IAN Community (April 20, 2011)- People with autism spectrum disorders (ASDs) often “elope,” “wander,” or “bolt” from safe spaces. This behavior can be dangerous, and there have been many reports of fatalities, yet virtually no research has been focused on this subject.
Recognizing the urgent need for information and intervention, the Autism Research Institute, the Autism Science Foundation, Autism Speaks, and the Global Autism Collaboration partnered with the Interactive Autism Network (IAN) to create a national survey on elopement in ASD. So far, more than 800 families of children with ASDs from across the U.S. have completed the Elopement and Wandering Questionnaire launched on March 29, 2011. In this report, we share some initial findings, including the fact that nearly half of children with ASD between the ages of 4 and 10 engage in this behavior.
Preliminary results of this first ever investigation of elopement behavior in autism are shared to provide critical information for families, advocates, policy makers, and scientists. This is just a first look at such information, however, and we are continuing to collect elopement data from families of both children and dependent adults with ASD. You will notice that we are not yet reporting findings about dependent adults with ASD; this is because we have not yet collected enough data from families of adults, although we hope to do so in the future. Please encourage families of both children and adults on the autism spectrum to consider completing the Elopement and Wandering Questionnaire by participating in IAN Research.
Please Note: These Findings Are Preliminary
The analyses presented here by the Interactive Autism Network are preliminary. They are based on information submitted via the Internet by parents of children with autism spectrum disorders (ASDs) living in the United States who choose to participate. They may not generalize to the larger population of families affected by ASD. The data have not been peer-reviewed -- that is, undergone evaluation by researchers expert in a particular field -- or been submitted for publication. IAN views participating families as research partners, and shares such preliminary information to thank them and demonstrate the importance of their ongoing involvement.
To read more information about Elopement and Wandering please click on the above title.
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