Wednesday, April 30, 2025

AUCD Weekly

 

AUCD Weekly - Updates every Wednesday for the AUCD Network.

April 30, 2025



 Announcements


Join us Tomorrow for IPSE Day

Hosted by Think College IPSE Day (or Inclusive Postsecondary Education Day) is a day to raise awareness and spread the word about inclusive postsecondary education (IPSE) options for students with intellectual disabilities. Inclusive postsecondary education (IPSE) refers to college and university programs that enroll people with intellectual disability. It is also called inclusive higher education. Inclusive postsecondary education programs create opportunities for students with and without intellectual disability go to college together. Need some resources that explain more about inclusive postsecondary education? There are tons of easy-to-read handouts, as well as an excellent video on the "Think Higher. Think College." website. For IPSE Day 2025, students, families, friends, educators, allies, and supporters are invited to share why you think IPSE is important.

nTIDE Lunch & Learn Webinar Series: Special Guest Katy Neas

May 2, 2025 12:00 PM - 1:00 PM ET
On the first Friday of every month, corresponding with the Bureau of Labor Statistics jobs report, the national Trends in Disability Employment (nTIDE) team offers a live broadcast via Zoom Webinar to share numbers and the latest news about disability employment. Join us to hear from our hosts and expert panelists from the field who discuss current topics, findings and events. Tune in this Friday, to hear from Katherine (Katy) Neas, CEO of The Arc of the United States.

AI and the Digital Age: Responsible and Compassionate Care for People with Neurodevelopmental Disabilities

Monday May 12, 2025, 8:15 AM - 1:00 PM ET, Virtual Conference
The conference, AI and the Digital Age: Responsible and Compassionate Care for People with Neurodevelopmental Disabilities, will explore the transformative potential of artificial intelligence (AI) and digital technology in supporting individuals with Neurodevelopmental Disabilities (NDD), including Autism Spectrum Disorder (ASD) and Intellectual and Developmental Disabilities (IDD). Bringing together experts from diverse fields, the event will examine practical applications of AI in care, ethical considerations in its use, and the influence of social media on neurodivergent identity and community. Through keynote presentations, panel discussions, and interactive sessions, participants will gain actionable insights into leveraging AI for personalized and compassionate care while fostering an understanding of its ethical complexities and societal impact. This conference offers a unique opportunity to engage in meaningful dialogue and develop strategies to advance responsible and holistic approaches to NDD care in the digital age. Cost $45.00. Sponsored by the Northeast Regional LEND Consortium.

Research Participants Needed: How Do YOU Do Community?

The Center for Inclusion and Reflective Collaboration (CIRC Center) within the Transitions to Adulthood Center for Research and the Temple University Collaborative on Community Inclusion is looking to interview young adults (ages 18-30) with mental health conditions from marginalized backgrounds about your community participation. The study explores what community participation means to you, including your experiences since the COVID pandemic. This information can be used to improve interventions, systems, and policies to better meet your needs.

Employment Opportunities Across the Network

The AUCD Employment page focuses on job and fellowship opportunities at AUCD, within our Network, and at organizations affiliated with our Network. The University of California Davis Mind Institute seeks an Senior Associate Dean for Undergraduate Medical Education in Sacramento, CA. Please complete this form if you would like your job posted. Positions will remain on the website for 90 days.


 Funding


Patient-Centered Outcomes Research Institute (PCORI): Intellectual and Developmental Disabilities (IDD) Topical

Letters of Intent Deadline: May 13, 2025

Award Ceiling: TBD

The Patient-Centered Outcomes Research Institute (PCORI) Online System opened on April 1 for submissions of Letters of Intent (LOI) for the Cycle 2 2025 Intellectual and Developmental Disabilities Topical PCORI Funding Announcement (PFA). This PFA seeks to fund study proposals that focus on people with intellectual and developmental disabilities (IDDs). Compared to people without IDD, a higher proportion of people with IDD have co-occurring physical and mental health conditions and unmet healthcare needs. This opportunity aims to fund the comparison of interventions encountered by individuals of all ages who have IDD. Comparisons can be clinical interventions or systems approaches and can include pharmacological or non-pharmacological interventions.

