April 23, 2025
| | | | Announcements | | Submission Deadline: July 4, 2025 The Developmental Disabilities Network Journal issues this urgent call for papers at a pivotal and precarious moment for the disability community in the United States. The proposed elimination of University Centers for Excellence in Developmental Disabilities (UCEDDs), State Councils on Developmental Disabilities, Protection & Advocacy organizations, and other essential programs like LENDs, and IDDRCs represents an existential threat to the infrastructure that supports individuals with developmental disabilities, their families, and the professionals who serve them. The impact of these proposed cuts would be devastating, unraveling decades of progress in promoting community living, inclusion, and self-determination for people with disabilities. In the face of this unprecedented challenge, it is imperative that we, as a collective, amplify the evidence-based impact and profound importance of the DD Network. | The AUCD Policy Team is partnering with Brandeis University’s Community Living Policy Center to create training, networking, and mentoring opportunities for trainees. As part of this project, AUCD is looking to learn more about our trainee's experience and interests in public policy. Current and former trainees are welcome to submit the survey. The deadline for completing this survey is Friday, April 25.
| May 13-15, 2025, Hybrid For almost a quarter century, the Frank Porter Graham Child Development Institute (FPG) has welcomed people to Chapel Hill to the International Early Childhood Inclusion Institute, during which invited family, practitioner, state, local, and faculty leaders as well as FPG staff facilitate professional learning and the exchange of ideas on using evidence-informed tools, practices, and resources for families and practitioners involved in the care and education of young children with disabilities in inclusive settings. Included within the 2.5-day event are numerous opportunities for networking and building fellowships with other peers. | Tuesday, May 20, 2025, 9:00 AM- 3:00 PM ET, Virtual Florida Center for Inclusive Communities (FCIC) Employment Virtual Conference is an online interactive training opportunity for rehabilitation and employment professionals, educators, employers, policymakers, youth and adults with intellectual and developmental disabilities (I/DD), family members, and anyone interested in promoting successful employment for individuals with I/DD. The conference is held online over the course of one day and offers sessions tailored to meet the needs and interests of a diverse audience. | The AUCD Employment page focuses on job and fellowship opportunities at AUCD, within our Network, and at organizations affiliated with our Network. The Institute on Disabilities seeks an Associate Director of Finance and Administration in Philadelphia, PA. Please complete this form if you would like your job posted. Positions will remain on the website for 90 days. | | Funding | | Letters of Intent Deadline: May 13, 2025
Award Ceiling: TBD
The Patient-Centered Outcomes Research Institute (PCORI) Online System opened on April 1 for submissions of Letters of Intent (LOI) for the Cycle 2 2025 Intellectual and Developmental Disabilities Topical PCORI Funding Announcement (PFA). This PFA seeks to fund study proposals that focus on people with intellectual and developmental disabilities (IDDs). Compared to people without IDD, a higher proportion of people with IDD have co-occurring physical and mental health conditions and unmet healthcare needs. This opportunity aims to fund the comparison of interventions encountered by individuals of all ages who have IDD. Comparisons can be clinical interventions or systems approaches and can include pharmacological or non-pharmacological interventions.
| Application Deadline: May 23, 2025 Award Ceiling: $13,000,000 Based in London, the Huo Family Foundation (HFF) aims to support education, communities, and the pursuit of knowledge in the current areas of focus: education, the arts, and science. The foundation has issued a call for proposals for the effects of the usage of digital technology on brain development, social behaviors, and mental health in children and young people. A long-standing interest of HFF has been the effect and impact of usage of digital technology on young people. The rapid rise and use of this technology has permeated much of society and transformed the way many humans interact. | Application Deadline: May 30, 2025
Award Ceiling: $5,000 The American Psychiatric Association Foundation invites applications for its Helping Hands Grants program. Established in 2005, the program aims to encourage medical students to participate in community service activities, raise awareness of mental illness and the importance of early recognition of illness, and build interest among medical students in the psychiatric field and working in underserved communities. Grants will be awarded to medical schools for mental health and substance use disorder projects, particularly in under-served minority communities. Funded projects are created and managed by medical students and can be conducted in partnership with community agencies, or in conjunction with ongoing medical school outreach activities. | Letters of Intent Deadline: May 31, 2025
Award Ceiling: TBD The Caplan Foundation for Early Childhood is currently accepting Letters of Intent for innovative projects that aim to significantly improve the lives of young children—from infancy through age seven—across the United States. This foundation acts as an incubator for promising research and development initiatives, offering seed funding to early-stage projects that have the potential to create measurable, national impact in the field of early childhood. | | Resources | | Vanderbilt University Medical Center researchers, as part of the Centers for Disease Control and Prevention Autism and Developmental Disabilities Monitoring (ADDM) network, have reported an increase in the number of children in Tennessee and the U.S. with autism spectrum disorder (ASD). The findings, published in the CDC’s Morbidity and Mortality Weekly Report series on April 15, document that over 3% of children in the state (1 in 29; 3.4%) and nation (1 in 31; 3.2%) have autism. This represents a doubling of the estimated number of children with autism in Tennessee since the research team first investigated prevalence in Tennessee a decade ago (2014: 1 in 68; 1.5%).
| New data from the Minnesota-Autism and Developmental Disabilities Monitoring Network (MN-ADDM) at the University of Minnesota shows that 1 in 28 (3.6%) 8-year-old children in Minnesota have autism. The findings are based on 2022 data from 17,331 children in parts of Anoka, Hennepin, and Ramsey counties. Minnesota is part of a 16-state network funded by the Centers for Disease Control and Prevention. The CDC found that, on average, 1 in 31 (3.2%) children were identified as having autism in communities where prevalence was tracked by the ADDM Network in 2022, an increase from 1 in 36 in 2020. This estimate is based on 8-year-old children living in parts of 16 states and does not represent the entire population of children in the United States. | Autism now affects 1 in 31 U.S. 8-year-olds, up from 1 in 36 in 2020, according to the CDC. Wisconsin’s rate is even higher at 1 in 26 (3.8%). The data comes from the CDC’s ADDM Network and highlights disparities across regions and demographics, with higher rates among boys and children from diverse racial and ethnic backgrounds. The Waisman Center’s Dr. Maureen Durkin leads Wisconsin’s tracking efforts through WISADDS. She emphasizes the need for early diagnosis and lifelong support. Encouragingly, more children are being identified earlier—those born in 2018 were 1.7 times more likely to be diagnosed by age 4 than those born in 2014. Resources like the CDC’s free Milestone Tracker app can help families monitor development and access early support. | The Autism Plan of Georgia envisions a future where all children with autism and related disorders have access to high-quality, family-centered, comprehensive, and coordinated services and supports. The Center for Leadership in Disability, housed within the School of Public Health at Georgia State University, was awarded the Georgia Autism Planning Grant to help make this vision a reality. In collaboration with the Autism Advisory Council, CLD developed a structured framework for the plan, with the annual Autism Conference and Expo of Georgia emerging as a key initiative. | | Weekly news items may be submitted for consideration via the AUCD Promotion Request Form.
Submissions are due on Monday each week. |
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This weekly newsletter is in part supported by the Administration for Community Living (ACL) through a technical assistance contract for the URC and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred. |
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