Wednesday, June 28, 2023

Field Notes June 2023

Field Notes Translating Research into Practice logo

Employment

The following two articles are from the June Special Issue of Inclusion on Employment 

Employment Preparation Experiences of Youth With Intellectual Disability and Autism Who Attend College-Based Transition Programs

An article published in the June 2023 issue of Inclusion by authors affiliated with the University of Massachusetts examines the composition of employment preparation activities in college-based transition programs. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)

Work-Based Learning Experiences and Students With Intellectual Disability

An article published in the June 2023 issue of Inclusion by authors affiliated with the University of Missouri-St. Louis and the University of Illinois Urbana Champaign describes a study observing the extent to which students with intellectual disability participate in work-based learning experiences and determine whether student characteristics relate to student participation in these activities. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee) 

Outcomes Research 

Using the Independent Monitoring for Quality Program to Examine Longitudinal Outcomes for People With Intellectual and Developmental Disabilities

An article published in the June 2023 issue of Intellectual and Developmental Disabilities by authors affiliated with the University of Minnesota and Temple University illustrates the importance of longitudinal data collection by sharing the results of the Independent Monitoring for Quality (IM4Q) program in Pennsylvania. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee) 

Impact of Social-, Health-, and Disability-Related Factors on Pregnancy Outcomes in Women with Intellectual and Developmental Disabilities: A Population-Based Latent Class Analysis

An article published in Volume 16, Issue 2 of the Disability and Health Journal by authors affiliate with the University of Toronto and the Azrieli Adult Neurodevelopmental Centre identifies and describes subgroups of pregnant women with IDD according to social, health, and disability-related factors and examine the risks of perinatal complications in these subgroups compared to women without IDD. (Available free of cost) 

Healthcare   

Good Healthcare for Life? The Case of Down Syndrome 

An article published in the June 2023 Issue of the Journal of Policy and Practice in Intellectual Disabilities by authors affiliated with Tilburg University, Radboud University and Erasmus University provides insight into the way people with Down syndrome live their lives, how health care may fit in, and how this may impact the development of quality indicators. (Available free of cost)

Family Carer and Professional Perceptions of the Potential Use of Telehealth for Behavioural Support

An article published in the June 2023 Issue of the Journal of Intellectual Disability Research by authors affiliated with the University of Kent describes a study used to determine what factors would influence participants' use of telehealth for behavioural support.(Available free of cost) 

Maternal Healthcare for Women With Physical Disabilities in Northern Vietnam: Perspectives of Healthcare Providers

An article published in Volume 16, Issue 2 of the Disability and Health Journal by authors affiliated with Queensland University and the University of Southern Queensland explores perspectives and experiences of maternal healthcare providers in the delivery of services to women with physical disabilities in Northern Vietnam. (Available free of cost) 

Mental Health 

Integrated Mental Health Treatment Guidelines for Prescribers in Intellectual and Developmental Disabilities

An article published in the June 2023 issue of the Journal of Policy and Practice in Intellectual Disabilities by authors affiliated with the University of New Hampshire and the University of North Carolina describes a five-step guideline for providers to use to address the complex needs of patients with IDD and mental healthcare needs. (Abstract free of cost, full text available with a fee) 

A Therapeutic Welcome: Mental Health within the Reality Ministries Disability Community

An article published in Volume 27, 2023 - Issue 2 of the Journal of Disability and Religion by authors affiliated with Duke University examines the impact of Reality Ministries, a Christian community center open to all abilities and faiths, on participants’ views toward disability and mental health. (Available free of cost) 

Angelman Syndrome

Exploring Communication Ability in Individuals With Angelman Syndrome: Findings From Qualitative Interviews With Caregivers

An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Duke University and The Foundation for Angelman Syndrome Therapceutis describes how conducting individual qualitative interviews with caregivers and clinicians can elicit meaningful aspects of communication for individuals with AS. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)  

Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome

An article published in the May 2023 issue of the American Journal on Intellectual and Developmental Disabilities by authors affiliated with Duke University and The Foundation for Angelman Syndrome Therapeutics describes the critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with AS. (Free for AAIDD members. For non-members, the abstract is free of cost, full text access available with a fee)


AAIDD logo

No comments: