Tuesday, March 07, 2023

COVID-19 in the news

SC Disability Vaccine Access Network Protect your community secure your shot logo

COVID-19 in the News 

You may have heard about the end of the Federal COVID-19 Public Health Emergency, but do you know what that means for you? 

  • The White House has announced that the federal government will end its declared COVID-19 Public Health Emergency on May 11 
  • Ending the declaration will end the federal government's spending towards programs that promoted vaccination and other efforts to keep American's afloat during this time 

COVID-19 Vaccine Schedule Reminders

  • There is a COVID-19 vaccine and bivalent booster available to everyone over 6 months of age 
  • Age and the brand type used for the primary vaccine series will determine an individual's timeline 
  • Immunocompromised people will get additional doses that will impact their timeline 
  • The mRNA bivalent booster replaced the mRNA monovalent booster last fall 
  • Everyone over 6 months old is encouraged to get their primary vaccine and bivalent booster 

Not sure when your next shot is? 

Use this tool from our website to help:

My Vaccination Plan 

What will change

  • COVID-19 Vaccine, Treatments, and Testing will now come at a cost 
  • People without insurance may have to pay out of pocket 
  • Non-citizens who were able to secure the vaccine at no cost may have to pay out of pocket

  • People with private healthcare plans could see more costs 
  • Care that prevents getting very sick, like vaccines, are likely to be covered by insurance 
  • Private insurance deductibles are likely to be charged for treatment and testing 
  • A doctor will be required to prescribe treatments and testing to receive these benefits 
  • Some cost estimations of the vaccine are over $100 
  • Some news reports that there will be options for low to no cost COVID-19 vaccines 

Changes to Medicaid and Medicare

  • Vaccines will remain at no cost to beneficiaries, but cost-sharing is expected for testing and treatments like anti-viral drugs, like Paxlovid 
  • Medicare coverage requirements that were waived during the emergency will return 
  • Medicare prescription drug benefits will no longer allow beneficiaries to get extended supplies of drugs 
  • In December Congress voted that, starting in April, some states will start kicking people off of expanded Medicaid benefits. It's possible that 15 million people will lose health coverage 

What won't change 

  • Some people who lose their Medicaid access in April will qualify for plans provided by the Affordable Care Act (but not all) 
  • Medicare beneficiaries and people in high-deductible health plans will have eased access to telehealth through the end of 2024 due to an extension provided by Congress 
  • The FDA will still have the power to authorize vaccines, tests, and drugs on an emergency basis 
  • There are many other programs that will be influenced by this change, including nutrition assistance programs, immigration policies, mental health service funding in public schools, etc. 

Continue to protect yourself 

  • While the federal emergency is ending, this does not mean the pandemic is over 
  • It is still recommended that people with disabilities, people who are immunocompromised, people over 65, pregnant people, and families with children under age 1 should still protect themselves. 
  • Get your vaccine and stay up to date by getting your bivalent booster 
  • Get your vaccine doses before May 11 to guarantee that they are free! 
  • Wearing a high-quality respirator mask such as an N95 or KN95 is still one of the best ways to keep yourself from getting very sick, in addition to getting and maintaining your vaccination 

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Black, indigenous, and other people of color with disabilities are at an even greater risk of getting very sick and dying from COVID-19. Learn more and read stories from BIPOC people who've gotten vaccinated to protect themselves at this link: https://www.able-sc.org/bipocvax/ 

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Are you still unsure about vaccination? 

Call the SC Disability Vaccine Access Hotline:

1-800-787-6046 

Ask questions and get help making your plan!  

Check out the detailed resources at www.scdisabilityvaccine.org 

Group of disabled people holding banner that says Protect Your Community Secure Your Shot picture




Monday, March 06, 2023

Autism Society of America Receives Major Grant for Health Equity

Autism Society logo

Autism Society of American Receives Multi-Million Dollar Grant image

The Autism Society of America announced today that it has received a multi-million dollar grant from USAging’s Aging and Disability Vaccination Collaborative (ADVC). The ADVC is an initiative funded by the U.S. Administration for Community Living to provide outreach, technical assistance, and support to promote vaccination uptake.  