Patient-Centered Outcomes Research Institute (PCORI): Addressing Violence and Trauma Topical

Letters of Intent Deadline: May 13, 2025

Award Ceiling: TBD

The Patient-Centered Outcomes Research Institute (PCORI) has announced the Cycle 2 2025 Topical Funding Announcement focusing on addressing violence and trauma. This initiative aims to support patient-centered comparative clinical effectiveness research (CER) that evaluates clinical interventions and health system strategies targeting both psychological and physical trauma. PCORI is particularly interested in studies that address intentional trauma (such as intimate partner violence, child and elder abuse), unintentional trauma (including traumatic brain injury and fall-related injuries), and the intersection of substance use and trauma. Proposals should aim to improve patient-centered outcomes and may request up to $12 million in direct costs over a project period of up to five years.

Eisner Foundation, Eisner Prize Fellowships

Letters of Intent Deadline: May 23, 2025

Award Ceiling: $5,0000

The Eisner Foundation identifies, advocates for, and invests in high-quality, innovative programs that unite multiple generations to enrich our communities. The foundation invites applications for the Eisner Prize Fellowship, designed to support leaders pioneering innovations in intergenerational connection. 

The Eisner Foundation has awarded the Eisner Prize to honor people and organizations doing exceptional intergenerational work nationwide. In this next phase in the evolution of the prize, the foundation will provide financial resources, networking opportunities, and the prestige of the Eisner Prize to leaders with new ideas and perspectives that will propel the field forward.

Tow Foundation, Serving Improving Youth Mental Health

Letters of Intent Deadline: May 23, 2025

Award Ceiling: $1,000,0000

Established in 1988 by Leonard and Claire Tow, the Tow Foundation aims to promote wellness and access to opportunities so that individuals and communities can thrive. The foundation has issued a request for proposals for its 2025 Innovation Fund, which will award grants in support of efforts to improve youth mental health and well-being and serve young people between the ages of 0-25, as well as their families. Through the fund, the foundation hopes to inspire and invest in bold approaches and learn from exploring questions such as: What are the most challenging barriers youth and their families face in accessing support for mental health and well-being? What emerging innovations exist to address these barriers? What is the resulting impact of these innovations on youth and their families?

FRAXA Research Foundation, Applications for Research

Application Deadline: Rolling

Award Ceiling: $100,000

The FRAXA Research Foundation aims to find specific treatments and ultimately a cure for Fragile X syndrome. The foundation invites applications for its clinical trial and curative therapies grants programs. Clinical trial grants are flexible in amount, structure, and duration. Emphasis will be placed on clinical trials of potentially disease-modifying agents, which have been previously validated in Fragile X animal models, especially in previous FRAXA-funded research. Other types of clinical research will also be considered, such as biomarker studies in Fragile X patients, or trials of symptomatic therapies, but this type of research is a lower priority. There is no limit to structure of grant (can fund PI, postdoc, grad student, technician, supplies, etc.) or timeframe (though all grants over one year still need yearly renewal). There is also no limit on amount.


 Resources


Impact: The Lives-in-Progress Collective

The Lives-in-Progress Collective (LIPC), founded by David “DJ” Savarese, is a national grassroots initiative designed to amplify the voices and leadership of people with disabilities. LIPC serves as a dynamic online hub connecting disabled adults with lived experience to resources, mentorship, and a supportive community. Through its accessible platform, LIPC fosters interdependence and collaboration, offering diverse pathways for individuals seeking to live self-directed lives. By centering disability leadership, LIPC aims to transform the future of self-direction and ensure that freedom is not just a choice, but a fundamental right for all. Impact series is published by the Institute on Community Integration, University of Minnesota.

PBS News Hour: People with Disabilities Explain How Medicaid Cuts Could Impact their Lives

The PBS NewsHour segment highlights how proposed Medicaid cuts could deeply affect people with disabilities. Advocates like Keith Jones (Boston), Martha Haythorn, (Atlanta), Jessica Sibley (Colorado), and Diana Vila (New York) stress Medicaid’s vital role in providing healthcare, personal support, and community access that enable their independence and well-being.

NPR Education: DOGE Abruptly Cut a Program for Teens with Disabilities. This Student is 'Devastated'

Dr. Karrie Shogren (KS UCEDD), a leading expert in self-determination and supported decision-making for individuals with disabilities, was featured in NPR’s April 14, 2025, report titled “Students with disabilities lost a helpful program to DOGE cuts.” The segment discusses the abrupt termination of the “Charting My Path for Future Success” program by the Department of Government Efficiency (DOGE), which aimed to assist high school students with disabilities in transitioning to post-secondary life. Dr. Shogren's insights underscore the program's potential benefits and the challenges posed by its sudden cancellation.

