We've received a request from Bloomberg News healthcare
reporter, Carolyn Chen, who is interested in doing a story on
barriers facing Medically Fragile children. She is seeking
families who 1) might be trying to get their medically fragile child
home from the hospital but can't because of the lack of home
nurses, 2) families who have had trouble getting a home nurse
and as a result, has stayed in hospital longer than necessary,
3) families who figured out how to problem-solve this issue and
has made it happen, 4) other families who might not be sure they are
eligible for this story, but are interested in chatting with reporter
because of their experiences.
Additional
information quoted by reporter:
"In a nutshell, I'm interested in writing about
medically fragile children who don't need to be in the hospital but
do need round-the-clock nursing care. It seems that there is a
shortage of nurses in a number of states and, as a result, there are
kids who can't leave the hospital even though they are ready to be
discharged, or who end up in nursing homes. I've been told that part
of the problem in some states seems to be that rates of Medicaid
reimbursement for these nurses are far lower than what they'd get in
private plans.
I was wondering if (1) P2P may have parents in the
network who are currently living through this issue and who might be
willing to tell me their story. I will be very respectful of their
privacy concerns (if they only want to use first names or initials
for their children, for example). It doesn't matter where in the U.S.
they are, I'm aiming to do a national story. and (2) if P2P knows of
anyone who would have an estimate of how many medically fragile
children there are in the U.S. and whether that number is growing or
not. My understanding is that definitions vary, I'm interested in
children who need round-the-clock care of some sort, whether it is
just monitoring a trach or more intensive, but are eligible for that
to be done at home."
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