Wednesday, August 03, 2022

New High-Performance Wheelchair Wheels

New Mobility magazine logo

August 3, 2022

PRODUCTS

Vapor Wheels Debuts Two Customizable, High-Performance Wheel Sets

Vapor Wheels recently began offering two manual wheelchair wheel sets: the aluminum rim Vapor 13 series and the carbon rim Vapor X Series. Nearly every component of the wheels — from hub, rim and handrim color to performance tire choices — can be customized. Plus, the wheels are assembled in the U.S. and come with user-friendly features, such as nonproprietary components and the ability to swap handrims without removing the tire. 

WEBINAR

Assisted Suicide Laws and Equality in Dignity

On Sept. 9, four disability-rights leaders including John Kelly, director of Not Dead Yet, and Vincenzo Piscopo, president and CEO of United Spinal Association, will be discussing assisted suicide laws and their impact on equality, dignity and access to care for people with disabilities. Click the link for info on how to register. 

PRO TIPS

Clothing Hacks for Wheelchair Users

Clothes that don’t look frumpy or messy while seated are hard to find if you are a wheelchair user, and accommodating leg bags, pouches and cathing with limited hand function can be even more demanding. Jenny Smith gets advice and ideas from wheelchair users who have adapted their clothes to make them more functional while retaining their style.

Accessible Birding 101

Birding is an activity that can take many forms — from trying to spot new species to taking photos to using birdsongs to guide your meditation. Elliott Lapin talks with adaptive birders for tips, tricks and equipment to get the most out of whatever kind of birding calls to you. 

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New Mobility is the member publication of United Spinal Association, whose mission is to improve quality of life of people with spinal cord injuries and disorders. It's free to join United Spinal, and members may receive New Mobility magazine for free for one year. Join here.

United Spinal Association logo


Tuesday, August 02, 2022

Get Ready for Back-to-School

Autism Society logo

Child seated at school  desk with book opened photo for Autism Society

Back-To-School Planning

This August, we discuss the importance of making informed decisions with back-to-school planning and establishing new schedules and routines; for those transitioning out of school or post-secondary education, we outline resources for housing and independent living, aging, and long-term supports. Lastly, August is National Make-A-Will month and an opportunity to plan for you and your family’s future and well-being. 

Did you know: Support housing can be very challenging for many adults with Autism to access. 83% of people with intellectual and developmental disabilities, including Autism, do not receive publicly funded residential support.

Access August Resources

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Autism Society Annual Report 2021 cover photo

2021 Annual Report

In 2021, the Autism Society launched our new brand with updated visuals and modernized messaging. 

Over 1.2 million people accessed resources and education materials on our National website and 204,295 people attended events across the country. We also established the Autism Society Covid-19 Vaccine Education Initiative focused on advocating for individuals with Autism and developmental disabilities. 

Thank you to the individuals, families, corporations, and foundations that played a crucial role in supporting our work, and helping us fulfill our mission.


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Autism Society photo of 2 young adults seated at a laptop

Affiliate Highlights
  • Autism Society Central New York has partnered with The Kelberman Center to offer a social group for Autistic youth transitioning from high school into young adulthood (ages 17-30) and plans recreational activities twice a month. 
  • Autism Society Greater Akron is hosting a weekly LEGO Club for children ages 7-12 from September 10 - October 22. 
  • Autism Society Florida has created a variety of free multimedia resources on drowning prevention. They also provide swimming scholarships. 

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Contact Line 1 (800) 328-8476


Monday, August 01, 2022

Updates from Family Connection!

Family Connection of South Carolina logo

WHAT A NIGHT!

Photo of Man holding a toddler, viewing photos from Look! Exhibit

We had a fantastic celebration at our opening night reception for the LOOK! 2022 Exhibit! 

Thank you to our Presenting Sponsor, Groucho's Deli and all of the event sponsors for creating a beautiful evening, and a wonderful exhibit for our participating photographers and families. 

The LOOK! 2022 Exhibit is open to the public through September 16th at the Richland Library Gallery located at 1431 Assembly Street in Columbia. You may also view the photos and accompanying stories here! 

