Thursday, September 02, 2021

Research Survey Opportunities for Brain Injury Survivors

Brain Injury Association of South Carolina logo

There are two research survey opportunities we would like to share with you. Please see details below on each opportunity to see if it would be a good fit for you and if you would be interested in participating. If you are interested in participating or getting more information, please make sure to reach out to the contact person that is specified for that particular opportunity!

Research Opportunity #1

3 men in black suits holding pictures of expressions (indifference, like, dislike) blocking their faces

The Brain Injury Association of America is conducting a survey on PBA. PBA stands for pseudobulbar affect, and is characterized by sudden, frequent, uncontrollable episodes of crying and/or laughing that are excessive or don't match how you feel. Brain Injury Association of America (BIAA) wants to know more about people who have PBA and whether or not they can access treatment for the condition. If this sounds like something you or a family member, friend, patient, etc. are experiencing, and you would like to participate in this survey, please click this link. Surveys need to be completed by September 30, 2021.

Research Opportunity #2

Case Western Reserve logo with child looking up at chalk drawing of brain image

Researchers at Case Western Reserve University are conducting a study about TBIs in children.

This is a study to learn about the role of social communication on social behavior in children, reported by parents and caregivers. Participants will be asked to complete an intake phone call (about 10-15 minutes), and to fill out questionnaires regarding their child's social communication and social behavior abilities (about 30-45 minutes).

You are eligible to participate in this survey if:

  • You are a parent or caregiver of a child who sustained a brain injury of any severity (concussion/mTBI, TBI, severe TBI, etc.) 
  • Your child sustained a brain injury after 6 months of age 
  • Your child is currently between the ages of 6-18 years 
  • It has been at least 6 months since your child's brain injury 

Participants will be compensated for their time with a gift-card.

For more information about this study, contact Libby Crook at 216-282-6037 or libby.crook@case.edu, or Dr. Sarah Hope Lincoln at sarahhope.lincoln@case.edu.


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