“This grant will allow the Autism Society to expand our very successful and highly acclaimed Vaccine Education Initiative (VEI), a public health model that promotes vaccine confidence, education, and access to increase vaccination rates for underserved populations,” shares Christopher Banks, President and CEO of the Autism Society of America. 

This grant will help the organization expand its impact with dedicated resources for the VEI, which elevates all of its health equity work, as well as helps address organizational needs across our operations and programs. It is the largest funding event in the organization’s 58-year history. The grant provides an incredible opportunity for network-wide growth as the Autism Society positions itself for the future. 

Read More 

Visit Website

Get Support

Autism Society footer logo

Friday, March 03, 2023

BIASC Press Conference for Brain Injury Awareness Month

Brain Injury Association of South Carolina 25th anniversary logo

YOU’RE INVITED

BIASC Press Conference

___________________

March is Brain Injury Awareness Month!

Governor Henry McMaster has proclaimed March 2023 as Brain Injury Awareness Month in South Carolina to help raise awareness of the extent, consequences, causes, treatments, and prevention of brain injuries. We’ll be putting a spotlight on the brain injury community through the #MoreThanMyBrainInjury campaign.

__________________

BIASC Celebrates 25 Years of Providing Resources & Support to the South Carolina Brain Injury Community!

25 is our year! We have doubled in staff and are receiving funding and grants from state and national level sources which allows us to dedicate time to address some of the intersections of brain injury that we didn't have the capacity to address until now. We are a thriving organization that provides countless resources, trainings, referrals, and supports for survivors of brain injury, their caregivers, and professionals who work with brain injury survivors.    

Thursday, March 9, 2023

10:00 am - 10:30 am

South Carolina State House

First Floor Lobby

1100 Gervais St,

Columbia, SC 29208

Contact us for more information!


Thursday, March 02, 2023

New Report on Home and Community-Based Services

Disability Rights SC logo

Disability Rights South Carolina 
and the SC Institute of Medicine 
& Public Health Release 
New Olmstead Report and Recommendations

Disability Rights SC leader at lectern giving presentation image


The report includes the history behind the 1999 Olmstead ruling, how it's affecting South Carolinians today and the opportunities for state and local entities to plan and collaborate to improve the lives of people with disabilities across the state. The speakers at the event included the following: 
  • Beth Franco, Executive Director, DRSC 
  • Maya Pack, Executive Director, IMPH 
  • Anna Maria Conner, Senior Attorney, DRSC 
  • Senator Katrina Frye Shealy, District 23 
  • Pamela Loudon, Report Interviewee 


“This report presents an opportunity to plan, collaborate and execute actions that will improve the lives of people with disabilities across the Palmetto State,” says Beth Franco, executive director. “We want people with disabilities to be able to join the workforce, pursue an education, volunteer and participate in the community free from unnecessary limitations.” 

There are currently 53 Olmstead-related cases in Circuit Courts of Appeal across the country — including North Carolina, Georgia and Louisiana. To avoid continued violation of the Olmstead ruling and the risk of litigation that has taken place in other states, this report outlines specific recommendations for South Carolina to move forward with an Olmstead plan, including: 
  • Assigning an Olmstead compliance coordinator and Olmstead implementation council 
  • Developing a South Carolina Olmstead plan 
  • Distributing South Carolina Olmstead plan responsibilities 
  • Implementing an accountability and evaluation process 
This report is the result of many local agencies working diligently to improve the lives of South Carolinians. The findings are meant to be shared broadly to inform policies and practices to protect and enhance the lives of people with disabilities in the state today and in the future. For more information, read the full report. 

Disability Rights SC group photo of leadership
We protect and advance the legal, civil, 
and human rights of people with disabilities in South Carolina

Wednesday, March 01, 2023

Countdown to Expo!

2023 Assistive Technology Expo logo

6 DAYS UNTIL THE SC AT EXPO
COME CELEBRATE 30 YEARS OF EXPO!
 

Date: Tuesday, March 7th, 2023

Time: 8:30 am Registration and Exhibit Hall Open / 9:30 am Classes Begin 

Cost: FREE! Open to the Public

Location: Columbia Metropolitan Convention Center, 1101 Lincoln Street, Columbia, SC 29201 (Directions)

Registration: On-line registration available until Thursday March 2nd to save time on event day. Can’t register by March 2nd?  It’s ok, because onsite registration will be available the day of the event.

Parking: Free parking is available in convention center parking lot and in the 1007 Park Street parking garage; just mention “Expo”

to find out more about the Expo!  

Fireworks black and white outline drawing

Tuesday, February 28, 2023

United Spinal Member Newsletter, February 2023

United Spinal Association and Strong Wheeled Together duo logos

United Spinal Newsletter | February 2023 

Historic Policy Victory on the Horizon for 

Power Wheelchair Users

How We Can Make Proposed 

Seat Elevation Policy Reform a Reality

We are on the brink of a first-time expansion of coverage by the Centers for Medicare and Medicaid Services (CMS) to include power seat elevation equipment on certain power wheelchairs. The proposed decision released last week is a huge milestone—but we are not done yet.

Thank you to all of you who have helped us get to this point after so many years of advocating on this critical issue. Let’s make this proposed decision final!

We need your voice to help secure Medicare coverage for critical wheelchair technology. CMS wants to hear from you—here’s how you can help.

Submit a Comment to CMS

Are you a wheelchair user? 

Medicare wants to hear from YOU! 

Take action by March 17, 2023.

We need to show Medicare that wheelchair users and people with disabilities strongly support this coverage and urge Medicare to go even further to ensure that all those who need access to these systems can get it. As you know, these systems are vital for wheelchair users to be able to: 

  • Safely transfer from a wheelchair to another surface, particularly if it is not level with your chair
  • Increase your reach to access higher surfaces across the home
  • Prevent and reduce stress injuries from repetitive transfers and reaching
  • Function independently at home as much as possible
  • Describe that seat elevation is needed for functional reach in your home

CMS is currently accepting public comments through Friday, March 17 before they finalize their decision on coverage for power seat elevation systems. Please share your story and let Medicare know how you could or do benefit from these technologies. Submit your comment here.

Take the Fight to Social Media

Consider spreading the word about the ITEM Coalition’s great resource on this issue with language like: Let’s #Rise4Access! Medicare needs to hear from you to finalize coverage for seat elevation systems in power wheelchairs. How does seat elevation help you live your daily life? #ShareYourStory and tell Medicare to cover these systems. Visit rise4access.org for more information.

United Spinal’s advocates have been there from the beginning. Share United Spinal’s reporting on this major victory and raise awareness with your networks.

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Advocates Express Fear and Rage at 

Latest Wheelchair User’s Death-by-Airline

The family of Gaby Assouline is suing Southwest Airlines for not assisting her. Gaby’s death is the latest in the airline industry’s long track record of broken equipment and bodies. Read more about Gaby’s story—and learn how you can join the fight against this longstanding and intolerable situation.

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Black Disability History & the Present

Take a moment to dive into this thinkpiece by Luticha André Doucette about the relationship between racism and ableism—and how we can undo racism in our own community. This timely intervention makes important proposals about how we can center the concerns of Black people with disabilities and promote the leadership of Black activists and advocates in our organizations.

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Click here to read more of this issue. 

Click here to view all upcoming United Spinal events.

Monday, February 27, 2023

It's Eating Disorder Awareness Week!

ABLE SC National Eating Disorders Week February 27 to March 5 2023 banner ad

National Eating Disorder Awareness Week 
is recognized 
February 27 through March 5

An eating disorder is a serious mental and physical illness that affects your relationship with food, exercise, and body image. Eating disorders impact approximately 30 million people in the United States. The impact is felt by people regardless of race, gender, socio-economic status, disability status, religion, sex, age, etc.   

