minutes to complete.


Participation in the study is confidential. To take the study online, please email SCDHHstudy@gmail.com; if you wish to take the survey over the phone, call 803-915-4064. For any questions regarding the study or your participation, contact David Leach at the above email.


SCDHHS and SCDDSN Need Your Feedback!
 
The South Carolina Department of Health and Human Services (SCDHHS) and the South Carolina Department of Disabilities and Special Needs (SCDDSN) are seeking feedback like your's through an upcoming webinar.
 
This webinar will present the state’s draft Home and Community-Based (HCB) Settings Quality Review Process. The HCB Settings Quality Review Process is to gather information to determine if a setting can overcome its “presumed institutional nature” through programming, operation and/or reasonable environmental modifications.

This process is for SCDDSN-contracted settings (such as a residential facility) that have been identified as potentially eligible for the Centers for Medicare and Medicaid Services (CMS) heightened scrutiny process.

 
SCDHHS and SCDDSN would like your feedback on this before finalizing and submitting it to CMS in the South Carolina HCB Statewide Transition Plan.


There are two opportunities to view the webinar; both dates will provide the same information to all attendees.

The goal is to gather this targeted stakeholder feedback to better inform the process before implementation. After registering, you will receive a confirmation email containing information about joining the webinar.



To register for one of the webinars, please click below.
 
Wednesday, June 5, 2019 Start time: 3 p.m.
Register!

Friday, June 7, 2019
Start time: 10 a.m.
Register!

The Brain Injury Association of South Carolina

Brain Injury Association of SC logo

The Brain Injury Association of South Carolina (BIASC) helps youth learn about brain injury, access needed services, and supports their rights in South Carolina.
 
BIASC is currently offering an advocacy training for youth, ages 13-21, who attend public, private, magnet schools, home schooled, or who are home-bound.
 
The purpose on this training program is to help students develop knowledge of self, knowledge of rights and responsibilities, communication skills, leadership skills, and more. To view the flyer on this training, click here. To download the referral form for the training, click here.
 
Additionally, the Brain Injury Association of South Carolina will be hosting "Advocacy Skills Training for Youth with Brain Injury" in conjunction with their "Life with Brain Injury" Annual Conference! This training will be available for youth, ages 15-21, for no additional cost. For more information, click here.
 
For more information on either training, please contact Freda King or call, 803-731-9823.

Lowcountry Mental Health Conference

The Lowcountry Mental Health Conference will be on August 1-2, in downtown Charleston, South Carolina. The conference will offer 10 talks and two musical performances, giving attendees the opportunity to earn up to 14.25 contact hours!
 
Talks and Performances delivered by world-class experts include:

• DAVID A. JOBES, Ph.D., (Professor of Psychology, Author and Internationally Recognized Suicidologist)

• REV. JACQUI LEWIS, Ph.D., (Activist, Author and Senior Minister at Middle Collegiate Church in New York City)

• JOHN & JAMIE FORSYTH, Ph.D., (Psychologists, Educators and Critically Acclaimed ACT Clinicians)

• And more!

To view the full schedule for the Lowcountry Mental Health Conference, click here.

Lake Carolina Development Donates $31,000
to Local Children’s Charities

"Lake Carolina Properties presented a check for $31,000 to five local charities through its beneficiary, Children’s Charities of the Midlands.

This gift was made possible through various community events and fundraisers at Lake Carolina, like the Polar Bear Plunge in January, Oyster Roast in March, and the Wine & Food Festival in October.
The biggest fundraising event of the year at Lake Carolina was the Polar Bear Plunge, held on the second Saturday of each January."

Among these organizations was Family Connection of South Carolina! To read more about Lake Carolina Development's donations, click here.