A Q&A with Disability Rights Pioneer Stephanie Thomas
“There were no community services. If your family couldn’t help you, and
you didn’t have extraordinary friends, you couldn’t make it — if you
needed help getting out of bed, or eating, or bathing, you were out of
luck, says Stephanie Thomas, reflecting on life as a wheelchair user
before the passage of the ADA.
But amidst new attacks on the disability rights, Thomas, one of ADAPT’s
founders, says she’s worried the ADA’s success has also quieted the
in-your-face activism that helped us win our rights. “I think people
assumed the ADA would take care of everything, without realizing it was
more of a tool than a final solution.” | |
Aquila SofTech: The Cushion That Finally Got My Pressure Injury Healing
Over two years battling a relentless pressure sore, Alex Ghenis tried
multiple cushions and wound VACs and endured multiple setbacks,
including infections and ER visits. His quality of life was suffering
and he worried he might never get back to the active life he loved. When
we asked if he’d be interested in trying and reviewing view the Aquila
SofTech, a custom-made, alternating-pressure cushion designed to help
heal and prevent wounds, he jumped at the opportunity. Three months
later, his wound is healing, he’s getting back to his daily routine and
he can’t imagine using any other cushion. Read his review. | |
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Stand Up courtesy of Loco Films Summer Disability Film Preview
If you’re looking to beat the heat and take a break from the stream of
Hollywood blockbusters, there are a handful of promising films coming
out that center disabled actors and creators. Whether you’re looking for
suspenseful thrillers, dramas about adapting or feel-good
documentaries, we’ve got you covered. None of these are slated for wide
release as of yet, but keep an eye out for local screenings and
streaming options. | |
To Be Disabled Is to Grieve Your Friends Too Soon
Erica Mones writes about the complex emotions she felt after the passing
of one of her best friends, delving into why death often seems like a
taboo topic in our community despite its inevitability and prevalence.
“Ignoring the reality that having a disability comes with increased
mortality does not change the facts,” she writes, “it only serves to
cause us further pain when we do experience premature loss.” | |
Roger That: The Walkie-Talkie Trick That Keeps Your Wheelchair Safe
What do you do when airline employees are likely to damage your $30k+
power chair? Ian MacKay has a novel idea: zip tie a walkie talkie to
your chair, so you have a direct communication line to the baggage
handlers. Whether you think it’s brilliant or unlikely to work, join the
conversation on our Instagram channel. | | |
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