Sponsors of Look! logos: Grouchos Deli, Healthy Blue, Palmetto Pediatrics, Health Links, McGuire Woods Consulting, B106.7, BCBS of SC, Richland Library, Richland and Lexington Disabilities and Special Needs Board
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Support LOOK! 

Own a copy of all of the 

LOOK! 2022 photos and stories. 

Purchase the 2022 LOOK! Book today!

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Give Back at Tax-Free Weekend 

at Columbiana Centre 

Visit the Belk Court at Columbiana Centre on the Back-to-School Tax Free Weekend, Friday through Sunday August 5 - 7!  A limited collection of our 2021 LOOK! photos are on display and shoppers can make a tax-free contribution to support Family Connection.  

We will be there in person on Saturday, August 6th from 11am - 3pm with goodies for the kids and copies of our LOOK! Book for sale! Be sure to stop by and say hello! 

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Introducing...

Hannah Mathis, family education specialist at Family Connection of SC, photo

My name is Hannah Mathis, and I am a Family Education Specialist. I have been an advocate for the disability community for most of my life, as my brother has an intellectual disability. I love and embrace this community and I am passionate about supporting families to navigate systems, learning more about their children, and providing tools and resources that best fit the intricate needs of the family. I have a background in Social Work and graduated from Winthrop University and the University of South Carolina. My husband and I have a golden retriever lab mix whom we love dearly and I have a personal goal to learn ASL!

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Friday, July 29, 2022

Mila's Story

ABLE SC logo
 
BIPOC Mental Health Month July 2022 ABLE SC logo

July is BIPOC Mental Health Month 

July Is Bebe Moore Campbell National Minority Mental Health Awareness Month, Also known as BIPOC Mental Health Month. The month was recognized starting in 2008. It is formally called Bebe Moore Campbell National Minority Mental Health Awareness Month. It was created to bring awareness to the unique struggles that Black, indigenous, and other people of color (BIPOC) face related to their mental health. Bebe Moore Campbell was an American author, journalist, teacher, and mental health advocate who worked to educate others on the mental health needs of the Black community and other underrepresented communities. 

To celebrate the month we're introducing you to members of the BIPOC disability community who've shared their mental health stories with us. 

(Trigger warning: discussion of intense depression symptoms

Meet Mila. 

Mila photo ABLE SC BIPOC Mental Health Month July 2022 feature image

Mila has major depressive disorder, recurrent, in partial remission. This means she has some of the symptoms of depression but not enough to meet the requirements to need clinical treatment. "I began experiencing symptoms of depression around the age of 12 but did not get an official diagnosis until I saw my first therapist at 25. I have also experienced panic attacks (which are extremely scary), but that was due to intense work-related stress. I have not had any panic attacks since changing jobs." 

About her diagnosis, Mila says, “When I am not using tools that help me, I have anger and irritability, which can look like verbal aggression towards my family and even my dogs. My energy and motivation become very limited, and I want to sleep all day, every day. Everything feels too heavy and not worth doing. If I am off medication for 3 days or more, I experience intrusive thoughts and suicidal ideation. The part of my brain that can typically block out thoughts like that and look on the bright side seems off-line. It does not feel scary while it's happening because, interestingly, my thoughts and feelings make total sense to me at the time. During a depressive episode, I truly cannot remember feeling any other way, including being joyful. But when I get stable and look back, I realize it is a very dark and troubling time." 

Mila shared that medication is the best thing that works for her, "Unless I am consistently taking my medication, no other coping skills stick." 

She also enjoys watching her son, "Watching him experience the newness of life helps me to experience things for the "first time" again too." 

She uses the support of others to help her manage her health, "My husband, Mike, is very empathic and sometimes knows when I am 'spiraling' before I do. I have grown to trust him, and when he tells me something is off, I know to check in with myself. 

Mila's tools include:  

  • Medication 
  • Being in nature and walks 
  • Playing Pokémon Go 
  • Resting 
  • Listening to music 
  • Traveling 
  • Looking at Colorful things 
  • Meeting new dogs 
  • Taking care of plants 
  • Helping others 
  • Simple grounding techniques & attending therapy 

Mila's advice for those new to recovery from mental illness: 

Not to be cliché, but you are not alone, and there is hope! I became a mental health therapist because of my trauma history and desire never to let anyone struggle alone in the ways that I did. I encourage anyone reading this that may be struggling to ask for help. You can ask for help from a parent/guardian, a family member, a teacher, and a trusted friend. Keep asking until someone takes you seriously and will help you get to a professional. If you are unsure how to find professional help, check out www.psychologytoday.com to search for a therapist in your area. If the first therapist you find does not fit, do not hesitate to continue your search until you find 'your person.' " 

Thank you for sharing your story Mila! 