The Boggs Center’s Spring 2025 Developmental Disabilities Lecture Series

Did you miss The Boggs Center’s Spring 2025 Developmental Disabilities Lecture Series? Check out the recordings and handouts for Understanding the Importance of Medicaid, Improving Health and Healthcare Equity of People with Intellectual and Developmental Disabilities, Promoting Autistic Flourishing: A Positive Psychology Approach to Autism, and School To Work Transition: Expect, Engage, and Empower.

New Study Reveals Motor Delays as Possible Key Early Indicator for Autism Diagnosis

A new large-scale, population-based study from the lab of Waisman Center investigator Maureen Durkin, PhD, DrPH, professor of population health sciences and Evan and Marion Helfaer Professor of Public Health, reveals that motor delays may be a common yet underrecognized symptom in autistic children. The research found that 72% of the children included in the study met the criteria for motor delays.


Weekly news items may be submitted for consideration via the AUCD Promotion Request Form.
Submissions are due on Monday each week.


View Online

AUCD 1100 Wayne Avenue, Suite 1000 | Silver Spring, MD 20910

This weekly newsletter is in part supported by the Administration for Community Living (ACL) through a technical assistance contract for the URC and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.

Tuesday, April 29, 2025

SCATP Webinar, Wed., April 30th, 11 am Eastern Time

Join us for a Webinar on Wednesday Apr 30, 2025 

Time: 11:00 AM Eastern Time (US and Canada) 
Topic: Sensory Play with Toys and Tots  
Target Audience: Families of infants and toddlers who are blind or low vision  
Description of webinar: Families will learn easy strategies to implement at home that promote fine motor skills in their infants/toddlers who are blind or have low vision. Participants will learn: 1. Importance of enhancing sensory efficiency skills, including residual vision. 2. Learn strategies to promote all senses through play. 3. Learn resources to access appropriate toys for enhancing sensory efficiency skills.  
Speaker Name: Krista Nardi
Speaker Biography: Krista is a Certified Teacher of the Visually Impaired (TVI), providing services to school-age children and adults with vision loss in the Greenville area. She holds a bachelor’s degree from Coastal Carolina University in Multi-Categorical, Special Education and a master’s degree from Vanderbilt University in Visual Impairments, Special Education. In her downtime, Krista likes going to the beach, listening to music/dancing, and spending time with her nieces and nephews.  



Rachell Johnson, MCD., CCC-SLP, ATP

Program Manager

SC Assistive Technology Program

Center for Disability Resources

8301 Farrow Road

Columbia, SC 29203

rachell.johnson@uscmed.sc.edu

https://sc.edu/medicine/scatp

Phone: 803-935-5301 | Fax: 803-935-5342 | ​Toll Free: 800-915-4522

Facebook

Twitter



Autism Society, Autism Stories

 

Autism is capability. The power to see, create, and thrive in ways others can't.

The Autism Is campaign acknowledges that no two Autistic individuals have the same lived experience. Autism is both personal and collective—an identity, a community, a culture, and a way of life. It comes with strengths and struggles, moments of joy and challenge, and everything in between.


Throughout April, we're sharing stories that celebrate the diversity of the Autism experience.

Voices of Autism: Faith's Story

Headshot of Faith smiling

"We often forget that many of the most brilliant minds in history were like us—Autistic or disabled in some way—and they built the world around us." 

- Faith J., Individual with Autism.


Read her full story below.

"Autism does not mean I am incapable. It does not mean I am unintelligent. It does not mean I am a burden or that my neurological differences make me less than. Autism is simply a different neurological reality—a beautiful part of what it means to be wholly and completely myself.


Autism is an infinite loop of endless possibilities, a tapestry of limitless potential. Being Autistic, to me, means I am not confined to one thing. I have endless roads I can travel. I can see the world in ways others cannot and never will.


I am like a block of wood—given time and the right tools, it can be carved into something beautiful: a shield, a house, a strong foundation. Those with Autism are like clay, capable of being molded into extraordinary parts of society. We often forget that many of the most brilliant minds in history were like us—Autistic or disabled in some way—and they built the world around us.


Autism is a tapestry of limitless beauty and potential that only fools refuse to see. We are important to society. You only need to let us emerge, with compassion and support, to become some of the most successful people. Disbelief, fear-mongering, and ignorance will not help us.


My statement—what Autism means to me—is simple: I am capable. And so are the many others who are Autistic."


The Autism Is campaign is shaped by stories like Faith's—amplifying the voices and lived experiences of Autistic individuals. We want to hear what Autism Is to you.



Read More Stories
FooterWave.png

Visit Website

Donate

Get Support

Follow Us

Facebook  Instagram  LinkedIn  Twitter  YouTube

Contact Line 800.328.8476