Field Notes May 2023

Communication

Exploring Communication Ability in Individuals With Angelman Syndrome: Findings From Qualitative Interviews With Caregivers 

An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Duke University and The Foundation for Angelman Syndrome Therapceutis describes a study exploring meaningful aspects of communication for individuals with AS. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)

Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome

An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Duke University and The Foundation for Angelman Syndrome Therapceutis explains the critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with AS. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee) 

Using a Self-Guided App to Provide Communication Strategies for Caregivers of Young Children with Developmental Disorders: A Pilot Investigation

An article published in the March 2023 Issue of the Journal of Policy and Practice in Intellectual Disabilities by authors affiliated with Georgia State University, Augusta University and the University of Pretoria examines how a web-based self-guided app functioned for caregivers and its secondary effects on their children. (Available free of cost)

Family Perspectives

Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities

An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Vanderbilt University describes the complexities and challenges of obtaining employment for family members with extensive support needs. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)

"More Than a Paycheck”: Parent Perspectives on Meaningful Work for Individuals With Intellectual and Developmental Disabilities

An article published in the March 2023 issue of Intellectual and Developmental Disabilities by authors affiliated with Vanderbilt University discusses parent perspectives on meaningful employment for their family members with IDD. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)

"In the Beginning it was Difficultbut Things Got Easier": Service Use Experiences of Family Members of People with Disability from Iraqi and Syrian Refugee Backgrounds

An article published in the March 2023 issue of the Journal of Policy and Practice in Intellectual Disabilities by authors affiliated with Deakin University, the University of New South Wales and Community Paediatrics explores stakeholder experiences of people with disability from Iraqi and Syrian refugee backgrounds who resettled in Australia, with a view to informing future services and supports. (Available free of cost)

Community  

Transportation and Community Participation Among Autistic Adults

An article published in the March 2023 Issue of Inclusion by authors affiliated with Drexel University describes how the amount, breadth, and sufficiency of community participation differed in terms of transportation modes used by autistic adults. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)

Moving Home: Community Transition Supports for People with Intellectual and Developmental Disabilities 

An article published in the April 2023 Issue of the Disability and Health Journal by authors affiliated with The Council on Quality and Leadership examines if and how states provided community transition services in their HCBS waiver programs for people with IDD.(Available free of cost) 

Providers 

'A New Measure of Physicians' Erroneous Assumptions Towards Adults with Intellectual Disability: A First Study 

An article published in the May 2023 issue of the Journal of Intellectual Disability Research by authors affiliated with the University of Perugia and The Ohio State University describes a study that identifies the erroneous assumptions that were most prevalent in physicians and damaging for healthcare of adults with ID. (Available free of cost) 

Explicit and Implicit: Ableism of Disability Professionals

An article published in the May 2023 Issue of the Disability and Health Journal by authors affiliated with The Council on Quality and Leadership examines the explicit and implicit disability attitudes of disability professionals. (Available free of cost)