Thursday, July 28, 2022

Celebrating 32 Years of the Americans with Disabilities Act

United Spinal Association logo and Strong Wheeled Together logo

Group of disability activists gathered at capitol photo

United Spinal Newsletter | July 2022 

Celebrating 32 Years of 

the Americans with Disabilities Act

United Spinal and the Americans with Disabilities Act

United Spinal Association’s legacy with the Americans with Disabilities Act (ADA) is strong. The organization was fighting legal battles before the landmark civil rights legislation was adopted in 1990, some of which influenced the ADA, and United Spinal’s leadership wrote draft language, went to hearings around the nation and lobbied for the passage of the ADA. United Spinal continues to protect the ADA – which is constantly under threat of congressional bills that would greatly reduce its strength – through our daily work and events such as the Roll on Capitol Hill.

Fulfilling the Promise of the ADA: Making Our Railways More Accessible

United Spinal board member David Capozzi recounts his role in the drafting and implementation of the ADA, and zooms in on the fight to make mass transit accessible—and how campaigning continued on after the and thanks to the passage of the ADA.

The ADA Generation and the Future of Disability Activism

United Spinal speaks with disability rights activist Judy Heumann about the Disability Movement. 

Wednesday, July 27, 2022

Webinar Today! --- Concussion Management Among Adolescents in SC Schools

Brain Injury Association of SC logo

 CONCUSSION MANAGEMENT AMONG ADOLESCENTS 
IN SOUTH CAROLINA SCHOOLS

Wednesday, July 27, 2022 at 3 pm EST

Concussion Management Among Adolescents in SC Schools webinar July 27 3pm flier image

Join SC Association for the Advancement of Health Education (SCAAHE) on July 27th for a special webinar on concussion management in South Carolina schools.

In this webinar, Dr. Alice McLaine and Rachel Kaplan, MPH, Brain Injury Association of South Carolina, will discuss how concussions can impact academic and sports performance in school and suggest appropriate resources on concussion management for teachers and coaches working with these students.

Click Here To Register Today! 

Check Out Our Website 


Thursday, July 21, 2022

Register for Life with Brain Injury 2022 Conference!

Brain Injury Association of South Carolina logo

LIFE WITH BRAIN INJURY 
VIRTUAL CONFERENCE

JULY 28-29, 2022 

Life with Brain Injury 2022 Virtual Conference logo

SCHOLARSHIP APPLICATION 
HAS BEEN EXTENDED! 


  • If you need help filling out the form or have questions, please contact Rachel Kaplan at safetynetcoordinator@biaofsc.com or 919-593-6066.
  • Scholarship applications are being accepted now through July 26 for Brain Injury Survivors and Caregivers who would like to attend the conference, but cannot afford the registration fee. 

Non-member Standard Registration Prices:
  • Individuals with Brain Injury/Caregivers = $50 
  • Students = $50 
  • Professionals = $145 
If you have a current BIASC membership, one of the perks of this membership is a reduced price to attend ($15 off registration cost). As a member, you will receive a secure email with a discount code to receive your reduced price. If you have not received this email, please reach out to Administrative Assistant Von at adminassist@biaofsc.com to verify your status.

If you are interested in becoming a BIASC member, please visit our Membership Page and contact Von at adminassist@biaofsc.com or receive the discount code.