There are unique stressors within the disability community that can cause the development of an eating disorder. There are groups within our community that are unfairly harmed by eating disorders.  

Why are there unique stressors for people with disabilities? 

  • Ableism – prejudice, oppression, and exclusion faced by people with disabilities.  
  • The media in the U.S celebrates similar, tall, and slender bodies. The many different shapes, sizes, and abilities of bodies found in the disability community are rarely celebrated.  
  • There are barriers to finding support and treatment for eating disorders.  
  • Medical providers encourage diet and weight loss without considering if their patient may have an eating disorder 
  • Medical providers overlook signs of an eating disorder if they are masked by symptoms of your disability. Symptoms of a disability that are also symptoms of an eating disorder can be weight loss or muscle atrophy  
  • Physical access to treatment may not be available  
  • Treatment plans can interfere with activities of daily living  
  • The cost of treatment and support is challenging  
  • Eating disorder specialists don’t always have training in working with people with other disabilities  

Recovery from and eating disorder is possible and there is hope! If think you may need help with an eating disorder, take this simple screening tool or call the NEDA helpline. Also, explore free, and low cost supports available. 

Still have questions? 

Contact us to see if we can help!

803.779.5121 | advocacy@able-sc.org 

References: 

Thursday, February 23, 2023

RFP Extended: 2023 Life with Brain Injury Conference

Brain Injury Association of South Carolina 25th Anniversary logo

Request For Proposals Extended 
to February 27th

2023 Life with Brain Injury Conference Save the Date July 28 2023 promo

The 2023 Life with Brain Injury Conference will provide a forum for the exchange of information on programs, resources, and best practices in brain injury rehabilitation and services. The conference presentation topics need to address all types of brain injuries.  Proposals must be applicable to a broad audience, and not specific to South Carolina residents; however, presentations on programs offered in South Carolina that others may be interested in duplicating are welcome. In addition to presentations, there will be exhibitors and sponsors to provide information about their brain injury services and resources at the conference.

Individuals interested in presenting should submit proposals by Monday, February 27, 2023 (extended from February 20). The total presentation time is one hour and includes the time for Q & A’s.

Visit Our Website for More Information

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Save the Date:

2023 Life with Brain Injury Conference

Friday, July 28, 2023

Cooperative Conference Center 

169 Laurelhurst Ave, Columbia, SC 29210

Wednesday, February 22, 2023

SC Assistive Technology Expo on March 7, 2023

Assistive Technology Expo 30th anniversary logo

5 Reasons to attend the 
SC Assistive Technology Expo 
on March 7, 2023

  1. See the latest technology from exhibitors in the Exhibit Hall.
  2. Network with other professionals interested in assistive technology.
  3. Learn from assistive technology experts who will contribute to your personal success.
  4. Get FREE CEU’s for Counselors, Long Term Care/Residential Care, Nursing, Occupational Therapy, Physical Therapy, Social Work, Speech Language Pathologists, Education Professionals, Early Interventionist 
  5. Join us and celebrate the 30th anniversary of the SC AT Expo!

CEU’s are provided from AHEC, ASHA, BabyNet and the SC Department of Education.  It is the responsibility of each participant to ensure that the CEU credit awarded for the purpose of licensure or certification renewal meets the specific criteria and complies with his/her relevant professional statutes, policies, and regulations at the time of the offered sessions.  Visit our website to see the session schedule

Date: Tuesday, March 7th, 2023

Time: 8:30 am Registration and Exhibit Hall Open / 9:30 Classes Begin 

Cost: FREE! Open to the Public

Location: Columbia Metropolitan Convention Center, 1101 Lincoln Street, Columbia, SC 29201 (Directions)

Registration: On-line registration available until Thursday March 2nd to save time on event day; On-site registration will be available the day of the event.

Parking: Free parking is available in convention center parking lot and in the 1007 Park Street parking garage

Go to http://sc.edu/medicine/scatp  to find out more about the Expo.  


Tuesday, February 21, 2023

Trainings and Updates from Family Connection!

Family Connection of South Carolina logo

Breaking News!

Family Connection of South Carolina Collage of photos from past Look! photography exhibits to promote Look 2023

We are proud to announce that LOOK! 2023 will be held at the Columbia Metropolitan Convention Center on Sunday, July 30 and will be open to the public through mid-August. 

Our annual photography exhibit features families from across the state. Professional photographers volunteer their time for candid sessions with the children and young adults from families we serve. 

Sponsorship opportunities are open, and we are still looking for SC  photographers to participate this year--particularly in the Columbia and Florence areas! 

Photographer Application

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Upcoming Events and Trainings

Ensuring Progress on IEP Goals

Thursday, February 23  

12:30 pm - 1:00 pm 

Measuring progress on IEP goals is part of IDEA. 

What does it mean to “progress monitor?” How often does reporting of student progress toward goals happen and how is it measured? 

Join us as Dr. Deanna Parish with the Academic Alliance of South Carolina shares strategies to monitor students’ progress on IEP goals. 

Learn tips to use before, during, and after your child’s IEP meeting to better participate in your child’s education. 

Register Here!

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Assistive Technology: What Is It & How Is It Used in Special Education?

Tuesday, February 28

10:00 am – 11:00 am 

If your child has an IEP or 504 plan, you have probably heard the term “assistive technology” but might not have known what that meant! 

Join us as Kelly Kampwerth and Valerie Kroesen, Speech/Language Pathologists and Assistive Technology Specialists with Charleston County School District, talk with us about evidence-based practices in AT. 

Register Here!

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Support Parent Training

Saturday, March 4

9:00 am – 1:00 pm 

South Carolina parents/caregivers, join us for an interactive workshop providing four hours of evidence-based training to give you (a parent of a child with special health care needs) the skills to be able to support another parent effectively.  

The goal of the Support Parent Program is to help educate, inspire and empower parents and their children to live rich, fulfilling lives in spite of many challenges. 

Attendees who complete the training will receive a certificate as well as additional opportunities for skill development and volunteer time during their year commitment with Family Connection of SC. 

Register Here!

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IDEA and Transition Services: Essential Components of a Successful Plan 

Tuesday, March 7

11:30 am – 1:00 pm

Preparing students for life after high school--continuing ed, training, employment, or independent living is important. Join us, and learn how! 

Is your child ready for their next big step? Life after high school is a big change but thorough transition planning can help smooth this process to post-secondary (after high school!) success. 

Learn what IDEA requires for post-secondary transition, learn to identify the components of a comprehensive transition plan, and gain resources about post-secondary transition. 

Register Here!

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Waze to Adulthood: Parent/Professional Training

Monday, March 6 - Friday, March 24 

Turning 18 is a big deal! An 18-year-old is legally considered an adult in South Carolina and can make legal, medical, financial, medical, and educational decisions in their life. 

This free self-paced online training will share basic information about things that need to be considered as a person turns 18. 

Training can be accessed any time between March 6 and March 24. 

Certification of completion for two hours will be provided to participants who complete this training. 

Presented by PEATC in collaboration with Family Connection of SC. 

Register Here!

Hopes & Dreams Conference 2023!

Family Connection of South Carolina Hopes and Dreams Conference 2023 logo

Mark your calendars for this year's in-person

 Hopes and Dreams Conference

--coming up on May 3rd at R2i2. 

Exhibitor and attendee registration will open in the coming weeks. 

Sponsorship and exhibitor opportunities are available now!



Monday, February 20, 2023

2023 Life with Brain Injury Conference: Save the Date & RFP

2023 Life with Brain Injury Conference Save the Date July 28 2023 promo

Save the Date:

2023 Life with Brain Injury Conference

Friday, July 28, 2023

Cooperative Conference Center 

169 Laurelhurst Ave, Columbia, SC 29210

We are excited to announce that the Life with Brain Injury Conference this year will be held in-person in Columbia, SC at the Cooperative Conference Center: 169 Laurelhurst Avenue, Columbia, SC 29210.

Be on the lookout for updated information regarding times and link for to register.

We will offer scholarships again for brain injury survivors.

The 2023 Life with Brain Injury conference will provide a forum for the exchange of information on programs, resources, and best practices in brain injury rehabilitation and services. The conference presentation topics need to address all types of brain injuries.  Proposals must be applicable to a broad audience, and not specific to South Carolina residents; however, presentations on programs offered in South Carolina that others may be interested in duplicating are welcome. In addition to presentations, there will be exhibitors and sponsors to provide information about their brain injury services and resources at the conference.

Individuals interested in presenting at this conference should submit proposals by Monday, February 20, 2023. The total presentation time is one hour and includes the time for Q & A’s.

Click Here to Download the RFP 

Visit Our Website for More Information 


Friday, February 17, 2023

Virtual Walk, Run, & Roll 5K for Brain Injury Awareness

Brain Injury Association of South Carolina 25th Anniversary logo

 2023 Virtual Walk, Run, & Roll 5K for Brain Injury Awareness

March 19 - 25, 2023

BIASC 2023 Walk Run Roll 5K logo


Please join us for our second annual Virtual Walk, Run, & Roll 5K as we celebrate BIASC's 25th anniversary! This awareness event will run throughout the entire week of March 19 to 25. March is Brain Injury Awareness Month across the US!

Registration is $40 and each participant will receive a t-shirt. Brain injury survivors can use the coupon code “Survivor23” at checkout for $10 off.

If you’d like to receive a t-shirt in time, register by February 24. You can register up until the last day on March 25, but we cannot guarantee that you'll receive a t-shirt by the time the event starts. 

Please note that this is not an actual in-person race! This is a Virtual Walk, Run, & Roll 5K that lasts the entire week of Sunday, March 19, to Saturday, March 25. You can walk, run, or roll or do a combination throughout the week! 

All proceeds go directly to the Brain Injury Association of SC programs and services:    
  • Toll-free helpline to provide resource facilitation
  • SC Visibility project resource bags for new brain injury patients   
  • Brain Injury Safety Net Project for concussion education among students, school professionals, medical professionals, and parents
  • Education and training to professionals, caregivers, law enforcement 
  • Brain Injury Support Groups
  • Injury prevention initiatives
  • Advocacy
  • Opioid Crisis Outreach -- New in 2023! 
  • Veteran's Outreach -- New in 2023!
  • Intimate Partner Violence -- New in 2023!
So, get your support group together, get your family together, get your co-workers and friends together and get out and Walk, Run, and Roll for Brain Injury Awareness across SC! Take pictures while wearing your t-shirt and participating and share on social media!  Please use hashtag #BIASCWalkRunRoll in your post and tag us @BIAofSC!

Thank you for showing your support 
for Brain Injury Awareness in South Carolina! 


Thursday, February 16, 2023

Apply Now for the SC Youth Leadership Forum!

SC Youth Leadership Forum logo

The South Carolina Youth Leadership Forum 

is a summer experience where 

you can become a leader for disability rights 

— all while having fun.

Large group of diverse young disabled people outdoors having fun photo

Presbyterian College July 23-26, 2023

Become a leader in your community.

The South Carolina Youth Leadership Forum is an opportunity for young adults with disabilities living in South Carolina to cultivate leadership skills and learn how to become an advocate in their community. Selected delegates typically stay on a college campus for three nights to learn about independent living and advocacy in a safe and supportive setting while building relationships with other young adults from around the state.

Are you eligible to attend? SC YLF applicants must…

  • Have a disability.
  • Live in South Carolina.
  • Fall within the 15-23-year-old age range. (High school juniors, seniors and recent high school graduates accepted.)
  • Show leadership potential at school or in the community.

What can I expect at SC YLF?

  • Hands-on activities to develop leadership skills
  • Sessions and discussions with a selection of notable speakers 
  • Relationship and team building
  • Inclusive mind and body exercises


To Learn More:


or email us at ylf@able-sc.org