Sessions and Keynote Information:

Sessions Brain Injury 101 (can be viewed prior to the conference at www.biaofsc.com):
  • What Gadgets Can Help Me? 
  • Returning to School, Learning, Work and Life after Brain Injury 
  • Caring for the Care-Partner 
  • Brain Injury Recovery: The Intersection Between Brain Injury & Mental/Behavioral Health 
  • “de-LIBERATE-ly ME” 
  • Inclusive Strategies for Working with Individuals with Disabilities who are Survivors of Interpersonal Violence, Human Trafficking, and Abuse 
Keynotes:
  • Hope in Song: Music and Brain Injury by Cristabelle Braden, MA, Singer/Songwriter/TBI Survivor 
  • Caregiving for Family Members by Caroline Sheppard, MSW, Clinical and School Social Worker 
This conference is intended for brain injury survivors, caregivers, and professionals. CBIS CEU’s will be offered. Please note that all sessions, except “de-LIBERATE-ly ME,” will be recorded so you will be able to view at a later date. For more information, call 803.731.9823


For more information, contact BIASC office 
at 803.731.9823 or director@biaofsc.com

Wednesday, July 20, 2022

Standing Fitness and Mobility for Wheelchair Users

New Mobility logo
 July 19, 2022

PRODUCTS

Neuroaction Provides Standing Fitness and Mobility for Wheelchair Users

The Neuroaction provides the utility of a standing frame while allowing you to perform total body movements. You raise yourself into a standing position and then push and pull on two handles that drive your legs in a gliding motion. For those with limited arm strength, you can activate a motor in the device to assist in moving both your arms and legs. 

BULLY PULPIT

Inside the Caregiver Crisis

A recent, drawn-out search for a live-in caregiver gave Ian Ruder a firsthand look at how bad America’s caregiver crisis has gotten. He’s found that his experience is all too common. “I’ve heard from readers worried they won’t be able to stay at home, friends unable to get together because they can’t cover a shift, and too many people forced to press their friends and family into unwanted responsibilities,” he writes. 

MEDIA

Lolo Spencer Brings Authenticity to The Sex Lives of College Girls

Whether you’ve seen Lolo Spencer on her YouTube series Sitting Pretty or in the hit HBO series The Sex Lives of College Girls, her charisma makes it hard to take your eyes off the screen. Teal Sherer profiles Spencer and finds a power wheelchair user happy to be herself and with enough personality to push disability representation beyond its typical tropes.  

Click here to read more of this issue!


United Spinal Association logo

New Mobility is the member publication of United Spinal Association, whose mission is to improve quality of life of people with spinal cord injuries and disorders. It's free to join United Spinal, and members may receive New Mobility magazine for free for one year. Join here. 

Tuesday, July 19, 2022

Tiffany's Story

ABLE SC logo
 
ABLE SC July is BIPOC Mental Health Month image

July is BIPOC Mental Health Month

July Is Bebe Moore Campbell National Minority Mental Health Awareness Month, Also known as BIPOC Mental Health Month. The month was recognized starting in 2008. It is formally called Bebe Moore Campbell National Minority Mental Health Awareness Month. It was created to bring awareness to the unique struggles that Black, indigenous, and other people of color (BIPOC) face related to their mental health. Bebe Moore Campbell was an American author, journalist, teacher, and mental health advocate who worked to educate others on the mental health needs of the Black community and other underrepresented communities.

To celebrate the month we're introducing you to members of the BIPOC disability community who've shared their mental health stories with us.

Meet Tiffany

Tiffany photo for ABLE SC July 2022 BIPOC Mental Health Month

Tiffany has ADHD and Depression.

About her diagnosis, Tiffany says, “My diagnosis can sometimes get in the way of me performing small tasks. At times the hardest thing to do is to get the day started. Getting out of bed, getting dressed, and sometimes eating can take so much mental energy. There are times when I'm triggered and times when I'm not triggered. Sometimes it just happens. ”

Tiffany's tools include: 

  • Taking care of herself
  • Giving herself grace
  • Not blaming herself
  • Being gentle with herself
  • Giving herself time

"When I give myself grace, I take care of my heart. I release shame, disappointment, or anything that makes me dig a deeper hole that I feel like I am in."

Tiffany also goes outside for fresh air and to spend time with nature, "God's medicine is the four elements: water, land, air, and fire and it renews my soul."

Tiffany's advice for those new to recovery from mental illness is "That a psychiatric disability is something that you have but it doesn't have you. You are not your diagnosis. You are powerful beyond measure and are in control through your ups and downs.”

Thank you for sharing your story Tiffany!

References:

Able South Carolina 

803.779.5121 | advocacy@able-sc.org


Monday, July 18, 2022

LWBI Conference - Scholarships and Access to Session Recordings Post-Conference

Brain Injury Association of SC logo
 
LWBI Conference logo

LIFE WITH BRAIN INJURY VIRTUAL CONFERENCE (JULY 28-29, 2022) 

SCHOLARSHIP APPLICATION

HAS BEEN EXTENDED!

Click this link to download 

the scholarship application form.

If you need help filling out the form or have questions, please contact Rachel Kaplan at safetynetcoordinator@biaofsc.com or 919-593-6066.

Scholarship applications are being accepted now through July 26 for Brain Injury Survivors and Caregivers who would like to attend the conference, but cannot afford the registration fee. 

*****

Non-member Standard Registration Prices:

  • Individuals with Brain Injury/Caregivers = $50
  • Students = $50
  • Professionals = $145

If you have a current BIASC membership, one of the perks of this membership is a reduced price to attend ($15 off registration cost). As a member, you will receive a secure email with a discount code to receive your reduced price. If you have not received this email, please reach out to Administrative Assistant Von at adminassist@biaofsc.com to verify your status.

If you are interested in becoming a BIASC member, please visit our Membership Page and contact Von at adminassist@biaofsc.com or receive the discount code.

Click Here For Standard Registration 

*****

Sessions and Keynote Information:

Sessions Brain Injury 101 (can be viewed prior to the conference at www.biaofsc.com):

  • What Gadgets Can Help Me?
  • Returning to School, Learning, Work and Life after Brain Injury
  • Caring for the Care-Partner
  • Brain Injury Recovery: The Intersection Between Brain Injury & Mental/Behavioral Health
  • “de-LIBERATE-ly ME”
  • Inclusive Strategies for Working with Individuals with Disabilities who are Survivors of Interpersonal Violence, Human Trafficking, and Abuse

Keynotes:

  • Hope in Song: Music and Brain Injury by Cristabelle Braden, MA, Singer/Songwriter/TBI Survivor 
  • Caregiving for Family Members by Caroline Sheppard, MSW, Clinical and School Social Worker

This conference is intended for brain injury survivors, caregivers, and professionals. CBIS CEU’s will be offered. Please note that all sessions, except “de-LIBERATE-ly ME,” will be recorded so you will be able to view at a later date. For more information, call 803.731.982.

2022 LWBI Conference keynote speakers Cristabelle Braden and Caroline Sheppard photo

Click Here To View 2022 Conference Agenda 

Hosted by Brain Injury Association of SC and SC Brain Injury Leadership Council logos

For more information, contact BIASC office at 803.731.9823 or director@biaofsc.com

Check Out Our Website



 


Friday, July 15, 2022

Don't miss, "Community Connections: Covid-19 Vaccines Approved for Ages 6 Months+"!

Autism Society logo
 
Autism Society Community Connections Covid 19 Vaccines approved for Ages 6 months + Facebook Live Wednesday July 20th at 1pm

Covid-19 Vaccines Approved for Ages 6 Months+

The Autism Society is proud to present our virtual event, Community Connections: Covid-19 Vaccines Approved for Ages 6 Months+, hosted on Facebook Live on Wednesday, July 20th at 1:00 pm EST. Join Dr. Jayne Morgan and Claire Tibbetts, Administrative Manager at the Autism Society of Greater New Orleans, as they discuss the importance of Covid-19 vaccine approval for ages 6 months and older.

Click the link below to attend this free, virtual event. 

We hope to see you there!

Event Details 

Visit Website


Life With Brain Injury Conference, July 28th and 29th, 2022

 

2022 Life with Brain Injury Conference Flyer

 
Register at: www.biaofsc.com

Thursday, July 14, 2022

Concussion Management Among Adolescents in SC Schools

Brain Injury Association of South Carolina logo

Concussion Management Among Adolescents in SC Schools on Wednesday July 27at 3pm flier

Join SC Association for the Advancement of Health Education (SCAAHE) on July 27th for a special webinar on concussion management in South Carolina schools.

In this webinar, Dr. Alice McLaine and Rachel Kaplan, MPH, Brain Injury Association of South Carolina, will discuss how concussions can impact academic and sports performance in school and suggest appropriate resources on concussion management for teachers and coaches working with these students.

Eligible for BOC and NSCA CEU credits

Free for SCAHPERD members and $15 for non-members